Re: been away but back ...Terry

[Guest guest]

Thanks Terry...can I ask what dose you are taking and for how long??

Ruthie

been away but back now with disappointing news

> >

> > Hello ladies,

> > I have been away from the group for quite a while...just couldn't

> > keep up with every post the way I wanted and life gets hectic enough.

> > I was diagnosed in Nov of 2000...had good results with Tap for just

> > over 2 years and went off all meds this past February with hopes of

> > remission. One month post meds all was well. 2 days ago, I felt my

> > neck and noticed enlargement again along with having a few

> > palpitaions recently and Weight watchers never worked so well before!

> > Anyway, blood work was done yesterday and Endo just called. Labs are

> > as follows:

> > TSH <.01 range .40-5.5

> > Free T4 3.1 range 0.8-1.8

> > Total T3 238 range 60-181

> >

> > What I need to know is this....I recall someone on this list having

> > reported being on Tap for 20 + years. Please tell me...what are the

> > risks and have many people done this...stayed on Tap long term?? My

> > Endo was sure she had never heard of anyone doing so unless they were

> > quite old and suggests surgery since I told her I would never do RAI.

> > Anyway,

> > aside from being a bit sad that remission didn't happen...I am scared

> > to death of surgery as I've never had any before...never been

> > unconscious before and the thought is frightening. I'd rather just

> > stay on the Tap. I am 42 yrs old. Looking forward to hearing from

> > any and all of you,

> > Ruthie

> >

> >

> >

> >

> >

> >

> >

> >

> > -------------------------------------

> > The Graves' list is intended for informational purposes only and is not

> > intended to replace expert medical care.

> > Please consult your doctor before changing or trying new treatments.

> > ----------------------------------------

> > DISCLAIMER

> >

> > Advertisments placed on this yahoo groups list do not have the

endorsement of

> > the listowner. I have no input as to what ads are attached to emails.

>

> --------------------------------------------------------------------------

----

> > --------

> >

> >

[Guest guest]

Hi Ruthie,

Right now I'm taking about 2 mg. a day, if that, half in the AM and half in

the PM. I weaned down from 7.5 mg. slowly after I decided I had nothing to

lose by taking people here's suggestions and dividing my dose into three

parts, and spreading it out through the day. I immediately began to get

better after a long haul of needing to take at least the 7.5 (well, I did

wean down slowly from 12.5 a year ago, and I had ended up there after being

in remission for a very, very short time-or thinking I was-and going hyper

again).

Right now if I take much more than the crumbs I ingest, I feel hypo. This

despite my TSI just coming in at 97, and my tSH being back down to <.01. But

my FT4 and FT3 are in the normal range, and I don't feel at all bad lately,

at least thyroid-wise.

Terry

>

> Reply-To: graves_support

> Date: Thu, 29 May 2003 17:33:00 -0500

> To: <graves_support >

> Subject: Re: been away but back ...Terry

>

> Thanks Terry...can I ask what dose you are taking and for how long??

> Ruthie

> been away but back now with disappointing news

>>>

>>> Hello ladies,

>>> I have been away from the group for quite a while...just couldn't

>>> keep up with every post the way I wanted and life gets hectic enough.

>>> I was diagnosed in Nov of 2000...had good results with Tap for just

>>> over 2 years and went off all meds this past February with hopes of

>>> remission. One month post meds all was well. 2 days ago, I felt my

>>> neck and noticed enlargement again along with having a few

>>> palpitaions recently and Weight watchers never worked so well before!

>>> Anyway, blood work was done yesterday and Endo just called. Labs are

>>> as follows:

>>> TSH <.01 range .40-5.5

>>> Free T4 3.1 range 0.8-1.8

>>> Total T3 238 range 60-181

>>>

>>> What I need to know is this....I recall someone on this list having

>>> reported being on Tap for 20 + years. Please tell me...what are the

>>> risks and have many people done this...stayed on Tap long term?? My

>>> Endo was sure she had never heard of anyone doing so unless they were

>>> quite old and suggests surgery since I told her I would never do RAI.

>>> Anyway,

>>> aside from being a bit sad that remission didn't happen...I am scared

>>> to death of surgery as I've never had any before...never been

>>> unconscious before and the thought is frightening. I'd rather just

>>> stay on the Tap. I am 42 yrs old. Looking forward to hearing from

>>> any and all of you,

>>> Ruthie

>>>

>>>

>>>

>>>

>>>

>>>

>>>

>>>

>>> -------------------------------------

>>> The Graves' list is intended for informational purposes only and is not

>>> intended to replace expert medical care.

>>> Please consult your doctor before changing or trying new treatments.

>>> ----------------------------------------

>>> DISCLAIMER

>>>

>>> Advertisments placed on this yahoo groups list do not have the

> endorsement of

>>> the listowner. I have no input as to what ads are attached to emails.

>>

>> --------------------------------------------------------------------------

> ----

>>> --------

>>>

>>>

[Guest guest]

Thank you for sharing....I am feeling better about the whole long term tiny

dose idea. Endo mentioned low WBC and liver elevations as possible

risks....but I think there are risks with everything so might as well give

the Tap another go.

Ruthie

been away but back now with disappointing

news

> >>>

> >>> Hello ladies,

> >>> I have been away from the group for quite a while...just couldn't

> >>> keep up with every post the way I wanted and life gets hectic enough.

> >>> I was diagnosed in Nov of 2000...had good results with Tap for just

> >>> over 2 years and went off all meds this past February with hopes of

> >>> remission. One month post meds all was well. 2 days ago, I felt my

> >>> neck and noticed enlargement again along with having a few

> >>> palpitaions recently and Weight watchers never worked so well before!

> >>> Anyway, blood work was done yesterday and Endo just called. Labs are

> >>> as follows:

> >>> TSH <.01 range .40-5.5

> >>> Free T4 3.1 range 0.8-1.8

> >>> Total T3 238 range 60-181

> >>>

> >>> What I need to know is this....I recall someone on this list having

> >>> reported being on Tap for 20 + years. Please tell me...what are the

> >>> risks and have many people done this...stayed on Tap long term?? My

> >>> Endo was sure she had never heard of anyone doing so unless they were

> >>> quite old and suggests surgery since I told her I would never do RAI.

> >>> Anyway,

> >>> aside from being a bit sad that remission didn't happen...I am scared

> >>> to death of surgery as I've never had any before...never been

> >>> unconscious before and the thought is frightening. I'd rather just

> >>> stay on the Tap. I am 42 yrs old. Looking forward to hearing from

> >>> any and all of you,

> >>> Ruthie

> >>>

> >>>

> >>>

> >>>

> >>>

> >>>

> >>>

> >>>

> >>> -------------------------------------

> >>> The Graves' list is intended for informational purposes only and is

not

> >>> intended to replace expert medical care.

> >>> Please consult your doctor before changing or trying new treatments.

> >>> ----------------------------------------

> >>> DISCLAIMER

> >>>

> >>> Advertisments placed on this yahoo groups list do not have the

> > endorsement of

> >>> the listowner. I have no input as to what ads are attached to emails.

> >>

>

>> -------------------------------------------------------------------------

-

> > ----

> >>> --------

> >>>

> >>>