Re: I-131 RAI Treatment - Starz

September 18, 2003

Hi, The provisions the doctor gave me are as follows: Keep a

distance of an arm's length ( approx. 3 ft) from other people for any

more than 3 hours(he had 2 hrs. here before than when he wrote my

employment he put down 3 hrs., so I am going by 2 hrs.) of any day

for the first 3 days, and then any more than 4 hours of any day for

the next 7 days. The first three days are more strict. Flush the

toilet twice after use, do not share anything that enters your mouth,

rinse the bathroom sink after use, use seperate hand towels, discard

toothbrush after 10 days. There is no kissing because the radiation

secretes through your salivary glands. I was told I could have sex

during this time using a condom. You must sleep alone for the first

10 days. Thank you on your update about the ral. Lucille

-- In graves_support , " starz@h... " <starz@h...> wrote:

> Lucille, sorry I don't have any information to share with you as I

refused

> RAI. I can understand the concerns of the supervisor though. I'm

curious

> what the dr's meant that you could have 'normal' contact for 3

hours?

>

> I know I've heard many stories about how long we actually need to

not have

> direct contact with another person (no kissing, sex, etc, but I'm a

little

> confused on what they told you. I've heard 7 days from my dr, now

10 days

> from your dr? Can you elaborate on that?

>

> I have a friend who had RAI back in March of this year. She didn't

have

> the uptake scan done right before her RAI and her TED worsened. They

> actually should not have done the RAI without the currect uptake but

> somehow they managed to get it done. sigh. She said she felt great

for the

> first 2 months (that is not for everybody though) and then started

feeling

> badly and her TED got worse. By 4 months, she was feeling rather

badly and

> unable to work, but I've not heard from her yet on her last visit

with the

> DR. It's my understanding though that the hyper symptoms can

worsen once

> the RAI is done while the thyroid dies off, so keep tabs on how

you're

> feeling and the severity of it.

>

> Sandy~Houston

>

> Original Message:

> -----------------

> From: angelina5312002 lucille181@f...

> Date: Thu, 18 Sep 2003 13:36:39 -0000

> To: graves_support

> Subject: I-131 RAI Treatment

>

> <html><body>

>

> <tt>

> Hi, I want to thank everyone for their opinion and advice on the

RAI

> treatment. I went through with the treatment yesterday 09/17. You

> feel kind of uncomfortable when you must wear rubber gloves and you

> take a pill directly from a paper cup under a lead container. I

also

> feel like I have the plaque or something since my doctor says I can

> go back to work w/ restrictions (3 feet from any individual for 10

> days, with a couple hours a day with normal contact),though my

> supervisors said I can't return to work until the 10 days are

over.

> Which I guess I understand. Anyways, I guess I won't start seeing

> improvement for 2-6 months. Has anyone heard of being put back on

> the ptu after the rai treatment to feel better in a shorter time

> block. I am continuing to take things one day at a time. The

effect

> I feel today from the I-131 pill is a headache and sore throat. Of

> course I still have all the symptoms from graves disease and

> hyperthyroidism, though I hope they decrease soon. The only thing

> that terrifies me is that my eye problems progress. The only eye

> problems I had before treatment were puffiness and a slight wide

open

> stare. I guess time will tell if this worsens. Thanks for

> listening, Lucille

>

> </tt>

>

>

>

>

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Re: I-131 RAI Treatment - Starz

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