Re: Kidney issues, ketone spilling, etc.

[Guest guest]

Make sure that the doctors know that, help someone refresh my

memory -- I think it is the C02 levels or something???? All I know

is that my poor daughter and MANY more of our RSS children have

unncessarily gone through nephrology specialists and gone through

tons of tests, only to find out that their abnormal blood tests were

a result of hypoglycemia and/or ketone spilling.... the CO2 levels

were off because of spilling ketones, and the not eating can make it

worse, and also infections (my daughter also had a urinary infection

at her time, she was 18 months old). Make sure that the doctor

knows up front about ketone spilling for these kids. MAGIC

documents #H-28 and H-43 written by Dr. Harbison help explain it.

> > > > > HI

> > > > > My daughter is a possible RSS and she has had 2

urinalysis's

> and

> > > is

> > > > > going for number 3 tomorrow. They are concerned of her

> ability

> > > to

> > > > > concentrate urine and are also concerned of the amount of

> blood

> > > > > cells, I think white, that are present. Has anyone else

gone

> > > through

> > > > > this or have any information that would help? Her doc said

> he's

> > > not

> > > > > sure if something is wrong but they think there is a

> possibility

> > > of a

> > > > > kidney problem. I feel pretty lost and worried.

> > > > >

> > > > > Thanks

> > > > >

> > > > > Mom of 3

> > > > > 1 possible RSS