Re: pandas/pans or yeast die off?? Badly need help with yeast

[Guest guest]

My son has done well on custom probiotics d lactate free.  We did see some die

off initially.  He also has crazy yeast problems all the time.  We do not have

confirmed PANDAS yet either.  He has had clostridia, Citrobacter, klebsiella,

strep strains in stool...  We just added in Culturelle and plan to add in one

from Klaire too to overwhelm the bad.  He is on 9 baby scoops of CP probiotics

to overwhelm the bad.  We started on 1 baby scoop and worked up over time.  We

had issues with GSE too.  We also just started viracin, plant tannins.  My DS

did not do well on nystatin, better on diflucan.  He has responded well to

Alinia (formed his stool) and bactrim seems to be helping with strep,

Citrobacter and klebsiella now, but we have majorly upped the probiotics to

combat the antibiotics killing off the good.  We also started LDN last week and

I believe it is having a positive effect on his mood.  We are also on diflucan

right now.

I feel like we deal with one thing and another crops up, but we had a good night

tonight.  I revel in every good day...

Hope you find healing soon!

>

> Hi everyone,

>

> I am still in the process of trying to figure out what my son's real issues

are. I have been maintaining a log and very closely monitor everything but there

is so much overlap in symptoms, it is hard to tell what the exact issue is. My

son started prescription antifungals in october 2011 and since then he has been

miserable. We attributed it to gcmaf, then clostridia, then pandas/pans and so

on. Now recently whenever I took him off diflucan, he had a few good days. As

soon as I would start him back on diflucan, he will have a couple of good days

and then would have increased ocd, tantrums, acidity, worsening sensory issues.

We have been using zithromax for his possible pandas diagnosis which has not

been confirmed by any labs so far. That has caused yeast flares. OAT supports

the yeast diagnosis as well. Since my kid was on zithromax, fluconazole and oral

vanco, we started transdermal NAC to help the liver. It definitely calmed him

down and made him happy but yeast loved it. So we are constantly trying to

promote his yeast with zithromax and vanco and he doesn't do well on

antifungals. I am not even sure if he has pans or not. Whatever is happening

this year has never happened before. He is off vanco and fluconazole this week

and I decided to replace culturelle with custom probiotic. He received his first

dose yesterday and was calm right away. Even had a two hour nap in the afternoon

which never happens. Today was a rough day for him as he had stomach ache after

lunch and dinner. I am only using the child scoop and he weighs 72 lbs. He got

very chapped lips today, was thirsty and obviously had heartburn. Is this die

off? Is there an overlap between pandas/pans symptoms and yeast die off? I

didn't like nystatin and even diflucan. I am trying to gradually increase custom

probiotics and see how that goes. I am tired of using diflucan and strongly

believe that it has given my son some form of neuropathy in his feet and hands.

Now he is off diflucan for four days and today his writing was much better. I

want to try naturals once again for yeast but he is very sensitive to phenols. I

tried candidase but he couldn't tolerate it. We have used candex in the past

without any negatives so I am thinking of giving it a try again. So should I

continue with custom probiotic and candex and see if the combo helps? Can anyone

help me figure this out that whether my son has pandas/pans or it is indeed the

yeast beast? His workup indicates yeast and the onset of symptoms was after

starting the antifungals. The reason I want to figure this out is because I want

to stop using azithromycin as I don't see much benefit and get a very bad yeast

flare.

>

> I know a lot of you use GSE for yeast but my son has serious phenol

sensitivity. What other naturals are an option here? I am so tired of seeing my

son miserable and really getting exhausted explaining to the relatives and

friends what is going on with my kid. I would really appreciate any input.

