Hi all, some OT but important

June 9, 2003

Hi just piping in here as I was off line for 2 months with broken

puter. Now back online with super puter and new email. First I am doing

fine, on 50 mgs PTU but not quite in remission yet. ph is 21 months

now and I still can't break from the breast at night. Once school is

done in two weeks I need to start to wean off at night. That brings us

to the PTU and breast feeding issue. As you all know I breast fed my

last three babies while on PTU. I knew the risks but I weighed it with

the benefits, ie antibodies, less colic, less allergies and I chose the

benefits. But this is a personal decision. My babie's levels were fine

and show no ill effects at this time. Maybe I was a little selfish but

I couldn't imagine not breast feeding. I think the stress of not doing

so with me might have even worsened my graves in some respects. Breast

feeding helped to calm me and the baby, keeping me slightly less stress

free (if this is possible with 5 kids LOL).

Now for the OT: I have been very busy with my kids of course, but more

importantly I have been busy with a blood donor schedule for my

neighbor's little boy. He was recently diagnosed with a rare form of

childhood cancer (200 new cases a yr) called rhabdomyosarcoma. What is

even more sobering is a little girl in my daughter's school was

diagnosed in Jan, Both times I was the first to find out after the

parents. So I got the full force of their shock. Both children were

given a 30% chance in NJ but are being treated by a top doc at Sloan

Kettering in NY. They are given a 70% chance with this experimental But

heavy duty protocol. Please pray for Isabella and and their

parents as they go through this tragic ordeal, And while you are at it

give a little prayer for me so that I may have the knowledge and the

right words to offer them (remember I am a ped RN). I have been so

touched by these families and their courage. It puts life in

perspective.

Anyway sorry to ramble.. Hope I can respond a little more often, we will

see. Iannuzzi

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