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RE: Incompetent Endos

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Hi Lori,

You wrote: " guess the

lights and bells just went off on that fact and I could not justify

to myself the idea that this would be " harmless " to me if it was,

indeed, " harmful " to those who would come in contact with me. "

I remember feeling so bewildered when I was diagnosed. What do you mean

I have a disease, especially one with such a horrible name! Graves

Disease just sounds so ominous. My GP got me started on ATDs and a beta

blocker, then they sent me to the endo.

My first reaction to RAI was no way! It was just not going to happen. He

sat at his desk and said that RAI was a safe, painless and trusted

method of treatment. When he then went on to say I couldn't be around

small children, and I had a little one at home, I'm thinking " yeah

right, this is safe " . I said I wasn't interested, he persisted that this

was the best course of action. Thanks to a little research I had already

done I asked about remission and ATDs. He said that a small number of

people actually achieve remission but the majority do not. He also said

that when on ATDs there was a chance of organ damage if left on them too

long. Really talked up how easy RAI would be.

Since I have minor eye involvement I am so glad I didn't do it. It

sounded barbaric and is indeed barbaric. Killing a healthy gland for no

good reason doesn't seem right to me.

in MA USA

Graves since March 1997

Currently on 2 PTU tablets per day

Was in remission from 2000-2003

Will not undergo RAI

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