>

> Thanks

> is

>

[Guest guest]

My son has Pandas and when we treat yeast we have to go very slow. If I'm aggressive we have a Pandas flare with tantrums, aggression and OCD'S. My son used to have phenol issues but GSE he does ok with. It helps with both the Pandas and yeast. He is also on Cefdinir long term which is working for now. We hope to fade it out but I'm scarred!Sent from my iPhone

Hi everyone,

I am still in the process of trying to figure out what my son's real issues are. I have been maintaining a log and very closely monitor everything but there is so much overlap in symptoms, it is hard to tell what the exact issue is. My son started prescription antifungals in october 2011 and since then he has been miserable. We attributed it to gcmaf, then clostridia, then pandas/pans and so on. Now recently whenever I took him off diflucan, he had a few good days. As soon as I would start him back on diflucan, he will have a couple of good days and then would have increased ocd, tantrums, acidity, worsening sensory issues. We have been using zithromax for his possible pandas diagnosis which has not been confirmed by any labs so far. That has caused yeast flares. OAT supports the yeast diagnosis as well. Since my kid was on zithromax, fluconazole and oral vanco, we started transdermal NAC to help the liver. It definitely calmed him down and made him happy but yeast loved it. So we are constantly trying to promote his yeast with zithromax and vanco and he doesn't do well on antifungals. I am not even sure if he has pans or not. Whatever is happening this year has never happened before. He is off vanco and fluconazole this week and I decided to replace culturelle with custom probiotic. He received his first dose yesterday and was calm right away. Even had a two hour nap in the afternoon which never happens. Today was a rough day for him as he had stomach ache after lunch and dinner. I am only using the child scoop and he weighs 72 lbs. He got very chapped lips today, was thirsty and obviously had heartburn. Is this die off? Is there an overlap between pandas/pans symptoms and yeast die off? I didn't like nystatin and even diflucan. I am trying to gradually increase custom probiotics and see how that goes. I am tired of using diflucan and strongly believe that it has given my son some form of neuropathy in his feet and hands. Now he is off diflucan

for four days and today his writing was much better. I want to try naturals once again for yeast but he is very sensitive to phenols. I tried candidase but he couldn't tolerate it. We have used candex in the past without any negatives so I am thinking of giving it a try again. So should I continue with custom probiotic and candex and see if the combo helps? Can anyone help me figure this out that whether my son has pandas/pans or it is indeed the yeast beast? His workup indicates yeast and the onset of symptoms was after starting the antifungals. The reason I want to figure this out is because I want to stop using azithromycin as I don't see much benefit and get a very bad yeast flare.

I know a lot of you use GSE for yeast but my son has serious phenol sensitivity. What other naturals are an option here? I am so tired of seeing my son miserable and really getting exhausted explaining to the relatives and friends what is going on with my kid. I would really appreciate any input.

Thanks

is

[Guest guest]

, how did you get rid of phenol issue? I would love to try naturals but

phenol sensitivity is a big problem for my son. He was a responder to curcumin

but had to stop it as after a few weeks, he would start having all crazy phenol

sensitivity symptoms. How do you tell that the behaviors u see from aggressive

yeast treatment is pandas and not clostridia? Have you ever used oral

vancomycin? It is so hard to differentiate between clostridia and pandas. My kid

doesn't have any positive tests for either. I just finished a two week course of

vancomycin for him and he is a bit better. I don't see much result with

azithromycin. The good thing about vancomycin is that it doesn't kill the good

lactobacilli. Please let me know how your kid started tolerating phenols.

Tammy, I looked up candida diet and it seems doable. I will give it a try but

first have to read about it a bit more.

Thanks

is

>

>

>  

> >Hi everyone,

> >

> >I am still in the process of trying to figure out what my son's real issues

are. I have been maintaining a log and very closely monitor everything but there

is so much overlap in symptoms, it is hard to tell what the exact issue is. My

son started prescription antifungals in october 2011 and since then he has been

miserable. We attributed it to gcmaf, then clostridia, then pandas/pans and so

on. Now recently whenever I took him off diflucan, he had a few good days. As

soon as I would start him back on diflucan, he will have a couple of good days

and then would have increased ocd, tantrums, acidity, worsening sensory issues.

We have been using zithromax for his possible pandas diagnosis which has not

been confirmed by any labs so far. That has caused yeast flares. OAT supports

the yeast diagnosis as well. Since my kid was on zithromax, fluconazole and oral

vanco, we started transdermal NAC to help the liver. It definitely calmed him

down and made him

> happy but yeast loved it.

