Guest guest Posted February 7, 2008 Report Share Posted February 7, 2008 Please understand something,I reply to these not to be disrespectful. I know my child is different but what he has is actually milder than apraxia but he does share symptom overlap. He is lighter in speech and tone symptoms, heavier than some of the kids in the gut area and is an allergic diet responder but likely not truly allergic to anything but maybe milk. He is likely a metal kid but there are tests (mainstream) indicating a bacterial and likely viral component that has since left we think due, to of all things, coconut oil. We have treated yeast and like seen some amazing things but I stopped doing the GSE because I really want a doc prescribing Nyastatin or whatever is truly warranted. I am not blaming fish oils and use them for my kid. I repeat...I do not use CLO for my sppech kid...it is my NT kid. My speech kid gets DHA. As for infant formulas...don't get me started. The reason that stuff is in there is to mask the bad stuff in there. I am a fish oil believer but if someone is having a problem they should investigate that...all I was saying. > > The proof is in the pudding and we know what works for most in this > group over the years and that includes those with autism. Cod liver > oil is healthy -but it's not what " works " for most. There were a > group of children like my son Tanner in this group and if you check > the archives -some are still here but most of their children-like > Tanner-blend today so the parents are on to " normal " things and not > always here. Again this is without all the things people in this > group do today. If it's not in The Late Talker it's because it's not > what was working for the majority just a few years ago. > > Liz your child isn't the not the norm and you have some heavy issues > you have to now explore on top of everything. Again this thread > started because a mom that I'm guessing that none of us knows > personally posted that she gave her child cod liver oil and assumes > that her daughter is gaining weight due to that -and at the same time > her daughter has made gains on the oil. Instead of pointing the mom > to the obvious or asking if there were any changes to the child's > schedule or life since fish oil is only linked to weight loss when > needed - there was a jump to a rare metabolic disorder even without a > question of lifestyle. > > I'm saying please let's not jump and blame fish oils (and can I add > milk too?) As I pointed out many times -EFAs which are essential - > work with the body. Helps those that need to gain gain and helps > those that need to lose lose weight. Fish oils -unless there are > allergies to the fish oil -are safe and benign and healthy for all. > EFAs are approved for infant formula and one capsule of ProEFA is > about the same dosage that is in infant formula! Parents don't get > blood analysis prior to giving their child formula or a tuna fish > sandwich! Many neuroMDs tell patients over the phone to start taking > them now when apraxia is suspected if there is a wait to see them. > For the overwhelming majority -there are no reasons to do testing > prior to eating a tuna fish sandwich -or taking a fish oil > supplement. Many of us including me do go through genetic testing > and blood work at some point -but it's not exactly a welcome to the > group for new members place to start. We should start with the > basics. Appropriate diagnosis is always the best start. > > This has come up many times prior and of course if one has the extra > disposable time and money to go for all kinds of testing then nobody > here will stop you. But in the general rule of thumb -what should > you do -here's one archive with an opinion from one PhD who is highly > respected for her work including > http://pediatrics.aappublications.org/cgi/content/abstract/115/5/1360 > > > > As I posted once -I was standing next to Suzanne Smolyar who went > > > the blood analysis route for her 5 year old daughter > 'after' > > > the ProEFA worked for her. Suzanne was talking to Dr. AJ > > > > about her daughter's blood analysis results. I said excuse me to > > > both and asked " Dr. , if it was your child who is a > child > > > like those of ours in this group with a speech impairment or > ADHD or > > > whatever -and not for research, would you do blood analysis > before > > > you supplemented with fish oil...or...would you just supplement > your > > > child with the fish oils? " She (again) made a face like " you're > > > kidding, right? " squinting her eyes a bit with a smile and > said " I'd > > > just give him the fish oils. " > > ===== > Quote Link to comment Share on other sites More sharing options...
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