Re: Re: Debbie - Results on GHT

[Guest guest]

thank you so much for your info . It lets us know that there is hope.

Congrates on you daughter. Any side effects?

Re: Debbie - Results on GHT

>

>

> Before I tell you about my own daughter, I will tell you about what

> the research says. For children who are RSS, the primary variables

> are age at start of GH, dosage level, and mid-parental height.

>

> Hence, the " optimal " gain in final adult height will be a

> combination of multiple factors. What is your son's target height

> (add 5 " to your height, add to your husband's height, and divide by

> 2)? Make sure that if your son starts GH, that he goes regularly to

> the peds endo, every 3 months, and that his dosage level is adjusted

> upwards for every weight increase, and adjusted upwards in small

> increments whenever there is a flattening of growth velocity.

> Lastly, a child who starts GH at age 4 is far more likely to reach

> their target height than a child who starts GH at age 10.

>

> Oh, and one other thing that isn't listed in the literature but

> something I believe, and that is consistency of shots. If you

> decide to do the GHT, I believe that as a family you have to make

> the commitment to stick with it. This means that the family that

> skips 10% of their shots each month may see a reduction in final

> adult height. If you skip 1 out of every 5 nights, well, you can

> see where I am going.

>

> So. In our situation, my daughter's " target adult height " is 5'7.5 "

> tall, so quite tall. She was tracking to something like 4'9 " or

> something that I can't remember now. started off GHT at age

> 4yrs 9 months and at a relatively low dose, which has been adjusted

> regularly (and the 2 times we skipped a quarterly checkip we

> regretted it because the following 3 months were her lowest growth

> velocities!!!). In 4 full years of growth hormone treatment, let's

> see that is about 1,400 nights, we have missed only 5 nights of

> shots. Where we forgot, slept through the night, and then forgot

> again in the morning. It is a pain though, don't get me wrong.

> Camping trips for 5 days, where you are making sure it stays cold,

> traveling on airplanes, her own sleepovers at friends' homes where

> we have to drive over at night to give her her shot while she is at

> their house. It is a commitment.

>

> But I wouldn't trade anything. Not only has her height gone from

> below the 3rd percentile to above the 60th percentile, but her

> weight increased, her muscle tone increased, her blood pressure

> dropped, and her lipid levels decreased. She also has had her very

> low IGF levels rise to a more normal level (one year they were high

> normal but regular normal since then).

>

> Sorry this is so long, but I wanted to make sure I covered

> everything. Salem

>

>

>

> > > >

> > > > Hi Everyone

> > > >

> > > > I'm looking for everyone's advice. will be going to her

> > > second

> > > > endo visit in December at which time I believe we will be

> > > discussing

> > > > growth hormone with him. sometimes says things like she

> > > wants

> > > > to be big like so and so and I tell her that if she keeps

> eating

> > > good

> > > > she will. I'm now feeling that I need to change what I say

> because

> > > > pretty soon someway somehow I'm going to have to tell her that

> she

> > > > needs these shots to help her. Do I need to start telling her

> > > what is

> > > > going on about her height? I always tell her what each doctor

> is

> > > for

> > > > such as her cardiologist takes care of her heart and her ped

> makes

> > > > sure she gets better when she is sick but since we only had one

> > > endo

> > > > visit it doesn't come up much. I'm not certain or sure what I

> > > need to

> > > > say or do. I guess its a tough position for any parent

> because you

> > > > don't want to put so much emphasize on their size but yet how

> do

> > > you

> > > > prepare them for having to get these shots on a daily basis? I

> > > know

> > > > most of the kids start growth hormone at 2 but she is going to

> be

> > > 5!

> > > >

> > > > One other quick question. When was at the ped's office

> > > > yesterday for a sick appointment we put her on the scale. She

> had

> > > her

> > > > pants, shirt and socks on but no shoes and weighed 30 3/4

> pounds.

> > > How

> > > > much of a deduction do you think there would be for her

> clothing?

> > > >

> > > > Thank you

> > > >

> > > > B

> > > > 4 3/4 RSS and Kelli 2 Non RSS

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >