Tourette Syndrome

[Guest guest]

I wonder how many other kids have TS? I'm talking about RSS kids,

but I'll talk to anyone who has a child with it.

We are pretty fortunate, I think, because Max has mainly facial tics

that are controlled with Clonidine. He has had vocal ones, mainly

humming, but they seem to have gone away for now. That seems to be

the way it is for us - the tics ebb and flow. Right now I have to

call the doctor to have Max's Clonidine increased because he has

developed new tics with the corner of his mouth twitching and some

teeth grinding and chattering.

We did try Risperdol at one point, but there was an increased risk

of developing a facial twitch that would not have gone away once the

med was stopped. I know there is a name for it, but I can't

remember what it was. Anyway, when Max started taking Cisapride, we

had to stop the Risperdol because it was contra-indicated. (I was

happy because I was worried about the side effects.)

I'd love to hear about your children and how you are dealing with

TS.

Jodi Z.