S - speaker for convention

[Guest guest]

I think I know who you are talking about. I met him years ago when

I was involved with an organization for pseudoobstruction. We

treated Max as if he had it when he was a baby because there was

nowhere else to go. And it was a great organization, but I think

they are more into Hirschbrung's now.

I would love to hear someone else's take on the dysmotility/gi

issues that our kids face. I know that we are pretty frustrated

because we have had Max go through the " triple procedure " and his

reflux is getting worse. Fundos do loosen in time, but in just a

year???? He is now taking Cisapride for the dysmotility, Protonix

as a PPI and Prevacid in the afternoon. Then I found out today that

he goes to the nurse several times a week for Tums. Oy!

Jodi Z.