Guest guest Posted May 21, 2003 Report Share Posted May 21, 2003 Hi Jbabe, You certainly have every right to wonder what this list is 'about ' being brand new today. Rest assured this happens no more frequently here, than on any other list. If you have been on lists of other types, you will have seen odd tiffs from time to time when some sort of misunderstanding happens. This the nature of e mail , since we can not see the persons face or body language, and it becomes hard to know the intent of the comment or whatever. This _one_ particular ' thing' has nothing to do with anyones choice of treatments or point of view. One member was made fun of because they happened to hit the wrong button on their computer, and a blank e mail was sent. It went from there, with the subject heading not changed for awhile. Sure not the mountain I want to die on. Our list owner is very tolerent of poor manners because she has a big heart and understands that many of us are very ill when we join, and need help and understanding. Thus members are not immediatly banned from the list, which is most often the case on other types of lists, in my experience. Here all points of view are welcomed and discussions DO get lively from time to time, but _this_ is not such an example. Graves' disease is unique in that we DO have choices in treatment. Each person munt choose what is right for them. The members that stay here do so because we firmly believe every patient deserves to know as much as possible about each treatment, and we know the doctors do not have time to explain everything during a 15 min. office visit. Hopefully we will have links and such to share and be able to help you judge for yourself if an 'opinion' is only that, when you are working on a paticular issue. Plus... for ME, the experiences of other Graves' patients are what saved my sanity when my body and mind when not acting ' normal'. {Tee hee... boy, am I leaving myself open on this one... :-) } Others experiences saved me going down the same path, or at least gave me the warning to turn back before I got too far and lost direction. :-) So now you are all filled in on my ' take' on the situation, and I hope things return to normal in time for you to find some points in the right direction for answers to your questions concerning Graves' and that you get to make some new friends here in time. -Pam L - Quote Link to comment Share on other sites More sharing options...
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