MODERATOR MESSAGE Re: banned

[Guest guest]

Unacceptable. It's pretty clear there wasn't an attack, it was difference of opinion, which I'll remind you that you said yourself everyone is entitled to. There was absolutely no reason to respond this way. Do not do this again. There are only two moderators on this list. Only one of them is currently active.That's ME.No one else gets to tell people what they can or can't do on this list or what place anyone has here. If you have a problem with someone, you say it using your big boy words or you contact ME. As for everyone else, it's completely inappropriate to have a conversation about another list owner and other list problems here. The dirty laundry of another list can stay on the other list. Please take it to your private emails.

~ Antiviral Therapy 101~~ Make a biomed book ~~ gryffinstail.wordpress.com ~~ @Gryffins_Tail ~

I have rarely signed on here, but I have to say Tammy that your attack is OFFENSIVE.NO ONE on theses blogs is TROLLING. We are all interested in getting our sick children better.Shame on you for attacking Sally!!As for , I could not agree more. His interest is not in helping children get better, it is in enriching himself from the adoption of a protocol. IF he doesn't want a challenge to his ideas, that is fine, do what any one else does and start your own website. When you use Yahoo or any other public blog, you open yourself to public opinion and scrutiny. Be a big boy and respond to that. If you don't like it, don't use the blogs.Everyone here is entitled to their opinons.As for and what he is doing, I have reported him to the FDA. He is running a

clinical trial without the proper credentials or scientific knowledge for his personal enrichment. He is also soliciting your involvement and the fraudulent use of insurance thru his non profit organization (wire fraud).Get your facts straight sally before you attack board members here!!We are all sharing ideas and trying to get our children healthy. Your anger has no place here.Subject: Re: Re: bannedTo: mb12valtrex Date: Wednesday, June 13, 2012, 3:56 PM

First I want to say how very sorry I am about your child. Many people here can relate to E.R. visits due to GI issues - my heart goes out to your little one.

If it is your intention to share an experience so others can benefit, that would be incredibly helpful. It would also be helpful to know which doctor you were working with using this protocol, (because is not a doctor, as you stated, the SCIA protocol requires a doctor in order to take part), if that docotor feels the protocol calls for sufficient monitoring or if he/she feels more intensive monitoring is required, if any of your doctor's other patients have had the same experience, how he/she feels about the protocol after your son's experience and if your son's trip to the e.r. was reported to SCIA for the benefit of the study. THIS is important information. Why on Earth would you jump on that yahoogroup and point out such trivial talking points such as "who coined the phrase 'stop calling it autism' " , yet neglect to inform others that your child had a stomach bleed????????? Certainly THAT point should have taken

precedence over any other.

It would be impossible for me to state that I have read every single reference the man has offered, but I believe I've read most. I honestly can't remember seeing a pattern where I was unable to locate references - ESPECIALLY considering the fact that he almost ALWAYS provides a link.

I'm sorry your friends were fired. That is never pleasant.

This will be it from me.

I hope you are not too angry to answer the questions I asked. Somebody's child may benefit.

Best wishes for your child,

Tammy

Sent from my Kindle Fire

Sent: Wed Jun 13 15:06:41 EDT 2012

To: mb12valtrex

Subject: Re: banned

Some of his references do not exist! If that is swinging sorry but wrong information does not help anyone or further any cause. fired his board people I know and replaced them with family members. Those original people have not signed off his 501 so it isn't legal. So sorry if the truth is offensive. In the end all it does is hurt the children. Do you have any idea how many children have been rushed to ER's with stomach bleeds from his advice, my child being one

Sorry it makes me ill, he is not a doctor.

Sally B

>

>

>

> You have been banned from this group by the group moderator (Yahoo! ID banned: sallybering). You may not join the group stopcallingitautism.

>

> Has this happened to anyone else?