> So we are constantly trying to promote his yeast with zithromax and vanco and

he doesn't do well on antifungals. I am not even sure if he has pans or not.

Whatever is happening this year has never happened before. He is off vanco and

fluconazole this week and I decided to replace culturelle with custom probiotic.

He received his first dose yesterday and was calm right away. Even had a two

hour nap in the afternoon which never happens. Today was a rough day for him as

he had stomach ache after lunch and dinner. I am only using the child scoop and

he weighs 72 lbs. He got very chapped lips today, was thirsty and obviously had

heartburn. Is this die off? Is there an overlap between pandas/pans symptoms and

yeast die off? I didn't like nystatin and even diflucan. I am trying to

gradually increase custom probiotics and see how that goes. I am tired of using

diflucan and strongly believe that it has given my son some form of neuropathy

in his feet and hands.

> Now he is off diflucan

> for four days and today his writing was much better. I want to try naturals

once again for yeast but he is very sensitive to phenols. I tried candidase but

he couldn't tolerate it. We have used candex in the past without any negatives

so I am thinking of giving it a try again. So should I continue with custom

probiotic and candex and see if the combo helps? Can anyone help me figure this

out that whether my son has pandas/pans or it is indeed the yeast beast? His

workup indicates yeast and the onset of symptoms was after starting the

antifungals. The reason I want to figure this out is because I want to stop

using azithromycin as I don't see much benefit and get a very bad yeast flare.

> >

> >I know a lot of you use GSE for yeast but my son has serious phenol

sensitivity. What other naturals are an option here? I am so tired of seeing my

son miserable and really getting exhausted explaining to the relatives and

friends what is going on with my kid. I would really appreciate any input.

> >

> >Thanks

> >is

> >

> >

>

[Guest guest]

, how did you get rid of phenol issue? I would love to try naturals but

phenol sensitivity is a big problem for my son. He was a responder to curcumin

but had to stop it as after a few weeks, he would start having all crazy phenol

sensitivity symptoms. How do you tell that the behaviors u see from aggressive

yeast treatment is pandas and not clostridia? Have you ever used oral

vancomycin? It is so hard to differentiate between clostridia and pandas. My kid

doesn't have any positive tests for either. I just finished a two week course of

vancomycin for him and he is a bit better. I don't see much result with

azithromycin. The good thing about vancomycin is that it doesn't kill the good

lactobacilli. Please let me know how your kid started tolerating phenols.

Tammy, I looked up candida diet and it seems doable. I will give it a try but

first have to read about it a bit more.

Thanks

is

>

>

>  

> >Hi everyone,

> >

> >I am still in the process of trying to figure out what my son's real issues

are. I have been maintaining a log and very closely monitor everything but there

is so much overlap in symptoms, it is hard to tell what the exact issue is. My

son started prescription antifungals in october 2011 and since then he has been

miserable. We attributed it to gcmaf, then clostridia, then pandas/pans and so

on. Now recently whenever I took him off diflucan, he had a few good days. As

soon as I would start him back on diflucan, he will have a couple of good days

and then would have increased ocd, tantrums, acidity, worsening sensory issues.

We have been using zithromax for his possible pandas diagnosis which has not

been confirmed by any labs so far. That has caused yeast flares. OAT supports

the yeast diagnosis as well. Since my kid was on zithromax, fluconazole and oral

vanco, we started transdermal NAC to help the liver. It definitely calmed him

down and made him

> happy but yeast loved it.

> So we are constantly trying to promote his yeast with zithromax and vanco and

he doesn't do well on antifungals. I am not even sure if he has pans or not.

Whatever is happening this year has never happened before. He is off vanco and

fluconazole this week and I decided to replace culturelle with custom probiotic.

He received his first dose yesterday and was calm right away. Even had a two

hour nap in the afternoon which never happens. Today was a rough day for him as

he had stomach ache after lunch and dinner. I am only using the child scoop and

he weighs 72 lbs. He got very chapped lips today, was thirsty and obviously had

heartburn. Is this die off? Is there an overlap between pandas/pans symptoms and

yeast die off? I didn't like nystatin and even diflucan. I am trying to

gradually increase custom probiotics and see how that goes. I am tired of using

diflucan and strongly believe that it has given my son some form of neuropathy

in his feet and hands.

