Guest guest Posted October 8, 2003 Report Share Posted October 8, 2003 Carolyn, It would be beautiful if you could get Free T3, Free T4, TPO-antibodies, and TSI. I am guessing that they found no nodules with the RAIU scan, so you wouldn't need an ultrasound at this point. In addition to the medication, most people feel that lifestyle changes are key: reducing stress, keeping iodine intake low (no more than 150mcg/day), and eliminating triggers such as smoking, stimulants (caffeine, echinacea, ginseng), alcohol, artificial sweeteners (esp. aspartame), and flavorings (i.e., MSG). Whole, fresh foods and proper rest are important. At 02:42 PM 10/8/2003, you wrote: >Some of this you all have already heard, but I'll try to be quick. >I've been reading, and re-reading stuff to the point I think I know >just enough to be dangerous if I'm not careful. I'm sure I *think* I >know more than I do, but at least the stress of learning I have >Graves is less than it was and I feel like I may just be able to get >a handle on all this with my doctor. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2003 Report Share Posted October 8, 2003 Oh my... Carolyn B., I had not yet read your post when I wrote all of this very last post of mine PLEASE read it carefully. As if it was meant for YOU. Plus, you will see this TSH mess is very common. Hugs to you kiddo. You may be hypo already if my quick scan of your letter gave me the correct impression. NEVER - NEVER judge any dose of antithyroid drugs on a TSH !!!! You will be begging for mercy, and want to believe any possible false promise. -Pam L- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2003 Report Share Posted October 8, 2003 Carolyn, It would be beautiful if you could get Free T3, Free T4, TPO- antibodies, and TSI. I am guessing that they found no nodules with the RAIU scan, so you wouldn't need an ultrasound at this point. ~~~~~~~~~~~~~ Basically just says that I was " given 229 UCI of I-123 orally.....uptake was calculated at 82.2% with normal range being 10- 35%. Scan demonstrates prominent homogenous uptake with prominent activity in the thyroid isthmus consistent with the patient's marked hyperthyroidism and increased uptake. Findings together are most consistent with Grave's disease. Please correlate with endocrine findings? " I'm taking that to mean they didn't find any nodules or anything else to be concerned about and my doctor didn't say anything about having to take care of anything else. ~~~~~~~~~~~~~ In addition to the medication, most people feel that lifestyle changes are key: reducing stress, keeping iodine intake low (no more than 150mcg/day), and eliminating triggers such as smoking, stimulants (caffeine, echinacea, ginseng), alcohol, artificial sweeteners (esp. aspartame), and flavorings (i.e., MSG). Whole, fresh foods and proper rest are important. ~~~~~~~~~~~~ That's the part I'm having the most problem with. I smoke, but got way to stressed out when I tried to quit on top of all the rest of this, so I just cut down the number of cigarettes a day I have and have done alright. I had already cut way back on my caffeine before this even started and don't drink all that much, but I do have a glass of wine with dinner on occasion. I don't do aspartame and haven't for years if I can avoid it. I eat whole grain foods and fresh veggies and get my meat and eggs from friends 90% of the time and they refuse to use anything but natural feeds, etc. I have been having a hard time finding things that stand out as triggers, but I'll find em. I do know that for the last year or so I have been trying to be soooo good and take a good multi vitamin every day and was taking Centrum Silver (I'm 54 so it sounded like it was for me). When I got to the reading part about hidden iodine in vitamins I check and find that I've been taking 150mcg a day just in my vitamin. <sigh> Had to go out and do a lot of searching to find some that didn't have any. I've also been tested for and have confirmed osteoporosis (sp?) and I take Actonel 35mg once a week and a calcium and vitamin D supplement twice a day. My poor doctor had a lot to take care of when I went to see her, but she seems to be hanging in there just fine. I can only hope it stays that way. Carolyn B Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2003 Report Share Posted October 8, 2003 One thing you can count on is that I am reading each and every post I can find on this. I've been through the hypo side of things with my daughter who has hashimoto's (I know I'm not spelling that one right). Seeing what she went through is enough to scare any sane person into demanding treatment. I just wasn't sure what treatment I needed until I got here. Getting that call in the middle of the night telling you that your daughter is in a coma is NOT something I would want anybody else to go through and I certainly don't want to be the one they're calling my daughter about. Carolyn B ~~~~~~~~~~~~~~~~ Oh my... Carolyn B., I had not yet read your post when I wrote all of this very last post of mine PLEASE read it carefully. As if it was meant for YOU. Plus, you will see this TSH mess is very common. Hugs to you kiddo. You may be hypo already if my quick scan of your letter gave me the correct impression. NEVER - NEVER judge any dose of antithyroid drugs on a TSH !!!! You will be begging for mercy, and want to believe any possible false promise. -Pam L- Quote Link to comment Share on other sites More sharing options...
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