Re: - July 16th - MAGIC Convention Update

July 16, 2004

- I'm debating whether I should be giving such good advice to

a Bush supporter...... HA!

For " first-time " families, I think you should go in assuming:

a) confirmation of diagnosis

what does Dr. H think of the child's current treatment and her

thoughts on what should be done (because to be honest, she is going

to tell you that anyway.....) She will tell you if the child is too

thin (and based on info you give, her thoughts on diet changes,

and/or periactin or if she thinks a g-tube is needed)

If your child has signs of GI issues, then I think that might be

another question you can ask.

You want to AVOID questions that are more general in nature that are

going to get answered in a presentation. Do NOT ask Dr. H " does GH

really change a child's height. " Do NOT ask Dr. H " does Periactin

really work " Stick to SPECIFIC questions about your child. You

don't want to waste your limited valuable time with her getting a

lecture on something you will hear later.

Hope this helps!

> <<Plan on getting 2-3 questions answered, so pinpoint

> what your most important questions are.>>

>

> What are 3 good questions to ask??

>

> I have as of now..

>

> 1) Is he RSS or SGA? Why?

> 2) What can I do about his lack of eating? Periactin or

>

> Peptamin Jr (or both)?

>

> Can anyone help me think of another that may be important, but I

am forgeting?

>

> Mom to Liam (3 1/2 years old 34 3/4 " 27 lbs

> SGA / possible RSS, Hypothyriod, Epilepsy.) Started GHT 5/18/04

> and Jed (11 years old) Tourettes, CAPD,SVT.

> SW Orlando FL

> **Push for Bush 'cause Kerry is scary**

>

Recommended Posts