> Now he is off diflucan

> for four days and today his writing was much better. I want to try naturals

once again for yeast but he is very sensitive to phenols. I tried candidase but

he couldn't tolerate it. We have used candex in the past without any negatives

so I am thinking of giving it a try again. So should I continue with custom

probiotic and candex and see if the combo helps? Can anyone help me figure this

out that whether my son has pandas/pans or it is indeed the yeast beast? His

workup indicates yeast and the onset of symptoms was after starting the

antifungals. The reason I want to figure this out is because I want to stop

using azithromycin as I don't see much benefit and get a very bad yeast flare.

> >

> >I know a lot of you use GSE for yeast but my son has serious phenol

sensitivity. What other naturals are an option here? I am so tired of seeing my

son miserable and really getting exhausted explaining to the relatives and

friends what is going on with my kid. I would really appreciate any input.

> >

> >Thanks

> >is

> >

> >

>

[Guest guest]

How soon did you start going up on the dose of custom probiotics? I started with

one child scoop two days ago. He had a lot of acidity and heartburn yesterday

but was comfortable today and more verbal. Also what was your reason for

starting LDN? Is it the food sensitivities?

Thanks

is

> >

> > Hi everyone,

> >

> > I am still in the process of trying to figure out what my son's real issues

are. I have been maintaining a log and very closely monitor everything but there

is so much overlap in symptoms, it is hard to tell what the exact issue is. My

son started prescription antifungals in october 2011 and since then he has been

miserable. We attributed it to gcmaf, then clostridia, then pandas/pans and so

on. Now recently whenever I took him off diflucan, he had a few good days. As

soon as I would start him back on diflucan, he will have a couple of good days

and then would have increased ocd, tantrums, acidity, worsening sensory issues.

We have been using zithromax for his possible pandas diagnosis which has not

been confirmed by any labs so far. That has caused yeast flares. OAT supports

the yeast diagnosis as well. Since my kid was on zithromax, fluconazole and oral

vanco, we started transdermal NAC to help the liver. It definitely calmed him

down and made him happy but yeast loved it. So we are constantly trying to

promote his yeast with zithromax and vanco and he doesn't do well on

antifungals. I am not even sure if he has pans or not. Whatever is happening

this year has never happened before. He is off vanco and fluconazole this week

and I decided to replace culturelle with custom probiotic. He received his first

dose yesterday and was calm right away. Even had a two hour nap in the afternoon

which never happens. Today was a rough day for him as he had stomach ache after

lunch and dinner. I am only using the child scoop and he weighs 72 lbs. He got

very chapped lips today, was thirsty and obviously had heartburn. Is this die

off? Is there an overlap between pandas/pans symptoms and yeast die off? I

didn't like nystatin and even diflucan. I am trying to gradually increase custom

probiotics and see how that goes. I am tired of using diflucan and strongly

believe that it has given my son some form of neuropathy in his feet and hands.

Now he is off diflucan for four days and today his writing was much better. I

want to try naturals once again for yeast but he is very sensitive to phenols. I

tried candidase but he couldn't tolerate it. We have used candex in the past

without any negatives so I am thinking of giving it a try again. So should I

continue with custom probiotic and candex and see if the combo helps? Can anyone

help me figure this out that whether my son has pandas/pans or it is indeed the

yeast beast? His workup indicates yeast and the onset of symptoms was after

starting the antifungals. The reason I want to figure this out is because I want

to stop using azithromycin as I don't see much benefit and get a very bad yeast

flare.

> >

> > I know a lot of you use GSE for yeast but my son has serious phenol

sensitivity. What other naturals are an option here? I am so tired of seeing my

son miserable and really getting exhausted explaining to the relatives and

friends what is going on with my kid. I would really appreciate any input.

> >

> > Thanks

> > is

> >

>

[Guest guest]

How soon did you start going up on the dose of custom probiotics? I started with

one child scoop two days ago. He had a lot of acidity and heartburn yesterday

but was comfortable today and more verbal. Also what was your reason for

starting LDN? Is it the food sensitivities?

