Re: Baby Pic of Olivia --> Jodi R.

[Guest guest]

Olivia never ate much at one sitting but she's always been an

eater. The biggest help was finally discovering that she was

allergic to dairy and soy. When she was discharged from the hosp.

after a 2 month NICU stay she was 3lb 6oz and taking 5-10ml feeds

every 2-3 hours. At 6 months old she weighed 5lbs and we discovered

the allergies so we switched her formula to a hypo allergenic one

and she gained a whopping 7 lbs in 6 months!! That made her 12

pounds on her 1st b-day.

Through this great list serve and the convention this year I

understand now that the kids seem to grow on calories until around 2

years old and then need GHT to grow since Olivia hasn't done much

growing since she was 2. At 2 she weighed 16lbs, now at almost 5

she's 18lbs... We just need about 8 more pounds on her before we

start the fight with our health care system to get her on GHT. (8

more pounds will put her in the 3rd %ile for height to weight chart)

I would love to see baby pics of !! He is so cute! It was

so great to meet you at the convention, I can't believe that it's

been and gone already and we have to wait another year to see

everyone again!

Leah.

> >

> > I just posted a pic of Olivia and when they were

babies.

> I

> > saved the bunny from 's pics so that I could use it again

> when

> > we had another baby.

> > The picture on the left is Olivia (pink dress) at 8 months old

> and

> > is on the right (green dress) at 2 months old.

> > I've never looked back at her baby pics to look for RSS

> > characteristics (she was diagnosed at 3yrs) but I can see it in

her

> > mouth and big head a bit. Thankfully she had a bit of meat on

her

> > bones at that time so you can't really see it in the rest of her

> > face.

> >

> > Just thought it was interesting!

> > Leah, mom to 9yrs and Olivia 4.75yrs, 18lbs, 33 " , RSS,

OI,

> > lots of meds

[Guest guest]

Wow, how great taht you guys found her allergy and where able to

switch her. That is amazing that she gained all that weight in such

a short period of time. I bet that just made you feel so much better

when you figured that out!

We are trying to monitor right now too. Dr. H wants to see

what he does over the next six months to see if gh is an option at

that point. She wants to see what his growth does. She has cut his

feeds back, and so now we just wait to see the effects and if he

gains any more height. I hope Olivia can gain her 8 pounds kind of

quickly! )

Jodi R.

> > >

> > > I just posted a pic of Olivia and when they were

> babies.

> > I

> > > saved the bunny from 's pics so that I could use it again

> > when

> > > we had another baby.

> > > The picture on the left is Olivia (pink dress) at 8 months

old

> > and

> > > is on the right (green dress) at 2 months old.

> > > I've never looked back at her baby pics to look for RSS

> > > characteristics (she was diagnosed at 3yrs) but I can see it in

> her

> > > mouth and big head a bit. Thankfully she had a bit of meat on

> her

> > > bones at that time so you can't really see it in the rest of

her

> > > face.

> > >

> > > Just thought it was interesting!

> > > Leah, mom to 9yrs and Olivia 4.75yrs, 18lbs, 33 " , RSS,

> OI,

> > > lots of meds