Guest guest Posted July 26, 2004 Report Share Posted July 26, 2004 Debby, Are you sure you were there!?! I tried to find you several times and never saw you or any of your contingent! (I even took the picture at the pool party and didn't see you!) We got the same talk from Dr. H. She feels that Storm may be in Growth Hormone Resistance!!! She seemed concerned about his growth velocity being too low, but she never told me what it was and I didn't ask. She said resistance and I froze up! We have our next appointment in August so we will not be waiting long to chat with our endo either! I am so sorry I missed you! Hopefully we will find each other next year! Carmen, Mom to Storm, 8y 11m, almost 48 " and 51 pounds Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2004 Report Share Posted July 27, 2004 I'm sure I passed you several times at the pool party. And as far as bingo goes, we were way over by the wall toward the back,(on the RSS side of the room!) and we were BIG losers!!! We finally got a bingo about the third round when he only let the losers play! As far as Storm and Periactin, he hasn't been on it since October and his weight is fine! He is around the 11% for weight for age and the 3.5% for height for age. And almost 50% weight for height. But this year more of his weight is muscle rather than fat, so Dr. H was happy with his weight for height, just not his height! She feels his growth velocity is not enough. He is at about the same percentile on height as last year, so although he tracked well, he had no catch up growth. So, that is what we are faced with now! His GH dose is almost double what it was last year, and still no catch up growth! So sorry I missed seeing you! Carmen, mom to Storm, age 8y11m, 51 pounds and 121.6cm (I think!) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2004 Report Share Posted July 27, 2004 Hey Carmen One last thing, when I was typing that last email I got side tracked. Dr. H. wanted to know what dosage of GH Adam was on when we last went to the convention. I couldn't remember and I don't know if any one keeps those kind of stats. Every time I go to the endo the dose is raised and I can't recall what dose he got 3 summers ago. We were mixing more diluent in it then as well so it wasn't even like I could count back wards. She was very upset with me at that point, but who would have thought to have that information on hand? Oh well I always manage to screw up somewhere LOL. Take care Debby\ Re: convention-Debby > I'm sure I passed you several times at the pool party. And as far as > bingo goes, we were way over by the wall toward the back,(on the RSS > side of the room!) and we were BIG losers!!! We finally got a bingo > about the third round when he only let the losers play! > As far as Storm and Periactin, he hasn't been on it since October and > his weight is fine! He is around the 11% for weight for age and the > 3.5% for height for age. And almost 50% weight for height. But this > year more of his weight is muscle rather than fat, so Dr. H was happy > with his weight for height, just not his height! She feels his growth > velocity is not enough. He is at about the same percentile on height > as last year, so although he tracked well, he had no catch up growth. > So, that is what we are faced with now! His GH dose is almost double > what it was last year, and still no catch up growth! > So sorry I missed seeing you! > Carmen, mom to Storm, age 8y11m, 51 pounds and 121.6cm (I think!) > > > > > > Quote Link to comment Share on other sites More sharing options...
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