Thanks

is

> >

> > Hi everyone,

> >

> > I am still in the process of trying to figure out what my son's real issues

are. I have been maintaining a log and very closely monitor everything but there

is so much overlap in symptoms, it is hard to tell what the exact issue is. My

son started prescription antifungals in october 2011 and since then he has been

miserable. We attributed it to gcmaf, then clostridia, then pandas/pans and so

on. Now recently whenever I took him off diflucan, he had a few good days. As

soon as I would start him back on diflucan, he will have a couple of good days

and then would have increased ocd, tantrums, acidity, worsening sensory issues.

We have been using zithromax for his possible pandas diagnosis which has not

been confirmed by any labs so far. That has caused yeast flares. OAT supports

the yeast diagnosis as well. Since my kid was on zithromax, fluconazole and oral

vanco, we started transdermal NAC to help the liver. It definitely calmed him

down and made him happy but yeast loved it. So we are constantly trying to

promote his yeast with zithromax and vanco and he doesn't do well on

antifungals. I am not even sure if he has pans or not. Whatever is happening

this year has never happened before. He is off vanco and fluconazole this week

and I decided to replace culturelle with custom probiotic. He received his first

dose yesterday and was calm right away. Even had a two hour nap in the afternoon

which never happens. Today was a rough day for him as he had stomach ache after

lunch and dinner. I am only using the child scoop and he weighs 72 lbs. He got

very chapped lips today, was thirsty and obviously had heartburn. Is this die

off? Is there an overlap between pandas/pans symptoms and yeast die off? I

didn't like nystatin and even diflucan. I am trying to gradually increase custom

probiotics and see how that goes. I am tired of using diflucan and strongly

believe that it has given my son some form of neuropathy in his feet and hands.

Now he is off diflucan for four days and today his writing was much better. I

want to try naturals once again for yeast but he is very sensitive to phenols. I

tried candidase but he couldn't tolerate it. We have used candex in the past

without any negatives so I am thinking of giving it a try again. So should I

continue with custom probiotic and candex and see if the combo helps? Can anyone

help me figure this out that whether my son has pandas/pans or it is indeed the

yeast beast? His workup indicates yeast and the onset of symptoms was after

starting the antifungals. The reason I want to figure this out is because I want

to stop using azithromycin as I don't see much benefit and get a very bad yeast

flare.

> >

> > I know a lot of you use GSE for yeast but my son has serious phenol

sensitivity. What other naturals are an option here? I am so tired of seeing my

son miserable and really getting exhausted explaining to the relatives and

friends what is going on with my kid. I would really appreciate any input.

> >

> > Thanks

> > is

> >

>

[Guest guest]

We started to go up after one week. We did one scoop in the am and one in the

pm. that was good for some time but when we got bad bacteria, c diff, yeast,

and diahrrea we went up again to normalize stool. When we are on abx, we go way

up. These are the best probiotics for my son. Go slow, wait at least 4 or 5

days between increasing and see what works best for your son.

LDN was for autoimmune issues and major GI issues and inflammation. We are

hypothyroid, always high inflammation in GI and low seratonin. We are only on

3/4 pill at 1.5 mg and stools have normalized and he is happier and more social

. We've only been on it for less than 2 weeks. I am hopeful about this one!

