Re: Dual-diagnoses

[Guest guest]

The endocrinologist has

> arranged

> for a brain CT scan and a meeting with a neurologist (9 month

> waiting

> list-ha!!!).

>

> The fear is a possible diagnosis of parkinsons disease but I

> personally feel

> the Graves may have a lot to do with these symptoms.

> ps. to make life more difficult I am a professional magician who is

> finding

> the job becoming tougher by the day.

Nine months - is there no way you can get in quicker? Do any of your

medical practitioners, e.g. your GP, have any sort of pull? Meanwhile, I

have a suggestion that you may find depressing but may help. You may want

to get in touch with a Parkinsons support group; try to find the most

highly functioning people you can find - they may have suggestions,

exercises, etc you can do to try to maintain your dexterity. Not that you

HAVE Parkinsons but their advice may still be valuable and adaptable to

whatever you do find your'e dealing with.

I spent my summer bringing my kids to different library programs and

performances, many of them featuring magicians and jugglers. I came away

from this with a great respect for the dedication these performers have

for their craft, just imagining the time needed for exercise and

practice. If there are any performers' guilds or organizations, you may

want to contact some of the oldest active performers you can find.

Hopefully you won't find this depressing but a way to maintain your

skills and enjoyment of the job.

Take care, Fay

P.S. I assume you're taking your Carbimazole at least twice a day, 10 mg.

per round. Many people have had success taking Tapazole (the chemical

equivalent in the US) 3X a day; the package insert in fact recommends it.

However, if you're making steady progress 2X a day that may be good

enough, especially since the pill-splitting can be complicated. I went

into remission taking it 2X a day but if my GD came back I would consider

trying it 3x a day.

________________________________________________________________

The best thing to hit the internet in years - Juno SpeedBand!

Surf the web up to FIVE TIMES FASTER!

Only $14.95/ month - visit www.juno.com to sign up today!

[Guest guest]

,

My very first thought is that there must be a way to get to find out

sooner, much sooner, whether your symptoms indicate Parkinson's

Disease. It is very important for those of us with Grave's that we

have as little to be concerned about as possible.

I did a little research to see if you might be able to find out some

things on your own and came across this site.

http://www.pallidotomy.com/diagnosis.html

It is somewhat helpful, but without knowing if you have Parkinson's,

it is too much information, I think.

I hope you are able to get the diagnosis you need and I hope you

have a way of getting through this terrible time.