someone who understand MTHFR mutations.

[Guest guest]

There are lots of very knowledgeable and helpful people, including a couple of doctors, who take part in the pyroluria Face Book group. They know a lot about MTHFR. We talk about it all the time. If you are interested in looking into that, I can add you.

Sorry. More specifically someone who understand MTHFR mutations.

> Thanks again!

>

> Tammy

[Guest guest]

I'd over to be added as well. Sent from my iPhone

There are lots of very knowledgeable and helpful people, including a couple of doctors, who take part in the pyroluria Face Book group. They know a lot about MTHFR. We talk about it all the time. If you are interested in looking into that, I can add you.

Sorry. More specifically someone who understand MTHFR mutations.

> Thanks again!

>

> Tammy

[Guest guest]

I'd over to be added as well. Sent from my iPhone

There are lots of very knowledgeable and helpful people, including a couple of doctors, who take part in the pyroluria Face Book group. They know a lot about MTHFR. We talk about it all the time. If you are interested in looking into that, I can add you.

Sorry. More specifically someone who understand MTHFR mutations.

> Thanks again!

>

> Tammy

[Guest guest]

Is there only a facebook group for pyroluria? Is there a yahoo group or

anything? I just asked for an update on here about pyroluria recently and

didn't get any responses. I am currently deactivated from facebook and don't

really want to go back, but I would love to learn more about pyroluria from

people who are dealing with it.

I really think this is something at least one of my children is dealing with.

In my beginning research I have also run into stuff that indicates a connection

with pyroluria and salicylate sensitivity which is a big issue in our house.

Anyway, I was just wondering if you knew of anything other than the FB group.

If that is all there is, I may reactivate on FB if I can join the group.

Thanks,

Cathy

>

> There are lots of very knowledgeable and helpful people, including a couple

> of doctors, who take part in the pyroluria Face Book group. They know a lot

> about MTHFR. We talk about it all the time. If you are interested in

> looking into that, I can add you.

>

> Sorry. More specifically someone who understand MTHFR mutations.

> > Thanks again!

> >

> > Tammy

>

[Guest guest]

Is there only a facebook group for pyroluria? Is there a yahoo group or

anything? I just asked for an update on here about pyroluria recently and

didn't get any responses. I am currently deactivated from facebook and don't

really want to go back, but I would love to learn more about pyroluria from

people who are dealing with it.

I really think this is something at least one of my children is dealing with.

In my beginning research I have also run into stuff that indicates a connection

with pyroluria and salicylate sensitivity which is a big issue in our house.

Anyway, I was just wondering if you knew of anything other than the FB group.

If that is all there is, I may reactivate on FB if I can join the group.

Thanks,

Cathy

>

> There are lots of very knowledgeable and helpful people, including a couple

> of doctors, who take part in the pyroluria Face Book group. They know a lot

> about MTHFR. We talk about it all the time. If you are interested in

> looking into that, I can add you.

>

> Sorry. More specifically someone who understand MTHFR mutations.

> > Thanks again!

> >

> > Tammy

>

[Guest guest]

Me too!! I would love to be added for the mthfr mutation...-- Sent from my Palm Pre

I'd LOVE to be added. . Typos lolSent from my iPhone

I'd over to be added as well. Sent from my iPhone

There are lots of very knowledgeable and helpful people, including a couple of doctors, who take part in the pyroluria Face Book group. They know a lot about MTHFR. We talk about it all the time. If you are interested in looking into that, I can add you.

Sorry. More specifically someone who understand MTHFR mutations.

> Thanks again!

>

> Tammy

[Guest guest]

Me too!! I would love to be added for the mthfr mutation...-- Sent from my Palm Pre

I'd LOVE to be added. . Typos lolSent from my iPhone

I'd over to be added as well. Sent from my iPhone

There are lots of very knowledgeable and helpful people, including a couple of doctors, who take part in the pyroluria Face Book group. They know a lot about MTHFR. We talk about it all the time. If you are interested in looking into that, I can add you.

Sorry. More specifically someone who understand MTHFR mutations.

> Thanks again!

>

> Tammy

[Guest guest]

I would love that! Can I also pass this along to the friend who is looking for help?My name is Tammy Harrington (E. Providence, RI)Thanks a million!Tammy To: mb12valtrex Sent: Saturday, June 23, 2012 11:26 AM Subject: someone who understand MTHFR

mutations.

There are lots of very knowledgeable and helpful people, including a couple of doctors, who take part in the pyroluria Face Book group. They know a lot about MTHFR. We talk about it all the time. If you are interested in looking into that, I can add you.

Sorry. More specifically someone who understand MTHFR mutations.

> Thanks again!

>

> Tammy

[Guest guest]

I would love that! Can I also pass this along to the friend who is looking for help?My name is Tammy Harrington (E. Providence, RI)Thanks a million!Tammy To: mb12valtrex Sent: Saturday, June 23, 2012 11:26 AM Subject: someone who understand MTHFR

mutations.

There are lots of very knowledgeable and helpful people, including a couple of doctors, who take part in the pyroluria Face Book group. They know a lot about MTHFR. We talk about it all the time. If you are interested in looking into that, I can add you.

Sorry. More specifically someone who understand MTHFR mutations.

> Thanks again!

>

> Tammy

[Guest guest]

Please add me too..ThanksManojSent from my iPad

I would love that! Can I also pass this along to the friend who is looking for help?My name is Tammy Harrington (E. Providence, RI)Thanks a million!Tammy To: mb12valtrex Sent: Saturday, June 23, 2012 11:26 AM Subject: someone who understand MTHFR

mutations.

There are lots of very knowledgeable and helpful people, including a couple of doctors, who take part in the pyroluria Face Book group. They know a lot about MTHFR. We talk about it all the time. If you are interested in looking into that, I can add you.

Sorry. More specifically someone who understand MTHFR mutations.

> Thanks again!

>

> Tammy