>

> Sally B

>

> =

>

[Guest guest]

HEAR HEAR!!!!!!!!!!Sent from my iPodUnacceptable. It's pretty clear there wasn't an attack, it was difference of opinion, which I'll remind you that you said yourself everyone is entitled to. There was absolutely no reason to respond this way. Do not do this again. There are only two moderators on this list. Only one of them is currently active.That's ME.No one else gets to tell people what they can or can't do on this list or what place anyone has here. If you have a problem with someone, you say it using your big boy words or you contact ME. As for everyone else, it's completely inappropriate to have a conversation about another list owner and other list problems here. The dirty laundry of another list can stay on the other list. Please take it to your private emails.

<PastedGraphic-3.tiff>~ Antiviral Therapy 101~~ Make a biomed book ~~ gryffinstail.wordpress.com ~~ @Gryffins_Tail ~

I have rarely signed on here, but I have to say Tammy that your attack is OFFENSIVE.NO ONE on theses blogs is TROLLING. We are all interested in getting our sick children better.Shame on you for attacking Sally!!As for , I could not agree more. His interest is not in helping children get better, it is in enriching himself from the adoption of a protocol. IF he doesn't want a challenge to his ideas, that is fine, do what any one else does and start your own website. When you use Yahoo or any other public blog, you open yourself to public opinion and scrutiny. Be a big boy and respond to that. If you don't like it, don't use the blogs.Everyone here is entitled to their opinons.As for and what he is doing, I have reported him to the FDA. He is running a

clinical trial without the proper credentials or scientific knowledge for his personal enrichment. He is also soliciting your involvement and the fraudulent use of insurance thru his non profit organization (wire fraud).Get your facts straight sally before you attack board members here!!We are all sharing ideas and trying to get our children healthy. Your anger has no place here.Subject: Re: Re: bannedTo: mb12valtrex Date: Wednesday, June 13, 2012, 3:56 PM

First I want to say how very sorry I am about your child. Many people here can relate to E.R. visits due to GI issues - my heart goes out to your little one.

If it is your intention to share an experience so others can benefit, that would be incredibly helpful. It would also be helpful to know which doctor you were working with using this protocol, (because is not a doctor, as you stated, the SCIA protocol requires a doctor in order to take part), if that docotor feels the protocol calls for sufficient monitoring or if he/she feels more intensive monitoring is required, if any of your doctor's other patients have had the same experience, how he/she feels about the protocol after your son's experience and if your son's trip to the e.r. was reported to SCIA for the benefit of the study. THIS is important information. Why on Earth would you jump on that yahoogroup and point out such trivial talking points such as "who coined the phrase 'stop calling it autism' " , yet neglect to inform others that your child had a stomach bleed????????? Certainly THAT point should have taken

precedence over any other.

It would be impossible for me to state that I have read every single reference the man has offered, but I believe I've read most. I honestly can't remember seeing a pattern where I was unable to locate references - ESPECIALLY considering the fact that he almost ALWAYS provides a link.

I'm sorry your friends were fired. That is never pleasant.

This will be it from me.

I hope you are not too angry to answer the questions I asked. Somebody's child may benefit.

Best wishes for your child,

Tammy

Sent from my Kindle Fire

Sent: Wed Jun 13 15:06:41 EDT 2012

To: mb12valtrex

Subject: Re: banned

Some of his references do not exist! If that is swinging sorry but wrong information does not help anyone or further any cause. fired his board people I know and replaced them with family members. Those original people have not signed off his 501 so it isn't legal. So sorry if the truth is offensive. In the end all it does is hurt the children. Do you have any idea how many children have been rushed to ER's with stomach bleeds from his advice, my child being one

Sorry it makes me ill, he is not a doctor.

Sally B

>

>

>

> You have been banned from this group by the group moderator (Yahoo! ID banned: sallybering). You may not join the group stopcallingitautism.

>

> Has this happened to anyone else?

>

> Sally B

>

> =

>

[Guest guest]

I'm going to say this one last time. Anyone else replying to this thread will go on moderation until they're ready to get zen and let it go.This thread is dead. Please stop responding to any posts in this thread. Don't agree, don't disagree, don't apologize, applaud or boo. Anything that anyone's yearning to say can be taken private.These are the days when I wish we had a lock feature like forums.

