[SPAM] Re: Group Meeting Results/DAN Info.

[Guest guest]

also, no more canned food if possible - buy things in glass or

fresh/frozen. No more soda from an aluminum can.

What are you using to get rid of the aluminum? I remember that

Magnesium Malate chelates aluminum - we used it years ago and the

levels really came down. My child was young and we sprinkled it on

food or put it in juice to dose it.

Also, use aluminum free baking powder if you bake a lot.

Stephanee

> > >

> > > Hey Liz,

> > >

> > > Dont worry. You are moving in the right direction and that

is all

> > that

> > > matters. I just went to get my daughters ears rechecked and

they

> > are fine -

> > > Thank goodness. So I also took Charlie and he had had what

looks

> > like a zit

> > > or boil on the outside of the beginning of his inner ear. He

can

> > now tell me

> > > boo boo in ear thank good ness, so I took him. Of course

they

> gave

> > me an

> > > antiboitic and drops. I am going to give him the drops first

to

> see

> > if that

> > > does anything then if I have to give him the antiboitic,

then I

> > will get a

> > > probiotic from my dan that can out live anitboitics. I will

also

> > call DAN!

> > > because perhaps it is from the detox stuff.

> > >

> > > I went back in the files and today ordered all of the tests

on

> > apraxia. Some

> > > I have done and need to be retested. But with the results of

the

> > metal

> > > testing coming soon and these testing we are on our way to

an

> even

> > more

> > > taylor made version of therapy.

> > >

> > > My MD is very interested in seeing Charlie's vitamin

protocol.

> > Impressed

> > > with what is happening with Charlie. Pretty openminded guy,

but

> like

> > > Janice's MD from her story. Mine was much like hers, he said

> > literally, " I

> > > plead ignorance on this...Its a shame studies are not being

> > conducted. " All

> > > in all a good doc who shows interest.

> > >

> > > Colleen

> > > Mother of Charlie 30 months

> > >

> > >

> > >

> > > [ ] Group Meeting Results/DAN

Info.

> > >

> > >

> > >

> > > Went to the group meeting in my town tonight. My town is 1/4

> square

> > > mile, Mayberry, everyone knows everyone elses beeswax so we

> signed

> > > confidentiality agreements but are allowed to do what I am

doing

> > now

> > > so long as we say, " Someone in my group. "

> > >

> > > The group is made up of parents of the following types of

kids

> but

> > > not all have just speech issues and one, the only one

exposed to

> > > fluoride in large doses, is diagnosed with dyspraxia.

> > >

> > > 1) PDD Nos, sensory issues pretty severe.

> > > 2) Nonverbal, PDD Nos, older sibling possible Aspergers.

Going to

> > > Neubrander, slightly leary about him.

> > > 3) Me, with one kid with shiners and, off GFCF diet she is

> whiney,

> > > has focus issues, food strikes and less unprovoked speech.

The

> > other

> > > kid is undiagnosed but had signs of apraxia and ASD. Low

tone,

> > > initial trouble producing speech, poor receptive, fine and

gross

> > > motor issues. Those things improved and some resolved on

GFCF

> diet

> > > and removal of bad water. Articulation issues pend.

> > >

> > > The mom of the sensory kid went GFCF in Sept and has seen

major

> > > changes. She went to a DAN (A PhD not MD), Dr. King who

operates

> in

> > > conjunction with an MD, Dr. Podell, in Springfield, NJ. The

mom

> is

> > > healing the kid on diet but wanted to know where the kids

gut was

> > at,

> > > if she was getting the right vitamins and minerals, using

the

> right

> > > probiotic, etc. She was not interested in chelation. She

also

> > wanted

> > > alternative remedies to things that have plagued her kid in

the

> > past,

> > > like ear stuff.

> > >

> > > She did poop and pee tests via Drs Data and vitamin

measurements

> > via

> > > Bioreference. She also did an IGE test. What she discovered

was

> > that

> > > milk and wheat are an issue and some other things as well,

mostly

> > she

> > > realized but a few, like soy and rice, must leave the diet.

