Re: We're Back From The Convention Too!!!

[Guest guest]

Leah

It was great to meet you, your husband and Olivia! Did you fly out late on

Sunday? We were gone....by that I mean in the car and driving out at 7:10

a.m. (Chicago time as my kids would say). We got home just shortly after 5

p.m. What a long day. I just couldn't sleep on the Sat. night thinking about

the drive.

Let me know how things go with Olivia. I had Colette to my ped. endo today

for her check up (how stupid of me to book it the day after we came back!)

but I was telling her about Dr. H. and the fact that our Canadian amounts of

GHT are way less and my endo said for me to push and fight it down at the

hospital. That was a good sign, she didn't say " oh well it's against the

rules up here " she said I had to get it! So hopefully we will.

Again it was great to meet you.........one of the many of us with our

coloured cash!

Debby

We're Back From The Convention Too!!!

>

> Well we made it back home today at around 3:30 PM. We had such

> an amazing time at the convention that it'll take me days to digest

> all of it! It was so great to meet every one in person and have a

> REAL chat!! Pat, Jodie C.,, Cara, Jodi R, Sharon, Kim and

> everyone else! (there's no way that I can name everyone either!!)

> It was like being a " normal " family for a weekend, sure everyone

> looks at the kids but everyone knows what they have, no one

> stared... wondering " what's up with that girl " ..... you all know

> what I mean I'm sure!!

>

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>

> Our meeting with Dr. H went quite well, Olivia is definatly RSS

> which surprised me at first since our appt. was right when we got

> there, but after a while I really started to see it in her. Dr. H

> tweaked Olivia's meds and wants her to start GHT but first we need

> to get a whole bunch of weight on her before we can start that since

> she's really underweight for her height (that wasn't news to us).

> With the new meds she should be able to keep her food down better

> and that should put some pounds on!! We'll also run a couple of

> tests to see excatly how things are going.

>

> Debby's right about the money!!!!!! I'm very glad to have our

> colored money back, much easier! (how lazy am I??!!)

>

> Chicago is GREAT!! We had Sunday free so Trent and I took the

> kids Downtown on the Train!! How exciting was that!! We went up

> the Hancock building and down to the Navy Pier, walked all over

> Downtown, it was a blast! We're already excited for next years

> convention (we'll get a room that's not 2 miles away from the

> activities though!! Pat and Cara know what I mean!!)

>

> Take care everyone!!

>

> Leah, mom to 9 yrs and Olivia 4.75 yrs, RSS, OI, 18.2 lbs

> (lost a pound , 33 " , Lactulose, senokot (changing to Mirilax),

> Zantac (changing to a PPI), Tums, Cyproheptadine (periactin)again

> soon!

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