Guest guest Posted August 1, 2004 Report Share Posted August 1, 2004 Hi Jodi, I am sorry you and have to go through this. It is indeed a difficult decision to make when you have to choose one medical procedure over another for the same issue. As you may remember, Jillie has a GT and fundo (placed at different times). She aspirated extensively and has an element of chronic lung damage from the aspirations all caused by reflux. She is on oxygen almost 50% of the time. The tests she had done never picked up her reflux yet she had the worst clinical reflux I had ever witnessed (and I'm a NICU nurse). I was told she may die several times. There are 3 things I want to point out that may or may not help you come to a decision. A GJT does NOT stop reflux. It bypasses the stomach so there is minimal to no food in the stomach BUT the stomach secretes gastric juices in varying quantities - which can be aspirated. Jillie still refluxed with a GJT AND when all types of feedings were stopped and she could only have IV fluids. One can also aspirate from above - if swallowing is abnormal and some food or fluid trickles into the lungs instead of going into the stomach. The second thing is - more fundos work than fail. And the third thing is, you gotta prevent further lung damage at all costs. Please feel free to call me to talk at any time (# in handout of attendees at convention). Jillie has been through a lot of what is going through. I know how heart wrenching this all is. I'm thinking of you. Quote Link to comment Share on other sites More sharing options...
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