MA walk DONE- 2 poss RSS kids found!

[Guest guest]

Hi,

Our walk went well, cold, but well! The only issue, and I'll give

the brief story, was that on FRiday at 11:30 am the Superintendent of

the school called (we were walking at a track) and said she did not

approve us using the track (we had a story in the paper that day

directing people to find us at the high school)! I had been told 5

weeks earlier it was okay!!! She was mean and rude and when I asked

her, since she gave me less than 48 hrs notice, if she had any ideas

to help she said, " it is not my job to brainstorm for you " . This

left me speechless and she said, " well, if you are not going to talk

to me, I am going to hang up " . Well, the family and I called

2 senators and one representative and the school committe and at 5 p

m she called and was ever so sweet and told me, " I've decided to HELP

YOU OUT and let you use the track " . Thank god for elected officials

and school committees!

I think now my family raised about $2000 and I'm not sure how much

the 's made. Any, I wanted to tell everyone that our local

paper did an article and when I got there to set uup, an 81 yr old

great grandmother of twins (full term 5 lbish) was waiting for me.

The 2 year olds are very different looking in the photo, it was a

side view but one girl had low ears, a downturned mouth, they both

have reflux and don't eat much. I couldn't see that face but the

ggrandmother said she definitely has a small chin and triangular

face. She plans to send the article and hopefully the mom can get

info on SGA/RSS.

And then, one of my preschool carpool moms (okay, I'm 31 now!) came

and has a friend whose granddaughter is very very tiny and no one has

diagnosed her with anything (6 yrs but smaller than a 4 yr old).

We may have helped 2 people! That is the best part!

[Guest guest]

hey megan!!!

sorry you had a " scare " the day before your walk, talk about

rude!!!! i am glad everything turn out well though and i am glad to

hear you may have found 2 other rss kids. we had a similar thing

happen last year when we ran an article, we found an adult (19yrs

girl) that lived 5min up the road from us!!! and someone else

contacted me to say they were told their child was possibly rss!!!

its amazing what a news paper article can do!!!

jodie c.

>

> Hi,

>

> Our walk went well, cold, but well! The only issue, and I'll give

> the brief story, was that on FRiday at 11:30 am the Superintendent

of

> the school called (we were walking at a track) and said she did

not

> approve us using the track (we had a story in the paper that day

> directing people to find us at the high school)! I had been told

5

> weeks earlier it was okay!!! She was mean and rude and when I

asked

> her, since she gave me less than 48 hrs notice, if she had any

ideas

> to help she said, " it is not my job to brainstorm for you " . This

> left me speechless and she said, " well, if you are not going to

talk

> to me, I am going to hang up " . Well, the family and I

called

> 2 senators and one representative and the school committe and at 5

p

> m she called and was ever so sweet and told me, " I've decided to

HELP

> YOU OUT and let you use the track " . Thank god for elected

officials

> and school committees!

>

> I think now my family raised about $2000 and I'm not sure how much

> the 's made. Any, I wanted to tell everyone that our local

> paper did an article and when I got there to set uup, an 81 yr old

> great grandmother of twins (full term 5 lbish) was waiting for

me.

> The 2 year olds are very different looking in the photo, it was a

> side view but one girl had low ears, a downturned mouth, they both

> have reflux and don't eat much. I couldn't see that face but the

> ggrandmother said she definitely has a small chin and triangular

> face. She plans to send the article and hopefully the mom can get

> info on SGA/RSS.

>

> And then, one of my preschool carpool moms (okay, I'm 31 now!)

came

> and has a friend whose granddaughter is very very tiny and no one

has

> diagnosed her with anything (6 yrs but smaller than a 4 yr old).

>

> We may have helped 2 people! That is the best part!

>

>