Re: --height query

[Guest guest]

,

Hi. Interesting! No, we are not at all positive that he has RSS: The

geneticist said she saw many physical attributes of RSS in Jack

(except the fact he didn't have low birth weight or body asymmetry)

but wanted a ped. endo to give us a second opinion. It was a very

ambiguous ruling (actually, not a " ruling " at all!), so we're

anxiously awaiting her written diagnosis! My husband and I both left

her office thinking, " Huh?? Does that mean he has RSS or not? "

His height has been 5-10th percentile but has shot up to 20th in the

past year with weight gain (due to Periactin). I'm 5'5 " and my

husband is 5'11 " . Yes, it is very possible that FTT/GI issues are

the cause; our pediatrician believes that this is most likely the

case, but she wants us to be sure we have exhausted all fronts (she

is very supportive and open to exploring all avenues!). In fact, I

think she was surprised that the geneticist didn't rule out RSS

completely! I don't think we would have even explored RSS if a woman

at our GI's office hadn't asked us if our son had it (her child has

RSS, and she was struck by Jack's high-pitched voice and features

that were similar to her daughter's). I will be VERY interested to

get Dr. H's read on our son.

Once again, thanks for your insight!!!

marcy

> > As I wait for our geneticist's write-up to send out to Dr. H's

> > office (along with other past tests done on my son so they can

> > review his potential RSS status), I've been thinking a lot about

> > where my son has been on the growth charts: He's always been 3rd

> > percentile for weight (and is now " touching " the 5th percentile

> > line!), and he's currently 20th percentile for height. I'm

> wondering

> > if 20th percentile is considered high or within range when

looking

> > at RSS?

> >

> > I hope you all don't mind my neverending questions, but we've

been

> > concentrating solely on my son's weight charts for the past

three

> > years and looking to his height is something relatively new.

> Thanks

> > to everyone for your expert guidance!!

> >

> > marcy