Re: Aileen

[Guest guest]

Hi Aileen

Welcome to signing up to our great group.

I wanted to take a minute and explain the emails from this group.

When you signed up, you probably ticked off " individual emails " (your

choices were " individual " " digest " " no mail " ).

What individual means is that each and every time someone posts to this

group, the emails go to all of us. It's great to read what others are

doing/saying/experiencing and then someone can chime in with great advice.

If we had to individually write to everyone on this list, we'd never leave

our computers.

So Jodie's emails came to you probably because she just got lucky and was

writing a few that came at the time you were hooked up.

I'm sure you've had several more since then. Just so you know they are not

going astray in cyper space! Yahoo is set up to do that.

Welcome again.

Debby

Re: Re: Update on Olivia

>

> Jodie - my name is Aileen Hester and we have a 2 3/4 y/o boy with RSS.

> Today we have received multiple e-mails (approx 20) that appear to be

> responses from you to other people. Just want to let you know that your

> responses are going astray. On the otherhand I'm happy to have a

> connection with someone else re: children with RSS. We live in

> Northwestern CT & really don't know any other families with RSS - our

> household is very busy, considering Jake (with RSS) is number 4 out of 5.

> He currently has a G-tube and every couple of months or more frequently

> we are ready to pull our hair out over something - he retches a lot & at

> times my husband has trouble dealing with it.

> I registered online with yahoo awhile ago, but I haven't been

> back to it because I went back to work. If you know anyone who would be

> willing to talk/e-mail re: issues with G-tubes I would like to know -

> Thank you - Aileen Hester ajhester@...

>

> On Thu, 16 Sep 2004 16:51:07 -0000 " Jodie " writes:

> WAY TO GO OLIVIA!!!!!!!! hey leah , give her a high five and a hug

> from me!!! see those smoothies/milkshakes really help!!!! we go on

> the 20th to have christopher weighed again keep your fingers crossed

> for me!!! take care!!!

> jodie c.

>

>

>

> >

> >

> > Hello to all!

> >

> > We were up in Edmonton this morning for a Ped. check-up and....

> > Drum roll please.... Olivia has gained 1/2 a pound since the

> > convention!! She is officially now about 19lbs. There's been no

> > growth but that's OK since the goal right now is to get some meat

> on

> > her bones, not height velocity.

> > The Dr. really likes the smoothie concoction that we've made

> even

> > though it is quite high in sugar, with Olivia still being very

> > underweight we don't have to worry a lot about IR right now so we

> > can still give her the high cal smoothies.

> >

> > That's about it for now!

> > Take care everyone,

> > Leah, mom to 9 years and Olivia 4.75 years, 19lbs!!, 33 " ,

> > RSS, OI

>

>

>

>