Re: just FYI as suggested by Terry - re Fay

[Guest guest]

Thanks for your understanding, I think you made some very good

points about TSI and dropping dose, which my aunt and uncle

suggested too. Too quick dropping the dose might cause a rebound as

they told me.

> I wonder when and where your mother had her RAI. Doctors used to

> stabilize all patients on ATDs or iodine drops before

administering RAI,

> and I'm under the impression that they monitored their patiens more

> carefully too.

My mother had her RAI in 60's in Shanghai, a hospital supplied by

former Soviet Union. They keep her in hospital for a week. She was

on ASD for quite long time, she stopped her ASD one month before RAI

and was one low iodine diet for 2 weeks before the uptake and RAI,

which allowed her to maximize the uptake and allow them to treat her

with smallest amount of radiactivity as needed. This is very

practical. So I did the similar thing.

> If you do not have an eye problem, you

> > will have much less chance to develop it after RAI,this theory

is

> > the same as I learned form medical literature, which is also one

of my reason to choose RAI. Could you quote the literature? These

are not the statistics usually quoted by this group, and I wonder if

Elaine references your sources in her new book.

I will get the name of these studies and post them here.

>

> From my mom's case , she never had any

> > other complications after getting RAI in her 20s and she never

had

> > much eye problems to start with.

>

> Does she still have eye problems?

No. she is perfectly fine in any other aspect except the long term

follow ups and replacement hormone.

> Not all. BTW, about thyroid cancer - not much choice about having

to have

> RAI there, and any anti-RAI sentiment is aimed at RAI for Graves,

not thyroid cancer.

In stage I Papillary Cancer and stage I Follicular Cancer (both are

thyroid cancers), RAI may not be necessary as suggested by quite a

lot of study and mayo clinic. Long term followups show it does not

increase survival rate.

>ly I can't see anyone recommending RAI to a

> primary caretaker with young children. Even if the caretaker could

keep his/her distance for a few weeks, how healthy do you think it

is for little kids to be able to see their parents but have to keep

their distance? I suppose you can say well, what if it were chicken

pox, etc.,> but why put oneself in this situation to begin with if

there are other,

> probably better, options?

Yeah, you are right. It is hard to keep distance from child. I used

to share 50% child care with my wife before RAI, maybe I can be

called primary caretaker, now she took care them 98%, I only do my

2% by yelling as my sons: have you cleaned up your toys?. My older

one told his teacher that I had some kind germs:) So I had to write

a note to explain to the teacher. My little is trying to get close

to me, while I had to run, he thinks it is funny like hiding and

seeking. It just takes a few weeks for that to be over.

The radiation received for Graves is only 5-15 mci, which is a

relatively small amount. The half life of I-131 is 8 days. the

biological half life will be even shorter. I got 10.8mci, my

absorbtion is 50%, normal is like 20-30%, so, basically, after the

first day, there is only 4-5mci left in my body, mostly of them is

in thyroid gland, every 8 days, it gets down to half. so after 4-5

weeks, there is not much left to be harmful. Just remember not to

get close to them for an extended period of time, especially, do not

hold them for too long. The thyroid gland gets most of the I-131,

which is the center of the radiation.

Just hope people with Graves will not get too afraid of RAI even

they do need them, such as allergic to ATD, bad liver function,

heart problems. After all, RAI is not that dangerous, if ATD fails,

it is an option that people should consider over surgery. It has

been shown in studies after studies. Over liver failure or nerve

damage around the neck, I would choose RAI.

Just like genetic engineered food, the europeans are just feaked

out. The harmful effect from genetic modified food(GM food) is

mostly from the ecological impact instead of to the people who eat

GM food unless they have allergy to the gene product in the GM food.

Wish everyone a healthy life!

Liang

[Guest guest]

Thanks for your understanding, I think you made some very good

points about TSI and dropping dose, which my aunt and uncle

suggested too. Too quick dropping the dose might cause a rebound as

they told me.

> I wonder when and where your mother had her RAI. Doctors used to

> stabilize all patients on ATDs or iodine drops before

administering RAI,

> and I'm under the impression that they monitored their patiens more

> carefully too.

My mother had her RAI in 60's in Shanghai, a hospital supplied by

former Soviet Union. They keep her in hospital for a week. She was

on ASD for quite long time, she stopped her ASD one month before RAI

and was one low iodine diet for 2 weeks before the uptake and RAI,

which allowed her to maximize the uptake and allow them to treat her

with smallest amount of radiactivity as needed. This is very

practical. So I did the similar thing.

> If you do not have an eye problem, you

> > will have much less chance to develop it after RAI,this theory

is

> > the same as I learned form medical literature, which is also one

of my reason to choose RAI. Could you quote the literature? These

are not the statistics usually quoted by this group, and I wonder if

Elaine references your sources in her new book.

I will get the name of these studies and post them here.

>

> From my mom's case , she never had any

> > other complications after getting RAI in her 20s and she never

had

> > much eye problems to start with.

>

> Does she still have eye problems?

No. she is perfectly fine in any other aspect except the long term

follow ups and replacement hormone.

> Not all. BTW, about thyroid cancer - not much choice about having

to have

> RAI there, and any anti-RAI sentiment is aimed at RAI for Graves,

not thyroid cancer.

In stage I Papillary Cancer and stage I Follicular Cancer (both are

thyroid cancers), RAI may not be necessary as suggested by quite a

lot of study and mayo clinic. Long term followups show it does not

increase survival rate.

>ly I can't see anyone recommending RAI to a

> primary caretaker with young children. Even if the caretaker could

keep his/her distance for a few weeks, how healthy do you think it

is for little kids to be able to see their parents but have to keep

their distance? I suppose you can say well, what if it were chicken

pox, etc.,> but why put oneself in this situation to begin with if

there are other,

> probably better, options?

Yeah, you are right. It is hard to keep distance from child. I used

to share 50% child care with my wife before RAI, maybe I can be

called primary caretaker, now she took care them 98%, I only do my

2% by yelling as my sons: have you cleaned up your toys?. My older

one told his teacher that I had some kind germs:) So I had to write

a note to explain to the teacher. My little is trying to get close

to me, while I had to run, he thinks it is funny like hiding and

seeking. It just takes a few weeks for that to be over.

The radiation received for Graves is only 5-15 mci, which is a

relatively small amount. The half life of I-131 is 8 days. the

biological half life will be even shorter. I got 10.8mci, my

absorbtion is 50%, normal is like 20-30%, so, basically, after the

first day, there is only 4-5mci left in my body, mostly of them is

in thyroid gland, every 8 days, it gets down to half. so after 4-5

weeks, there is not much left to be harmful. Just remember not to

get close to them for an extended period of time, especially, do not

hold them for too long. The thyroid gland gets most of the I-131,

which is the center of the radiation.

Just hope people with Graves will not get too afraid of RAI even

they do need them, such as allergic to ATD, bad liver function,

heart problems. After all, RAI is not that dangerous, if ATD fails,

it is an option that people should consider over surgery. It has

been shown in studies after studies. Over liver failure or nerve

damage around the neck, I would choose RAI.

Just like genetic engineered food, the europeans are just feaked

out. The harmful effect from genetic modified food(GM food) is

mostly from the ecological impact instead of to the people who eat

GM food unless they have allergy to the gene product in the GM food.

Wish everyone a healthy life!

Liang