Guest guest Posted July 17, 2004 Report Share Posted July 17, 2004 I was curious as to how often most RSS children should be seen regularly by their endo doctor. is only every 5 to 6 months. And if something happens and I need to change the appointment, they ALWAYS tell me " we don't have anything for another 6 months. " For instance, her next appointment is the Monday after the convention. I called 3 weeks in advanced and explained about the conference and they told me that I could keep that appointment or wait till December(that's the next available appointment). At her last appointment in March, he increased her gh, but didn't do any blood work. Should he have done some test before increasing her gh? He hasn't done any blood work or tests since May 03. Is this normal? He's never done a bone scan. I'm thinking very seriously about changing doctors. Any opinions? Thanks for the advice. , 6 1/2 yrs, 25lbs, 39in, gh , 11yrs , 12 1/2yrs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2004 Report Share Posted July 17, 2004 Liam's Endo is the same with wait times.... But it is usually only 3 months if ypu cancel!!!! I wish I could switch endo's, but they are the only group in the area.... Mom to Liam (3 1/2 years old 34 3/4 " 27 lbs SGA / possible RSS, Hypothyriod, Epilepsy.) Started GHT 5/18/04 and Jed (11 years old) Tourettes, CAPD,SVT. SW Orlando FL **Push for Bush 'cause Kerry is scary** Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2004 Report Share Posted July 17, 2004 hi mary- christopher's gh is on hold rigt now, but when he was on it we were told that we were to see the endo every 3 months for routine blood work and he would do a bone age every 6 months. i would definitely think of switching drs. jodie (nicholas-6 nonrss, christopher-3 rss 24lbs 1.7oz 34 " periactin, ght geontropin(on hold until convention), ADHD(possible), assmentry(left side 1cm), johnathon-1yr nonrss) > I was curious as to how often most RSS children should be seen > regularly by their endo doctor. is only every 5 to 6 > months. And if something happens and I need to change the > appointment, they ALWAYS tell me " we don't have anything for another > 6 months. " For instance, her next appointment is the Monday after > the convention. I called 3 weeks in advanced and explained about > the conference and they told me that I could keep that appointment > or wait till December(that's the next available appointment). At > her last appointment in March, he increased her gh, but didn't do > any blood work. Should he have done some test before increasing her > gh? He hasn't done any blood work or tests since May 03. Is this > normal? He's never done a bone scan. I'm thinking very seriously > about changing doctors. Any opinions? > Thanks for the advice. > > > , 6 1/2 yrs, 25lbs, 39in, gh > , 11yrs > , 12 1/2yrs Quote Link to comment Share on other sites More sharing options...
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