Guest guest Posted May 27, 2001 Report Share Posted May 27, 2001 Hi , Well, if you have to be here, at least you are with a great group of people! Re the cow's milk, as you'll read here and at www.gfcfdiet.com, milk is pretty sneaky stuff. Watch out for whey, butter and caseinate in a lot of products, even some that are labelled dairy-free. Also, with gluten - it hides under food starch, textured protein, soy sauce, flavorings, and in gf cereals that are powdered before packaging with wheat flour or produced on contaminated lines. Soy and corn are often culprits, too. They are more likely to be problem foods than potatoes, rice & quinoa. Sounds like you're on the right track with your dietary changes and making headway already. A great book to help with the transition is Unravelling the Mystery of Autism & PDD by Karyn Seroussi. > Hi. > > My son's name is Ethan. Last fall, enough people finally came > forward to tell us they believed he displayed autistic tendencies. > At this point, he was 2.5. I have videotapes of him from birth > forward. I will be reviewing them to see if I can see language and > behavioral deterioration around his vaccines. He was always a > studious baby - able to concentrate for long periods of time - and > that has not changed. > > Some history: > We first noticed that he was not affectionate around 18 months. And > we started him in speech therapy by 21 months because he was not > talking (said baby and peekabo). The speech therapist said he was > significantly delayed. We were able to get 5 months of free therapy > from this special program. I got 'mommy' by his second birthday, and > he seemed focus on the alphabet so we worked on that a lot. By the > time she left, we had 150 words. And he kept improving, but not at a > rate one would 'expect'. > > Anyway, by last fall we had family and friends telling us his > behavior was not 'right'. > > We took him off of cow's milk last September. We also began > cosleeping with him to improve bonding. > > We have seen VAST improvements since then - so much that we began to > doubt our original assessment that something was wrong with him. > > He began talking better within two weeks of going off of milk. > Within a couple of months, he began saying hi to strangers (ignored > their existence before). And he became more affectionate to his > father and me. > > However, he was able to spell five small words and write them before > age 3. And his drawing abilities are very advanced. So, we started > to think that maybe he was just one of those smart kids that were > somewhat unusual and the milk had nothing to do with it. > > But there are still those little signs. Something to let us know > that something is up. He still resists eye contact. His emotions > can get so out of control that he has complete breakdowns. He gets > obsessed about things being 'just right'. He can spend hours lining > up his trains. > > About 2 months ago we started to drastically change his diet in our > hopes to stop the once a day diarrhea poops that were 'normal' for > him. Since removing gluten, all we have managed to do is to make him > poop once every 3 days, 1/2 of the poop is solid and the rest is > diarrhea. We are at wits end, and are just about to start a diet > that takes away rice and quinoa and buckweat and potatoes (I have > celiac's disease and these are OK on my gluten-free diet). > > So, I started to do research (which is why we will start the diet I > mentioned above) and found all these links to autism and diarrhea. > My heart is crushed all over again. > > But I am resolved to do what is necessary to help him. I will be > reading the archives and getting help from them, as well as future > posts. But I thought you all might want to know who I am. > > Luster Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2001 Report Share Posted May 28, 2001 Oh , I'm so sorry to hear all that you are going through with your son. I trust and hope that the diet will significantly help your son. There is another website that helped me: www.autisminfo.com We are pretty new to this so I still need to surf a bunch more sites. I'll be praying for you and your family! Hugs, H, mom to 3.5 yrs, PDD; and 2 yrs, NT. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.