The

> > > metals testing showed the worst of her stuff was actually,

at

> this

> > > point " high normal. " The two big things that need addressing

were

> > > aluminum and nickel. Neither are a surprise. We live in a

town

> > where

> > > aluminum frame windows are made and then there are the

vaccines.

> > > Several industries have operated in this town so nickel is

also

> not

> > a

> > > surprise.

> > >

> > > The interesting thing was the poop test and what it told her

> about

> > > what the kid was and was not getting from the current

probiotic

> and

> > > how to address it as well as a panel showing bacterial

> > > susceptibilities and natural agents that could be used to

address

> > > these.

> > >

> > > Despite giving calmag every day the kid is low in calcium.

> > >

> > > So for $500 for the first visit, $350 paid by insurance, and

> > another

> > > $1500 for poop, pee, minerals, vitamin and bacterial

> susceptibility

> > > tests and IGG food sensitivity testing and maybe some more

for a

> > > second visit this woman has a blueprint to treat her child.

A new

> > > probiotic was ordered, she is starting CLO, flax seed and

some

> > other

> > > stuff tailored to her child.

> > >

> > > So here I sit, one month shy of my son's EI age out date.

There

> are

> > > no preschools to take him because I waited. The town

preschool

> that

> > I

> > > waived because I thought they would not abide by diet, is

> actually

> > > asking the parents I was sitting with to present the GFCF

diet to

> > the

> > > school parents as it has helped NT siblings with behavioral

stuff

> > and

> > > parents. I can get him in there in 2 months. After what I

have

> seen

> > > in that meeting, where AP kids go GFCF and there problems

leave

> > > whereas my kid has aticulation stuff makes me wonder if what

is

> > left

> > > in my guy is fluoride and lead. I need the testing. I see

that

> now.

> > > None of these tests seem to address fluoride which concerns

me. I

> > > will test the baby water though. At least I'll have a gauge

of

> what

> > > went in. I need to know the minerals, the vitamins, the

flora

> info.

> > > and the remedies. This is the testing we should be able to

get

> when

> > > we go to a mainstream dr. with a child with delays. I am

scared.

> I

> > am

> > > mad. This should not have taken this long.

> > >

> > > Hubby is on board. We are behind the 8 ball now and it is

time to

> > > catch up. Janice was right. You have to do it all:

> > >

> > > The therapy

> > > The diet/vitamin and mineral regimen

> > > and

> > > the DAN testing

> > >

> > > You have to know what is in front of you and how to fix it.

My

> DAN

> > > knows the tests. Beyond that I don't know if he can give me

a

> > > blueprint like this woman got or if hers is even correct.

What I

> do

> > > know is I need the tests and I trust my own instincts to

find

> > someone

> > > knowledgable and trustworthy to help me find a map from

there.

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

,

I have been blessed with a beautifully built home and pantry! I am going

through it and ridding it of all left over aluminum. New pots and pans and

various items as well. I had the choice of using homeopathics to get rid of

aluminum or Xymogen Chelex ( I think Janice uses this). I have chosen to go

a more gentle route because Charlie is 2.5 years old. If it is not working,

then I will use Xymogen Chelex. He detoxed with yeast quite nicely on the

homeopathics when we started in Oct. So I am going to try it again.

Thanks,

Colleen

Mother of Charlie 30 months.

[ ] Group Meeting Results/DAN

Info.

> > >

> > >

> > >

> > > Went to the group meeting in my town tonight. My town is 1/4

> square

> > > mile, Mayberry, everyone knows everyone elses beeswax so we

> signed

> > > confidentiality agreements but are allowed to do what I am

doing

> > now

> > > so long as we say, " Someone in my group. "

> > >

> > > The group is made up of parents of the following types of

kids

> but

> > > not all have just speech issues and one, the only one

exposed to

> > > fluoride in large doses, is diagnosed with dyspraxia.

> > >

> > > 1) PDD Nos, sensory issues pretty severe.

> > > 2) Nonverbal, PDD Nos, older sibling possible Aspergers.

Going to

> > > Neubrander, slightly leary about him.

