Guest guest Posted October 25, 2003 Report Share Posted October 25, 2003 I will add my voice to Pam's here, Liang. I know I invited you to share your thoughts with the group rather than just with me after you posted privately, which perhaps you mistook for an open invitation for the onslaught of " information " you're presenting. It was not! This shouldn't go on, the subject has been explored. Please follow Pam's suggestion, and stop inundating us with more and more studies. This last batch you sent on, was over the top. We are all capable of finding them ourselves, if we want to. When YOU have YOUR OWN lab results, questions, etc. that you want to share with us, post again. Otherwise, perhaps you'll find a great deal to interest you in a perusal of our archives. Maybe you'll understand the HUMAN aspect of this a bit better if you do. You seem ready to ignore it, completely. Terry > > Reply-To: graves_support > Date: Sat, 25 Oct 2003 16:44:29 -0700 (Pacific Daylight Time) > To: <graves_support > > Subject: Re: Liang / / Jean > > Liang, > > To join a group and swamp the group with mail, after being repeatedly asked > to not do so, and seeing current members in distress, is very poor etiquette > Perhaps use you search engine to look up politeness on Internet groups. > > It is not correct to post entire articles. We have no way of knowing if they > have had a word here and there altered. This is the reason URL are posted, > not the articles themselves. > > A more useful method of doing this, is to not send each one separately. Take > the time to carefully group together subjects ULR and place them in one post > > > On many of yours, you have not posted the URL in the post containing the > article. I was under the impression this is an infringement of their > copyright ? > > If one member, such as Fay wishes to see the entire article, she knows she > can ask any of us to send it to her directly. > > The articles you are sending to us, are readily available on the Internet to > all that choose to look them up. You are not giving us anything the majority > of us have not read before. > Perhaps you were unaware of this ? This is the reason you are seeing unhappy > members. > > Our newest members have not seen these, true. But their questions will be > answered in ways they can understand at this moment. They will be given > appropriate URLs to verify their particular question. > Statistics on TBll in Denmark in 1987 are not very useful for new patients > that are very sick right now. > > ************************************************************************ > This is a support group for people with a serious illness. Some members live > alone, and something could happen that they need an immediate answer to. Yes > .. we may all tell them they need to go to the hospital right now. But the > fact is, sometimes they just do not know what to do. They DO write to us. > > With the sheer volume of mail we have received from you, and the replies, > many members that are busy simply can not keep up. They delete the entire > couple of days mail. > > Then the one person that needed help is not heard. > You need to understand how this works ! > ************************************************************************* > OR perhaps your goal is to have members unsubscribe from our list ? This is > a common tactic by TROLLS. As are the condescending, emotional choice of > many words you have placed here. This is known as BAIT. > If anyone does not know what a troll is, look it up. > > I hope this helps you better understand how Internet support groups work. > > As a long time member, and friend of many here, I only wish to help protect > our members from unneeded stress. > There is a fine line between sharing information and intentionally making > people sick. > > Please show us the same respect we have shown you. > > -Pam L- Mama hen > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2003 Report Share Posted October 25, 2003 I have been a long-term member of several groups and I did not experience Liang's posts as abusive, trolling or disrespectful of others. I experienced Liang as taking a position in opposition to some others on the list and working hard to maintain that position in the face of it. These are normal group dynamics. Perhaps people who have been on the list have more authority, more clout, deserve to be heard more than others...I for one benefitted from following the thread. I appreciate your suggestion that we provide URLs. I do not have access to paid journals which require subscription and appreciate Liang's offer to aid with research, but they can be sent to my private address. I think that many and varied opinions add to education and I expected that part of the 'support' offered here was education. Most places of learning invite contrasting opinions. Fay's characterization of Liang's position seemed on target to me and didn't contain any labeling or going to his intent which some of the rest of you have done. Personally, I find that rather rude. Why don't we just let people contribute as they desire and read the subject heading. If you don't want to follow the thread, don't. Delete those posts and read the others. I'm not appreciating the big 'problem' here. Sheila Re: Liang / / Jean > > Liang, > > To join a group and swamp the group with mail, after being repeatedly asked > to not do so, and seeing current members in distress, is very poor etiquette > Perhaps use you search engine to look up politeness on Internet groups. > > It is not correct to post entire articles. We have no way of knowing if they > have had a word here and there altered. This is the reason URL are posted, > not the articles themselves. > > A more useful method of doing this, is to not send each one separately. Take > the time to carefully group together subjects ULR and place them in one post > > > On many of yours, you have not posted the URL in the post containing the > article. I was under the impression this is an infringement of their > copyright ? > > If one member, such as Fay wishes to see the entire article, she knows she > can ask any of us to send it to her directly. > > The articles you are sending to us, are readily available on the Internet to > all that choose to look them up. You are not giving us anything the majority > of us have not read before. > Perhaps you were unaware of this ? This is the reason you are seeing unhappy > members. > > Our newest members have not seen these, true. But their questions will be > answered in ways they can understand at this moment. They will be given > appropriate URLs to verify their particular question. > Statistics on TBll in Denmark in 1987 are not very useful for new patients > that are very sick right now. > > ************************************************************************ > This is a support group for people with a serious illness. Some members live > alone, and something could happen that they need an immediate answer to. Yes > .. we may all tell them they need to go to the hospital right now. But the > fact is, sometimes they just do not know what to do. They DO write to us. > > With the sheer volume of mail we have received from you, and the replies, > many members that are busy simply can not keep up. They delete the entire > couple of days mail. > > Then the one person that needed help is not heard. > You need to understand how this works ! > ************************************************************************* > OR perhaps your goal is to have members unsubscribe from our list ? This is > a common tactic by TROLLS. As are the condescending, emotional choice of > many words you have placed here. This is known as BAIT. > If anyone does not know what a troll is, look it up. > > I hope this helps you better understand how Internet support groups work. > > As a long time member, and friend of many here, I only wish to help protect > our members from unneeded stress. > There is a fine line between sharing information and intentionally making > people sick. > > Please show us the same respect we have shown you. > > -Pam L- Mama hen > > Quote Link to comment Share on other sites More sharing options...
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