Guest guest Posted June 24, 2012 Report Share Posted June 24, 2012 My 13 y.o. has similar behavior and always had a strong die-off. We are usually 4 for take his blood and that's a 1O minutes of hell almost every time but we do it with promisses of full of things (I don't know if that really helps you to know that but just know, you're not alone in this situation).The Valtrex was our almost worse experience of all (and it's also me, who asked for that to our Doc). And we don't do that no longer, BUT: for example, Zhytromax (my son has Lyme) which was also a hell for the first time, recently, get us the big improvement without (or nearly) die-off. I think that in chronic infection and with "old" children, we must have a huge patience and try again, the question is : what?na De : Rhonda Raiden À : "mb12valtrex " <mb12valtrex > Envoyé le : Dimanche 24 juin 2012 22h44 Objet : Re: Valtrex and antifungal treatment worsening behavior Hi Anita, Thanks for your response. I looked over the SCIA site. It sounds like the biomedical treatments that most Dan doctors might offer. If you don't mind, could you tell me specifically what you have been giving your sons? Thank you so much for your help. Rhonda To: mb12valtrex Sent: Sunday, June 24, 2012 2:23 PMSubject: Re: Valtrex and antifungal treatment worsening behavior Try the protocol of Stop Calling is Autism, I do for 2 month 1/2 with a twin boys and the changes is a blessing 2012/6/24 Rhonda Raiden Hi, I am a mother of a 12 year old autistic boy. We have a DAN doc and began giving him Valtrex with Nystatin almost three months ago because I asked for it.. His fits (where he runs, jumps and ground pounds, cries, screams, tries to scratch you) have increased instead of improving. We had him on Ketoconazole for the first two weeks (no apparent die-off), but since we cannot get bloodwork from him (my son is less than 70 pounds yet is strong as an ox- he struggles so hard even with 4 adults so that you cannot do bloodwork). So, since the doc has to do bloodwork periodically when giving Ketoconazole, she prescribed Nystatin. I reduced his dosage to see if that might help and it didn't. Because of his fits, I stopped giving him the medication three days ago, and he is still having these extended outbursts. I had such hope for this antiviral treatment , but it always seems like everything we try just makes him worse. He is so sensitive to everything. I realize that sometimes behavior gets worse before it gets better but when does the better come? Have any of you experienced this type of response with this treatment? Have any of you had success? I know that Nystatin is not the antifungal of choice for this antiviral therapy, but it was the only one we could get under these circumstances. Also, has anyone had success in drawing blood from a difficult child? There are several tests that could be helpful if we could only do them. Thank you so much. Rhonda -- Anita Directora de Ventas IndependienteEst San F16 Calle 8Carolina, PR 00985Teléfono www.marykay.com/anitarodriguez Quote Link to comment Share on other sites More sharing options...
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