Guest guest Posted May 21, 2003 Report Share Posted May 21, 2003 Greetings all: For those who've recently joined this group, I want to assure you that good manners and a sense of strong community have indeed seen this group through four solid years with barely a blip. During four years, we've had only about three or four major spats. New people can rest assurred that this is a caring group of people. We have been quite focused on Graves disease and the specifics of negotiating that illness. I think remaining fixed on that topic is helpful. No more profanity in messages, please. If anyone receives problematic private messages from ANY member of this group, please contact me at petri017@... People writing threatening, demeaning or profane private messages to fellow group members will be immediately banned from the group. I can't imagine we'll have any more problems. Let's return to the task of transforming our own medical care -- and maybe even the way doctors see and treat us Best, B ps: send out a few good vibes/some energy/prayer to our list founder and 'mom,' Jean, who lost her father last week Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2003 Report Share Posted May 21, 2003 and i am no different. i struggle with understanding graves' in my life (diagnosed december 2002) which derailed relationships and a job/career track. i take full responsibility for my disease and i make choices each day for my health and for my fight to remission in the face of a medical community that doesn't give a sh*t. i am pissed off most the time at how others didn't have the choices i had, and stand up the way i did and let doctors' stupid choices run things for them. bad sentence structure, but i have TED and my eyes can't take any more of pressure for the day. it's sad the way some people took my style and ran with it to make me (whomever i am) look bad when all i was doing was my own thing; it got ugly when other's didn't take the time to know what i was about and posted inflammatory remarks, and man o man, i responded in kind. and here's another one coming through to doubt me. ok, i surrender! good manners Greetings all: For those who've recently joined this group, I want to assure you that good manners and a sense of strong community have indeed seen this group through four solid years with barely a blip. During four years, we've had only about three or four major spats. New people can rest assurred that this is a caring group of people. We have been quite focused on Graves disease and the specifics of negotiating that illness. I think remaining fixed on that topic is helpful. No more profanity in messages, please. If anyone receives problematic private messages from ANY member of this group, please contact me at petri017@... People writing threatening, demeaning or profane private messages to fellow group members will be immediately banned from the group. I can't imagine we'll have any more problems. Let's return to the task of transforming our own medical care -- and maybe even the way doctors see and treat us Best, B ps: send out a few good vibes/some energy/prayer to our list founder and 'mom,' Jean, who lost her father last week Quote Link to comment Share on other sites More sharing options...
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