Re: Question for Mia's mom nne - UPD7 from nne

[Guest guest]

> > First of all I would like to thank you all for welcoming me to

the

> > group! I feel blessed that I came across this group. It is so

> nice

> > to read about people with the same issues that I am dealing

with.

> My

> > daughter is Mia and we live in Tampa, Florida.

> >

> > I posted 2 photos of her on the photo page. Mia hasn't been

> > diagnosed yet but as I said in an earlier email, she has many

> > characteristics.

> >

> > Mia was almost 18 pounds at her last check up. I finally

> purchased a

> > big carseat (her legs are finally starting to hang over in her

> infant

> > seat). I still have it facing backwards. I am anxious to turn

her

> > around when she makes it to 20 pounds. I don't know how long

that

> > will be. I feel like she will be 3 and still facing backwards!

I

> > don't want to turn it around when it is unsafe. Does anyone else

> > have this problem?

> >

> > Thanks for the referrals to MAGIC too! nne

S. Thanks for the email! Myself, Mia and my husband were

all just tested and the doctor called and said the molecular study

was normal. I am supposed to go back to him (the endo) when she

turns 2. I just had her weighed and measured today (19lbs and 29

inches which is not on the chart and her head charted at the 15th

percentile). She is 21 months.

This doctor doesn't seem to know much about RSS. Anyway, I guess I

just want to know if I should do anything before her next check up.

Thanks! nne