Re: Should I Be Doing Something? - Malathi

[Guest guest]

Hi Malathi:

No is not on GHT. Dr. Silverman, however, feels that with

whatever the blood work comes back at she will probably be on it

anyway. When we first met with him in February he said come back in 6

months and we will track her and in the meantime get the bloodwork.

So she was supposed to go in October but my husband landscapes and is

done with work in December so we asked if we could come in December

and he had no problem with that.

Dr. Silverman told us that Dr. H is an expert in RSS and we might want

to consider seeing her.

Where in NJ do you live. I live in Boonton and work in town.

B

> > Hi Everyone:

> >

> > was diagnosed RSS late last year by a geneticist. She was

> seen

> > by her ped at her 4 year visit last December. She was seen by an

> endo

> > in February 2004 who said come back in 6 months and we will track

> her

> > in the mean time get her blood work done and if you like contact

> Dr.

> > Harbison. She is scheduled to see her endo in NJ in December and we

> > are waiting for a call from Dr. H's office as to when she will be

> > seeing new patients. In July 2004 she was seen by her ped and they

> did

> > a physical. was 29 pounds and just under 37 inches. She

> has

> > since had her blood work done. The pediatrician office called me

> and

> > said it was normal. When the blood work was done the endo was on

> > vacation and is now back but has not called me about it. OK enough

> > finally the question: I was wondering should I be taking to

> > her ped's office to have them track her weight and height or no I

> just

> > wait for my next endo appointment or the next time she is at the

> ped's

> > office? The week before last we were so lucky had a few

> days

> > of eating really well. In fact, I thought one day she was going to

> > get sick because for her she seemed to have been eating alot. Of

> > course, I just let her keep going. And of course this week she's

> > deciding to eat the very bare minimum. Every night at dinner this

> > week she's getting in a third of what she usually does and then

> tells

> > me her stomach hurts.

> >

> > But I just don't know if I just wait for the next appointment or

> > should I be taking her to the peds office for weight checks?

> >

> > Thanks everyone - you are all so great and helpful.

> >

> > B