> > > 3) Me, with one kid with shiners and, off GFCF diet she is

> whiney,

> > > has focus issues, food strikes and less unprovoked speech.

The

> > other

> > > kid is undiagnosed but had signs of apraxia and ASD. Low

tone,

> > > initial trouble producing speech, poor receptive, fine and

gross

> > > motor issues. Those things improved and some resolved on

GFCF

> diet

> > > and removal of bad water. Articulation issues pend.

> > >

> > > The mom of the sensory kid went GFCF in Sept and has seen

major

> > > changes. She went to a DAN (A PhD not MD), Dr. King who

operates

> in

> > > conjunction with an MD, Dr. Podell, in Springfield, NJ. The

mom

> is

> > > healing the kid on diet but wanted to know where the kids

gut was

> > at,

> > > if she was getting the right vitamins and minerals, using

the

> right

> > > probiotic, etc. She was not interested in chelation. She

also

> > wanted

> > > alternative remedies to things that have plagued her kid in

the

> > past,

> > > like ear stuff.

> > >

> > > She did poop and pee tests via Drs Data and vitamin

measurements

> > via

> > > Bioreference. She also did an IGE test. What she discovered

was

> > that

> > > milk and wheat are an issue and some other things as well,

mostly

> > she

> > > realized but a few, like soy and rice, must leave the diet.

The

> > > metals testing showed the worst of her stuff was actually,

at

> this

> > > point " high normal. " The two big things that need addressing

were

> > > aluminum and nickel. Neither are a surprise. We live in a

town

> > where

> > > aluminum frame windows are made and then there are the

vaccines.

> > > Several industries have operated in this town so nickel is

also

> not

> > a

> > > surprise.

> > >

> > > The interesting thing was the poop test and what it told her

> about

> > > what the kid was and was not getting from the current

probiotic

> and

> > > how to address it as well as a panel showing bacterial

> > > susceptibilities and natural agents that could be used to

address

> > > these.

> > >

> > > Despite giving calmag every day the kid is low in calcium.

> > >

> > > So for $500 for the first visit, $350 paid by insurance, and

> > another

> > > $1500 for poop, pee, minerals, vitamin and bacterial

> susceptibility

> > > tests and IGG food sensitivity testing and maybe some more

for a

> > > second visit this woman has a blueprint to treat her child.

A new

> > > probiotic was ordered, she is starting CLO, flax seed and

some

> > other

> > > stuff tailored to her child.

> > >

> > > So here I sit, one month shy of my son's EI age out date.

There

> are

> > > no preschools to take him because I waited. The town

preschool

> that

> > I

> > > waived because I thought they would not abide by diet, is

> actually

> > > asking the parents I was sitting with to present the GFCF

diet to

> > the

> > > school parents as it has helped NT siblings with behavioral

stuff

> > and

> > > parents. I can get him in there in 2 months. After what I

have

> seen

> > > in that meeting, where AP kids go GFCF and there problems

leave

> > > whereas my kid has aticulation stuff makes me wonder if what

is

> > left

> > > in my guy is fluoride and lead. I need the testing. I see

that

> now.

> > > None of these tests seem to address fluoride which concerns

me. I

> > > will test the baby water though. At least I'll have a gauge

of

> what

> > > went in. I need to know the minerals, the vitamins, the

flora

> info.

> > > and the remedies. This is the testing we should be able to

get

> when

> > > we go to a mainstream dr. with a child with delays. I am

scared.

> I

> > am

> > > mad. This should not have taken this long.

> > >

> > > Hubby is on board. We are behind the 8 ball now and it is

time to

> > > catch up. Janice was right. You have to do it all:

> > >

> > > The therapy

> > > The diet/vitamin and mineral regimen

> > > and

> > > the DAN testing

> > >

> > > You have to know what is in front of you and how to fix it.

My

> DAN

> > > knows the tests. Beyond that I don't know if he can give me

a

> > > blueprint like this woman got or if hers is even correct.

What I

> do

> > > know is I need the tests and I trust my own instincts to

find

> > someone

> > > knowledgable and trustworthy to help me find a map from

there.

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >