Test questions - Betty

[Guest guest]

Hi Betty,

I just joined this group last week and was browsing through some of

the messages previously posted.

I was trying to get a feel for the place and am very plesantly

surprised to see all the support here in this group.

I also had RAI last summer.

You reminded me of the way I felt after I had done it.

Not knowing what to expect, going through fazes of panic attacks,

calling my endo. every second day...

I didn't realize that there were support groups out here pre-rai, but

I probably would have done it anyway.

Circumstances etc...

It sounds like you have a very good endocrinologist and lots of

support around you.

I don't know what I would have done without my own personal support

group. thanks " A "

I was lucky in a lot of ways. I have a great endocrinologist who I

really trust, an understanding family and terrific friends. None of

which knew what RAI (let alone what Grave's Disease) was before I had

it.

So many questions to be answered. As a result, I surfed and surfed

the internet and have made some really good friends because of this.

What I did when I first had RAI was make a file. It's called

my " Grave's file " .

Included in there, was a " symptoms " section. Every time I had any

kind of symptom, I would jot it down and then go through it with my

endo. whenever I had an appointment.

I found that this really helped because without my file, I wouldn't

remember all the things I wanted to ask him.

He even ended up filling in my " Lab results " for me!

I have a few sections in it, including " lab results " , " procedures and

treatments " , " medical phone numbers " , and a " calander " . I also have

my dog's photo in there. )

Also, if your endo. is not available on weekends, perhaps you could

ask him for the phone number for the endo. residents at a hospital.

I don't know if you have that there but most hospitals have endo.

residents on call, 24/7. They are usually very helpful.

I hope my 2 cents helped and I hope that you are doing well.

If you have any questions you want to ask me, I will do my best to

try and share my experiences with you.

My levels are stabilized with 0.125 mg of synthroid and I won't have

to see my endo again for another 3 months. To date, I have only had

to have one adjustment. From 0.123 mg to my current 0.125 mg.

Hope this helped... Jbabe

> In a message dated 5/25/2003 10:06:53 PM Eastern Daylight Time,

> cfyoung2@j... writes:

>

>

> >

> >

> > You know, we may just end up liking your endo a little ;-) It's

very good

> > that he wants to have the labwork to discuss with you at your

> > appointment. Try to get a nurse to give you the numbers over the

phone a

> > day or two before so you can share them with the group if you

have any

> > questions.

> >

> > have a great weekend, Fay

> >

>

> Oh Fay, you made my day. Anything good that he (ENDO) does makes me

feel

> better.

> I will let you all know when I go and when I get the results.

> Thanks so much and have a great day.

> It is dark, windy and rainy here. But, I have my 6 yr. old

Granddaughter here

> with me, so for me the weather doesn't matter. I just love her to

pieces. LOL

> Betty

>

>

>

> PS If your are expecting an answer from me, and you don't get it,

please

> email me back with a friendly reminder.

> " To err is human; to forgive, divine. "

>

>

>