> > >

> > > Hi everyone,

> > >

> > > I am still in the process of trying to figure out what my son's real

issues are. I have been maintaining a log and very closely monitor everything

but there is so much overlap in symptoms, it is hard to tell what the exact

issue is. My son started prescription antifungals in october 2011 and since then

he has been miserable. We attributed it to gcmaf, then clostridia, then

pandas/pans and so on. Now recently whenever I took him off diflucan, he had a

few good days. As soon as I would start him back on diflucan, he will have a

couple of good days and then would have increased ocd, tantrums, acidity,

worsening sensory issues. We have been using zithromax for his possible pandas

diagnosis which has not been confirmed by any labs so far. That has caused yeast

flares. OAT supports the yeast diagnosis as well. Since my kid was on zithromax,

fluconazole and oral vanco, we started transdermal NAC to help the liver. It

definitely calmed him down and made him happy but yeast loved it. So we are

constantly trying to promote his yeast with zithromax and vanco and he doesn't

do well on antifungals. I am not even sure if he has pans or not. Whatever is

happening this year has never happened before. He is off vanco and fluconazole

this week and I decided to replace culturelle with custom probiotic. He received

his first dose yesterday and was calm right away. Even had a two hour nap in the

afternoon which never happens. Today was a rough day for him as he had stomach

ache after lunch and dinner. I am only using the child scoop and he weighs 72

lbs. He got very chapped lips today, was thirsty and obviously had heartburn. Is

this die off? Is there an overlap between pandas/pans symptoms and yeast die

off? I didn't like nystatin and even diflucan. I am trying to gradually increase

custom probiotics and see how that goes. I am tired of using diflucan and

strongly believe that it has given my son some form of neuropathy in his feet

and hands. Now he is off diflucan for four days and today his writing was much

better. I want to try naturals once again for yeast but he is very sensitive to

phenols. I tried candidase but he couldn't tolerate it. We have used candex in

the past without any negatives so I am thinking of giving it a try again. So

should I continue with custom probiotic and candex and see if the combo helps?

Can anyone help me figure this out that whether my son has pandas/pans or it is

indeed the yeast beast? His workup indicates yeast and the onset of symptoms was

after starting the antifungals. The reason I want to figure this out is because

I want to stop using azithromycin as I don't see much benefit and get a very bad

yeast flare.

> > >

> > > I know a lot of you use GSE for yeast but my son has serious phenol

sensitivity. What other naturals are an option here? I am so tired of seeing my

son miserable and really getting exhausted explaining to the relatives and

friends what is going on with my kid. I would really appreciate any input.

> > >

> > > Thanks

> > > is

> > >

> >

>

[Guest guest]

is - we also use custom probiotics dlactate. I started at 1/2 scoop and went up from there. Yes we had crazy die-off. If you have clostridia and want to avoid vanco, you can use lactobacillus gg and saccromyces boulardi. Which pandas tests have been done on your son? Have you tested for a wide range of infectious triggers? There are many potential infectious triggers than can cause pandas. It is helpful to test for many at once. Many kids are struggling with a variety of infections at once. Also - infections are whacky in that some can cause pandas-like symptoms directly; it doesnt necessarily have to be an autoimmune situation Read Madeleine cunningham's work. She explains the mechanism for how some infections can cause difficult behaviors by driving up dopamine and glutamates. Some infections can even find ways to turn off your immune system. This can cause an environment that makes it easy for multiple infections, yeast, or other pathogenic bacteria to proliferate. Have you checked immune function? I hate that your son is struggling. Hoping you find some answers soon - RuthSent from my iPhone

How soon did you start going up on the dose of custom probiotics? I started with one child scoop two days ago. He had a lot of acidity and heartburn yesterday but was comfortable today and more verbal. Also what was your reason for starting LDN? Is it the food sensitivities?

