Re: Convention!!

July 26, 2004

Pat,

Thanks so much for thinking of us.

As we're feeding him right now, it's like he's on continuous feeds

anyway. We're feeding him 70cc every hour. I know, it's crazy, but

call me stubborn! I don't want that pump! That's just life for us

right now.

And if we were to use it, he would have to be able to take more than

70 an hour through the pump, which I doubt.

I told the GI at the last appt. I would be willing to try it a few

hours a day, but I'm not willing to try a J-tube.

He's doing really well right now though. I'm giving him HMF powder,

which is acidophilous and something else, and I added 5 cc cod liver

oil a day. Can't wait for his next weight check.

I couldn't make it to the convention this year, too much going on

with my other son.

but, me and my hubby are getting away today to Tahoe for three whole

days, no kids, and, I'm not bringing my watch to check the hour!!

Cindy n, RSS, 4 years old tomorrow! around 21 lbs, 34 "

, 6 years old, learning problems!

July 26, 2004

We are back too.. I am not feeling good tody. I have had a migraine all day.

According to Dr. H Liam is SGA not RSS, but I was able to talk to Dr.

Stanhope and he thinks he is mild RSS. He said it is a tough call with him,

but would say probably and suggested that he is just the type of child that

should get the UPD7 test.

The dentist feels that Liam (not the dentist at the convention, but the one

here, we did not see the one at the convention) says that Liam has assemetry

in the face and Jaw. Assemetry does not go along with SGA, does it?

We had a GREAT time and hope to be able to go back next year. We may not be

able to, as my sisters wedding is in NY on July 31 next year. Jed and I are

in it so we have to be there about a week early....

Mom to Liam (3 1/2 years old 34 3/4 " 27 lbs

SGA,RSS??? Hypothyriod, Epilepsy.) Started GHT 5/18/04

and Jed (11 years old) Tourettes, CAPD,SVT.

SW Orlando FL

**Push for Bush 'cause Kerry is scary**

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