Register Now for May 7 & 24 Conference Calls on Beyond the University IRB - How & Why to Establish Community Level Protections

[Guest guest]

**Please forward widely - excuse any cross-postings!**

Dear colleagues,

Community-Campus Partnerships for Health (CCPH) and the Tuskegee University

National Center for Bioethics in Research and Health Care (the Bioethics

Center) invite you to participate in their jointly sponsored Educational

Conference Call Series on Institutional Review Boards (IRBs) and Ethical Issues

in Research.

**Space is available for the May 7th and May 24th IRB Calls, which explore the

world beyond the university IRB to gain an understanding of the supplementary

and alternative models for human protections. These models include community

advisory boards, community research advisory boards, and independent community

IRBs. Space is also available for the final call in the series on June 25 on

changing IRB policy and practice to better protect communities. Scroll down to

register for these free calls today!**

The series is intended to increase understanding of the role of IRBs and other

mechanisms for assuring that human subjects research is ethical and appropriate

- both at individual and community levels. The aim of the series is to provide

a comprehensive understanding of the options and tools necessary for

communities to determine the approach that is best for them. The series will

also inform the development of future initiatives undertaken by CCPH and the

Bioethics Center on IRBs and ethical issues in community-campus partnerships.

The conference calls are free, but the number of incoming lines is limited. To

maximize participation, we encourage gathering colleagues to dial-in together

using one phone line with speaker phone capabilities. Those completing the

online form will be notified as to whether their registration is confirmed, and

sent instructions for dialing into the call. Handouts and digital audiofiles

will be posted on the CCPH website at www.ccph.info shortly after each call

takes place. To learn more about the series, visit

http://depts.washington.edu/ccph/irbcalls.html

If you have comments and suggestions on the call series, including ideas for

additional call topics, please contact the call series organizers CCPH Program

Director e Wong (e@...) or CCPH Graduate Research

Assistant Grignon (jgrignon@...).

Be sure to check out resources and presentations from recent calls!

Call #1 entitled " What is an Institutional Review Board (IRB) and What Purpose

Does it Serve? " took place on February 14, 2007. An audiofile of the call and

other resources are available at:

http://depts.washington.edu/ccph/pastpresentations.html

Call #2 entitled " Highlighting the Importance of the Non-Affiliated (Community)

IRB Member " took place on March 14, 2007. An audiofile of the call and other

resources are available at:

http://depts.washington.edu/ccph/pastpresentations.html

Call #3 entitled " Community-Based Participatory Research (CBPR) Proposals and

the Human Subjects Review Process: Methods for Working with University IRBs "

took place on April 18, 2007. An audiofile of the call and other resources will

be posted shortly at: http://depts.washington.edu/ccph/pastpresentations.html

Sign up for future calls in the series!

Call #4 – Monday, May 7, 2007, 12:00 – 1:30 p.m. Pacific Standard Time

Beyond the University IRB: Understanding Alternative Models for Human

Protection, Part I: Supplementing the IRB for Community Protection with a

Community Advisory Board

Moderator:

* Northington Gamble, Director, Tuskegee University National Center for

Bioethics in Research and Health Care

Speakers:

*Otsehtokon M. McComber (Mohawk), Former Training Coordinator, Kahnawake

Schools Diabetes Prevention Project, Kahnawake Mohawk Territory, Quebec, Canada

* B. , Professor of Community Health and Social Justice,

University of Pittsburgh Graduate School of Public Health, Pittsburgh, PA

*Vickie Ybarra, Director of Outreach and Services, Yakima Valley Farmworkers

Clinic, Toppenish, WA

This call will cover:

*Introduction to the wide range of human protections options developed by

community-based organizations and CBPR partnerships--from Community Advisory

Boards that supplement University IRBs to independent Community Review Boards

*Examples of Community Advisory Boards that have been created for additional

protections for the community, but work collaboratively with University IRBs

*Why and how these entities were created *How these entities function and what

purposes they serve *How and when to develop a Community Advisory Board

To register for this call, complete the online registration form at:

https://catalysttools.washington.edu/survey/ccphuw/34511

Call #5 - May 24, 2007, from 12:00 - 1:30 p.m. Pacific Standard Time

Beyond the University IRB: Understanding Alternative Models for Human

Protections, Part II: Creating an Independent Community IRB — When is it Right

for You?

