Guest guest Posted October 12, 2003 Report Share Posted October 12, 2003 Hi Sheila, I'd love to take you up on that offer of info about Immunocal. Is it a drink or a pill of some kind? Bit of a challenge to get enough protein into my daughter's diet. She really doesn't like the taste of the whey powder drink we had gotten her. Thanks! > Thank-you . This was very helpful. I have reviewed ¡Çs pictures. > The upcoming MRI should prove helpful in determining diagnosis and I have a > referral to an ophthalmologist who specializes in TED. I take all of the > supplements suggested by you, as well as acetyl-L-cysteine. > Acetyl-L-cysteine is a precursor to glutathione, but in high doses it is > toxic to the brain. Increasing one¡Çs glutathione levels is very helpful to > autoimmune disease. One way to do that is to take an undenatured whey > protein. I am currently on Immunocal. Here in Canada it is the most > cost-effective option as I get it wholesale. It is not the same as ordinary > whey protein. If anyone is interested, I have access to research on the > supplement and can give you resources. > > Appreciating you, > Sheila > TED: List of Treatment Options > > Hi Shelly, > > I can mention some of the more basic treatment options for TED. These are > things you'd want to do before considering surgery or laser treatment. > > Lots of drops--artificial tears, preservative free are better. A thicker > drop or gel for night. Someone recently mentioned boric acid washes as being > soothing. Some people tape their eyes shut at night to reduce irritation. I > wear sunglasses whenever I'm out of the house. > > Flaxseed oil (EFAs) to reduce inflammation, 1 tablespoon per 100 lbs weight > a day, with a bit of protein like yogurt. Other useful supplements are B > vitamins and antioxidants, like alpha lipoic acid. I'm also taking a > combination of bilberry and lutein. > > Keeping your thyroid levels from getting too high or low. Along these lines, > if you are taking an antithyroid drug, this can help reduce antobodies and > hence help your eyes. > > Avoid cigarette smoking and smoke (I find even residue on a smoker's skin > can make my eyes itch uncontrollably--my boyfriend is trying to quit and > hates it that I can " detect it " when he cheats). > > Get a baseline exam with someone who's experienced with TED, to rule out > pressure on the nerve. > > Other steps to heal your immune system, such as avoiding sugar, cafeine > (it's not easy!), and saturated animal fats; practicing a stress reducing > method like yoga or meditation. > > My doctor offered me a course of prednisone, a steroid, but as I understand > it the symptoms will rebound afterwards. Other options go from here. My eye > doctor is ready to do surgery on my " moderate " TED but I've been advised by > people here to wait till the antibody activity subsides, both because things > can get worse after surgery if you still have antibodies, and also because > once you go into remission, your eyes can improve. (/Hiroshima recently > posted pix showing great improvement in her eyes over the past year.) > > Best wishes, > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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