Guest guest Posted May 22, 2003 Report Share Posted May 22, 2003 I have seen a few people post about their children who have GD. 2 years ago my son was diagnosed with a rare genetic disorder and I was so overwhelmed with the amount of info and stuff to process that I bought a note book and accordian file and started writing down all his tests, meds, Dr's visit with the multiple specialists he saw etc. and kept all other paperwork with it in the file. It really helped me keep things straight. He is stable now and I haven't needed to write in it for awhile but I was looking at it this morning thinking of what a good thing it would be for any parent dealing with a child's illness that will be a part of their life for awhile. in soggy BC Canada Quote Link to comment Share on other sites More sharing options...
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