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Hi,

I'm a new member. I just had RAI treatment 10 days ago, and have not

been feeling very well since. I was diagnosed almost accidentally at

the end of April. Was rushed in to have RAI, and wished I had been

more informed. I am going to the doctor in a few weeks and would

like some suggestions on questions to ask, and what I should be aware

of with my tests. I do not have the results of my first tests, and

hope they will give them to me.

I do not have any serious eye problems yet. The left eye lid looks a

little different, but since the test they have been more sensitive.??

Anyway..any suggestions???

M

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On Sun, 22 Jun 2003 00:24:21 -0000 " marlene532003 "

writes:

> Hi,

> I'm a new member. I just had RAI treatment 10 days ago, and have

> not

> been feeling very well since. I was diagnosed almost accidentally

> at

> the end of April. Was rushed in to have RAI, and wished I had been

> more informed.

Don't kick yourself too hard. Many people manage well after RAI and you

did come to the right place though it may be painful for you as you find

out all the information you should have had 2 months ago.

One of the keys to managing well after RAI is informations. Here's a

start to what you need to know and there are many people here who can

help you:

- follow up after RAI. Many drs. are very vague as to when to start

testing for hormone replacement and patients end up seriously hypo before

they come in. This is not good. Serious thyroid imbalance - too hypo or

too hyper - can increase the risk of TED.

- hypo and eye symptoms you should be aware of.

- your HRT options. It seems, from the anecdotal evidence of this list,

that synthroid or any of the forms of HRT that are T4 alone, may likely

not be good enough for you.

- supplements you should take, timing etc. Among other things you should

take are calcium and omega 3, but the timing with HRT is slightly

complicated.

No, I did not have RAI and should my GD recur RAI is an absolute last

resort. so besides encouragement I can't offer too much of my own

experience. Something very important you'll learn is how to manage a

medical condition - getting hold of all your records, how to find the

info you need, and more. I hope that you and yours stay healthy so you'll

never need this for more serious conditions, but if you do, this

experience of yours will equip you well to help others.

Take care, Fay

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