Guest guest Posted June 15, 2001 Report Share Posted June 15, 2001 Just adding my two cents, I very much agree with the other posters that I would not let the diagnosis, or rather, lack thereof from the neurologist stop you from pursuing your instincts. There are some doctors that are my favorite people,but they are not gods. I continue to be astounded about the number of medical professionals who practice in this field and know amazingly little about the spectrum. If you've done much reading at all, the sad truth is, you're likely to know as much as your " specialist " . As some one else stated, this is a spectrum disorder. There is a continuim of behaviors from severe to mild. There are lots and lots of symptoms and you're never gonna find two kids exactly alike. One professional I know described it as a grab bag. Throw all the symptoms in a bag and draw out a handful for each kid. One might have great eye contact, another, terrible eye contact. One might have severe sensitivity to sound, the next, no auditory problems at all. You get the picture. The ability to make eye contact, and respond to a command does not rule out a spectrum disorder. Many doctors went to school when they were only talking about severe, classic autism. The children who sit in the corner rocking and biting themselves, are essentially non-verbal, and show very little affection. The new wave of autistic children, or the " little A's " as Dr. Kartzinel likes to call them, are often very affectionate. It's also worth mentioning that many doctors are not used to seeing very young kids who have already been identified. Heck, our school system is dealing with this now. My daughter (5, Aspie) is one of the first girls this young with identified Asperger's that they've had. Also, early intervention is changing the picture for many of these kids and allowing them to make progress earlier (like my son, 4, autism). Finally, I had a psychologist tell me this once; " if a family comes in and tells me they suspect an autism spectrum disorder I'm inclined to believe them. Nobody knows the child better than the parents, and this isn't exactly something people WANT to believe, so if they've gotten to the point where they are out of denial enough to suggestthe possibility to me, I'd bet money that they are right. " So, I totally understand what you mean about not WANTING it to be true, but if it is true then you just want to get your child what he NEEDS! Good for you. I know it's tough, but good for you. Bless you! Sara Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.