SV: help needed in defending the diet - long

[Guest guest]

,

I think that your posting is of general interest:

Lots of people have similar problems.

After they have convinced themselves

that the diet is worth trying, they have to

secure other people's cooperation.

Since I'm an attorney, I spend a lot of time

trying to convince various people about

what they ought to do or what they ought to mean.

I've learnt the hard way that to convince unmotivated

or obstructive / obstinate people about the usefulness

of the GFCF diet, is a tough proposition.

Making them listen or read is often difficult in itself.

Finding the right kind of information to feed them

will also be difficult.

I strongly recommend Karyn Seroussi's book:

Quote from it or make people read it:

It's well written, precise and clear,

and it carries a strong emotional charge.

Several other success stories are also available.

Some of them are really fantastic!

The danger of that kind of success story,

is that it can raise expectations too high.

My own website ( www.advimoss.no/GFCF_results )

is about a much less striking kind of " recovery " .

There's a bit there about how to make sure.

For most, it's extremely important to write down

and collect several forms of documentation

about how the child's condition has been

before and during the diet treatment.

Opinions are OK, but documented facts

are much better when it comes to

convincing most people!

Some people are more impressed by statistics

than by general or specific success stories.

If you can, show them some of the material

from the GFCFkids Diet Survey ( www.gfcfdiet.com )

And for some people, it's even better to get hold of

the scientific articles by Cade, Shattock or Reichelt.

Good luck!

n Klaveness

-----Opprinnelig melding-----

Fra: booth@...

Til: GFCFKids <GFCFKids >

Dato: 16. mai 2001 20:05

Emne: help needed in defending the diet - long

>Dear Friends,

> A year ago my daughter, now 3 and a half, was not saying one

>word. She was not making eye contact and sometimes wouldn't respond

>when we called her. She had mild hand flapping and toe walking and

>tested poorly in many areas and was diagnosed autistic.

> One year later everyone thinks she is normal. She talks normally

>she hugs, she makes eye contact, she even hugged her sister when

>her sister was crying the other day. I am so grateful to the diet,

>and God and all the help that is freely available these days!

> The main things we did were to eliminate casein, gluten, do

>a yeast diet, take a short course of nystatin, and then eliminate

>everything that seemed to make her worse which was a lot: corn, soy,

>fruit and many vitamins. I also did DMG for a long time. And she got

>1 hour of speech 2X a week and 1 hour of OT once a week for 9 months

>or so.

> I don't know exactly what her father (we are divorcing) is

>thinking, but he has never admitted that she was autistic and is

>trying now to interfere with her regimen. I just got off the phone

>with " his " nutritionist who said needs to eat corn and other

>grains and fruit and vitamins, etc, etc. She said standard allergy

>tests produce more false positives than negatives and most people

>are really only allergic to one or two things!!!

>

>What I need, desperately, is any data I can use to support my

> position, which is:

> - some (many?) autistic kids react to more than just gluten and

>casein

> - quite a few autistic kids have reactions to vitamins

> - if a child does have reactions to vitamins/foods then eating that

> food does more harm than good.

>

>I am looking for your experiences, articles, and doctors or other

>professionals who might be able to speak to these issues. I have

>been to several " alternative " doctors that did not work out and

>am very very frustrated/tired of searching.

>

>Obviously we can't go on forever avoiding all these foods plus having

>trouble with vitamins (she is ok with C, Calcium, and Zinc). We must

>figure out what is the root cause of the problem and fix it. That is

>easier said than done!

>

>But I cannot stand by and watch her regress when he has her because

>he fed her Tums for calcium (with corn starch) or Flintstones. This

>is a very difficult thing to defend and any help would be very very

>much appreciated.

>

>Thanks,

> Booth, PhD

>booth@...

>

>PS. I have gone on the diet with her, at first 100%, and found that

>I react the same way she does. Her older sister has many food

>allergies that caused her screaming and personality changes, and

>rashes, and many other overt symptoms. So I have some reason to

>believe and I could be allergic to so many things. With

>everything we have eliminated (except gluten and casein) we have

>tried the food/vitamin several times after a period without and

>reproduced the original symptoms. We have also had skin tests that

>show we are allergic to a number of foods and tons of inhalants.

>I did not do this lightly. I still eat mostly what eats, but

>I do cheat on some things, to my detriment.

>