Guest guest Posted July 27, 2003 Report Share Posted July 27, 2003 Hi all, I need some help educating my endo, who's been great up till now but wants me to wean off PTU, after a year (next fall), without any antibody tests. (She diagnosed my Graves' last fall based on a general antibody test for autoimmune thyroid disease, no TSI.) I'm planning to call before my fall visit and ask for a TSI test. If she balks I'll go looking for some research to back up my request, but maybe she'll just agree (I know my GP is also an option but would rather keep using the endo if possible). I have an HMO, which paid $950 for an unnecessary Hep. B test last summer, so they should cover TSI. I have moderate TED, and this is where I get confused. Could my Graves' ever be in remission while I still have eye symptoms? In this case would remission mean a lack of stimulating antibodies and thus no more need for PTU? That would still leave me with blocking TSH receptor antibodies, which would continue to affect my eyes and have the potential to make me hypo, but at that point continuing to treat with PTU and Synthroid would be more controversial, I guess. Should I get the stimulating and blocking antibody types measured separately? Since June I've been happily euthyroid on 100 mg PTU and 50 mcg Synthroid and would love to stay this way for a while! Thanks for the help, B. Quote Link to comment Share on other sites More sharing options...
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