~ Antiviral Therapy 101~~ Make a biomed book ~~ gryffinstail.wordpress.com ~~ @Gryffins_Tail ~

HEAR HEAR!!!!!!!!!!Sent from my iPodUnacceptable. It's pretty clear there wasn't an attack, it was difference of opinion, which I'll remind you that you said yourself everyone is entitled to. There was absolutely no reason to respond this way. Do not do this again. There are only two moderators on this list. Only one of them is currently active.That's ME.No one else gets to tell people what they can or can't do on this list or what place anyone has here. If you have a problem with someone, you say it using your big boy words or you contact ME. As for everyone else, it's completely inappropriate to have a conversation about another list owner and other list problems here. The dirty laundry of another list can stay on the other list. Please take it to your private emails.

<PastedGraphic-3.tiff>~ Antiviral Therapy 101~~ Make a biomed book ~~ gryffinstail.wordpress.com ~~ @Gryffins_Tail ~

I have rarely signed on here, but I have to say Tammy that your attack is OFFENSIVE.NO ONE on theses blogs is TROLLING. We are all interested in getting our sick children better.Shame on you for attacking Sally!!As for , I could not agree more. His interest is not in helping children get better, it is in enriching himself from the adoption of a protocol. IF he doesn't want a challenge to his ideas, that is fine, do what any one else does and start your own website. When you use Yahoo or any other public blog, you open yourself to public opinion and scrutiny. Be a big boy and respond to that. If you don't like it, don't use the blogs.Everyone here is entitled to their opinons.As for and what he is doing, I have reported him to the FDA. He is running a

clinical trial without the proper credentials or scientific knowledge for his personal enrichment. He is also soliciting your involvement and the fraudulent use of insurance thru his non profit organization (wire fraud).Get your facts straight sally before you attack board members here!!We are all sharing ideas and trying to get our children healthy. Your anger has no place here.Subject: Re: Re: bannedTo: mb12valtrex Date: Wednesday, June 13, 2012, 3:56 PM

First I want to say how very sorry I am about your child. Many people here can relate to E.R. visits due to GI issues - my heart goes out to your little one. If it is your intention to share an experience so others can benefit, that would be incredibly helpful. It would also be helpful to know which doctor you were working with using this protocol, (because is not a doctor, as you stated, the SCIA protocol requires a doctor in order to take part), if that docotor feels the protocol calls for sufficient monitoring or if he/she feels more intensive monitoring is required, if any of your doctor's other patients have had the same experience, how he/she feels about the protocol after your son's experience and if your son's trip to the e.r. was reported to SCIA for the benefit of the study. THIS is important information. Why on Earth would you jump on that yahoogroup and point out such trivial talking points such as "who coined the phrase 'stop calling it autism' " , yet neglect to inform others that your child had a stomach bleed????????? Certainly THAT point should have taken

precedence over any other. It would be impossible for me to state that I have read every single reference the man has offered, but I believe I've read most. I honestly can't remember seeing a pattern where I was unable to locate references - ESPECIALLY considering the fact that he almost ALWAYS provides a link. I'm sorry your friends were fired. That is never pleasant.This will be it from me.

I hope you are not too angry to answer the questions I asked. Somebody's child may benefit.Best wishes for your child,

Tammy

Sent from my Kindle Fire

Sent: Wed Jun 13 15:06:41 EDT 2012

To: mb12valtrex

Subject: Re: banned

Some of his references do not exist! If that is swinging sorry but wrong information does not help anyone or further any cause. fired his board people I know and replaced them with family members. Those original people have not signed off his 501 so it isn't legal. So sorry if the truth is offensive. In the end all it does is hurt the children. Do you have any idea how many children have been rushed to ER's with stomach bleeds from his advice, my child being one

Sorry it makes me ill, he is not a doctor.

Sally B

>

>

>

> You have been banned from this group by the group moderator (Yahoo! ID banned: sallybering). You may not join the group stopcallingitautism.

>

> Has this happened to anyone else?

>

> Sally B

>

> =

>