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Re: DEL Important!

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Del,

I recall you mentioning that you are allergic to iodine. The uptake test

gives you a dose of radioactive iodine. That's what they use, to test how

much of it your thyroid " takes up " , basically.

It's NOT a necessary test, as has been posted by other people here. It CAN

and probably will, at the very least, badly aggravate your eye condition.

So why are you letting them do it? Perhaps this info went right by you

'cause you're so inundated with new info, that happens to a lot of us when

newly diagnosed. But serious consideration of saying " doc, I want to get an

ultra sound and TSI test instead " should be the order of your day!

Terry

>

> Reply-To: graves_support

> Date: Fri, 14 Nov 2003 23:39:48 -0000

> To: graves_support

> Subject: Meds

>

> Thanks again for all your great info and wish's.

>

> I picked up the tapazole and it is 10mg 3 times a day. I can't start

> to take it until after my up take test Monday and Tuesday. I'll post

> my test results on the blood work next week after my doctors appt.

>

> Thanks again,

>

> Del

>

>

>

> -------------------------------------

> The Graves' list is intended for informational purposes only and is not

> intended to replace expert medical care.

> Please consult your doctor before changing or trying new treatments.

> ----------------------------------------

> DISCLAIMER

>

> Advertisments placed on this yahoo groups list do not have the endorsement of

> the listowner. I have no input as to what ads are attached to emails.

> ------------------------------------------------------------------------------

> --------

>

>

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Thanks Terry,

I really questioned this too and was assured that they will not be

using iodine in this test. They are using some " other kind " of

contrast. I will be checking this again when I go Monday. If I can't

get the answer that assures me that there is no iodine in it, I will

be walking out and straigt to the Doctor!

All of the tests that has to be done, knowing when to agree and

having to double check what is being used, is really stressing me

out. I only hope that this all get a little easier as time marchs on!

I really appreciate you for bring this to my attention.

Del

> Del,

>

> I recall you mentioning that you are allergic to iodine. The

uptake test

> gives you a dose of radioactive iodine. That's what they use, to

test how

> much of it your thyroid " takes up " , basically.

>

> It's NOT a necessary test, as has been posted by other people

here. It CAN

> and probably will, at the very least, badly aggravate your eye

condition.

>

> So why are you letting them do it? Perhaps this info went right by

you

> 'cause you're so inundated with new info, that happens to a lot of

us when

> newly diagnosed. But serious consideration of saying " doc, I want

to get an

> ultra sound and TSI test instead " should be the order of your day!

>

> Terry

>

> > From: " tripod2655 " <tripod2655@h...>

> > Reply-To: graves_support

> > Date: Fri, 14 Nov 2003 23:39:48 -0000

> > To: graves_support

> > Subject: Meds

> >

> > Thanks again for all your great info and wish's.

> >

> > I picked up the tapazole and it is 10mg 3 times a day. I can't

start

> > to take it until after my up take test Monday and Tuesday. I'll

post

> > my test results on the blood work next week after my doctors

appt.

> >

> > Thanks again,

> >

> > Del

> >

> >

> >

> > -------------------------------------

> > The Graves' list is intended for informational purposes only and

is not

> > intended to replace expert medical care.

> > Please consult your doctor before changing or trying new

treatments.

> > ----------------------------------------

> > DISCLAIMER

> >

> > Advertisments placed on this yahoo groups list do not have the

endorsement of

> > the listowner. I have no input as to what ads are attached to

emails.

> > -----------------------------------------------------------------

-------------

> > --------

> >

> >

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Del wrote:

> I really questioned this too and was assured that they will not be

> using iodine in this test. They are using some " other kind " of

> contrast. I will be checking this again when I go Monday. If I can't

> get the answer that assures me that there is no iodine in it, I will

> be walking out and straigt to the Doctor!

I don't get it: it's my understanding that hyperthyroidism plus a high TSI

(stimulating antibodies) level is sufficient to diagnose Graves disease.

This was how I was originally diagnosed - I was balking at the RAIU test,

and in the meantime my TSI came back positive and my endo told me I did

indeed have Graves. I asked him if the antibodies were diagnostic for

Graves, and he told me they were. In the absence of anything else that

confuses the picture, are any kind of scans really necessary? Aren't hot

nodules that the scans look for relatively uncommon compared to Graves, and

rather unlike to turn up in association with it?

-Jill

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