Moderator:

* Northington Gamble, Director, Tuskegee University National Center for

Bioethics in Research and Health Care

Speakers:

*Sheila Beckham, Preventive Health Services Director, Waianae Coast

Comprehensive Health Center, Waianae, Hawaii *Bill Freeman, Director of Tribal

Community Health Programs & Human Protections Administrator, Northwest Indian

College, Bellingham, Washington * Tran, Program Manager, Orange

County Asian and Pacific Islander Community Alliance, Garden Grove, California

* Wat, Data Manager, Special Services for Groups, Los Angeles, California

This call will cover:

*Review of the wide range of human protections options developed by

community-based organizations and CBPR partnerships – from Community Advisory

Boards that supplement University IRBs to independent Community Review Boards

*Examples of independent Community IRBs that have been created to serve the

needs of their communities *Why and how these entities were created *How these

entities function and what purposes they serve *How and when to develop an

independent Community Review Board *Community ownership of data and benefits

from research – how does this differ between Community IRBs and University

IRBs?

To register for this call, complete the online registration form at:

https://catalysttools.washington.edu/survey/ccphuw/33263

Call #6 - Monday, June 25, 2007, 12:00 - 1:30 p.m. Pacific Standard Time

IRB Reform: Changing Policy and Practice to Protect Communities

Speakers: *Syed Ahmed, Director of the Center for Healthy Communities (CHC) &

Professor of Family and Community Medicine, Medical College of Wisconsin,

Milwaukee, WI * Beversdorf, Rural Health Liaison for the Healthier

Wisconsin Partnership Program, Medical College of Wisconsin, Milwaukee,

Wisconsin * Flicker, Assistant Professor, York University, Toronto,

Ontario, Canada *Robb Travers, Scientist and Director of Community-Based

Research, Ontario HIV Treatment Network, Toronto, Ontario, Canada * Shore,

Assistant Professor at the University of New England School of Social Work,

Portland, Maine

This call will cover:

*Findings from recent studies of IRBs and CBPR

*Do IRB policies and practices adequately protect communities? How should they

be changed? *Ideas and recommendations for how IRBs could better protect

communities

To register for this call, complete the online registration form at:

https://catalysttools.washington.edu/survey/ccphuw/33264

ABOUT THE CO-SPONSORING ORGANIZATIONS

Community-Campus Partnerships for Health and the Tuskegee University National

Center for Bioethics in Research and Health Care have established a partnership

to advance their shared goal of meaningfully involving communities in decisions

made about every aspect of research. In particular, the partnership is focused

on engaging Historically Black Colleges and Universities and the communities

they serve. The first outcome of the partnership is a jointly sponsored

Educational Conference Call Series on Institutional Review Boards and Ethical

Issues in Research.

Community-Campus Partnerships for Health promotes health (broadly defined)

through partnerships between communities and higher educational institutions.

Founded in 1996, CCPH is a growing network of over 1,300 communities and

campuses across North America and increasingly the world that are collaborating

to promote health through service-learning, community-based participatory

research, broad-based coalitions and other partnership strategies. What ties

CCPH members together is their commitment to social justice and their passion

for the power of partnerships to transform communities and academe. CCPH

advances its mission by disseminating information, providing training and

technical assistance, conducting research and evaluations, developing and

influencing policies, and building coalitions. Learn more about CCPH at

www.ccph.info

The Tuskegee University National Center for Bioethics in Research and Health

Care, promotes racial and ethnic diversity in the field of bioethics and in

public debates about bioethical issues. Established in 1999, its mission is to

promote equity and justice in health and health care. The Bioethics Center is

the nation's first bioethics center dedicated to addressing bioethical issues

of importance to African Americans and other underserved populations. It is

also the only bioethics center at a Historically Black College and University.

The Bioethics Center carries out its mission by conducting education and

training programs, fostering respectful community partnerships, advancing

interdisciplinary research, and advocating public policies that improve the

health and health care of all Americans, particularly the underserved. Learn

more about the Bioethics Center at

http://www.tuskegee.edu/Global/category.asp?C=35026