Thanks

is

> >

> > Hi everyone,

> >

> > I am still in the process of trying to figure out what my son's real issues are. I have been maintaining a log and very closely monitor everything but there is so much overlap in symptoms, it is hard to tell what the exact issue is. My son started prescription antifungals in october 2011 and since then he has been miserable. We attributed it to gcmaf, then clostridia, then pandas/pans and so on. Now recently whenever I took him off diflucan, he had a few good days. As soon as I would start him back on diflucan, he will have a couple of good days and then would have increased ocd, tantrums, acidity, worsening sensory issues. We have been using zithromax for his possible pandas diagnosis which has not been confirmed by any labs so far. That has caused yeast flares. OAT supports the yeast diagnosis as well. Since my kid was on zithromax, fluconazole and oral vanco, we started transdermal NAC to help the liver. It definitely calmed him down and made him happy but yeast loved it. So we are constantly trying to promote his yeast with zithromax and vanco and he doesn't do well on antifungals. I am not even sure if he has pans or not. Whatever is happening this year has never happened before. He is off vanco and fluconazole this week and I decided to replace culturelle with custom probiotic. He received his first dose yesterday and was calm right away. Even had a two hour nap in the afternoon which never happens. Today was a rough day for him as he had stomach ache after lunch and dinner. I am only using the child scoop and he weighs 72 lbs. He got very chapped lips today, was thirsty and obviously had heartburn. Is this die off? Is there an overlap between pandas/pans symptoms and yeast die off? I didn't like nystatin and even diflucan. I am trying to gradually increase custom probiotics and see how that goes. I am tired of using diflucan and strongly believe that it has given my son some form of neuropathy in his feet and hands. Now he is off diflucan for four days and today his writing was much better. I want to try naturals once again for yeast but he is very sensitive to phenols. I tried candidase but he couldn't tolerate it. We have used candex in the past without any negatives so I am thinking of giving it a try again. So should I continue with custom probiotic and candex and see if the combo helps? Can anyone help me figure this out that whether my son has pandas/pans or it is indeed the yeast beast? His workup indicates yeast and the onset of symptoms was after starting the antifungals. The reason I want to figure this out is because I want to stop using azithromycin as I don't see much benefit and get a very bad yeast flare.

> >

> > I know a lot of you use GSE for yeast but my son has serious phenol sensitivity. What other naturals are an option here? I am so tired of seeing my son miserable and really getting exhausted explaining to the relatives and friends what is going on with my kid. I would really appreciate any input.

> >

> > Thanks

> > is

> >

>

[Guest guest]

is - we also use custom probiotics dlactate. I started at 1/2 scoop and went up from there. Yes we had crazy die-off. If you have clostridia and want to avoid vanco, you can use lactobacillus gg and saccromyces boulardi. Which pandas tests have been done on your son? Have you tested for a wide range of infectious triggers? There are many potential infectious triggers than can cause pandas. It is helpful to test for many at once. Many kids are struggling with a variety of infections at once. Also - infections are whacky in that some can cause pandas-like symptoms directly; it doesnt necessarily have to be an autoimmune situation Read Madeleine cunningham's work. She explains the mechanism for how some infections can cause difficult behaviors by driving up dopamine and glutamates. Some infections can even find ways to turn off your immune system. This can cause an environment that makes it easy for multiple infections, yeast, or other pathogenic bacteria to proliferate. Have you checked immune function? I hate that your son is struggling. Hoping you find some answers soon - RuthSent from my iPhone

How soon did you start going up on the dose of custom probiotics? I started with one child scoop two days ago. He had a lot of acidity and heartburn yesterday but was comfortable today and more verbal. Also what was your reason for starting LDN? Is it the food sensitivities?

Thanks

is

> >

> > Hi everyone,

> >

> > I am still in the process of trying to figure out what my son's real issues are. I have been maintaining a log and very closely monitor everything but there is so much overlap in symptoms, it is hard to tell what the exact issue is. My son started prescription antifungals in october 2011 and since then he has been miserable. We attributed it to gcmaf, then clostridia, then pandas/pans and so on. Now recently whenever I took him off diflucan, he had a few good days. As soon as I would start him back on diflucan, he will have a couple of good days and then would have increased ocd, tantrums, acidity, worsening sensory issues. We have been using zithromax for his possible pandas diagnosis which has not been confirmed by any labs so far. That has caused yeast flares. OAT supports the yeast diagnosis as well. Since my kid was on zithromax, fluconazole and oral vanco, we started transdermal NAC to help the liver. It definitely calmed him down and made him happy but yeast loved it. So we are constantly trying to promote his yeast with zithromax and vanco and he doesn't do well on antifungals. I am not even sure if he has pans or not. Whatever is happening this year has never happened before. He is off vanco and fluconazole this week and I decided to replace culturelle with custom probiotic. He received his first dose yesterday and was calm right away. Even had a two hour nap in the afternoon which never happens. Today was a rough day for him as he had stomach ache after lunch and dinner. I am only using the child scoop and he weighs 72 lbs. He got very chapped lips today, was thirsty and obviously had heartburn. Is this die off? Is there an overlap between pandas/pans symptoms and yeast die off? I didn't like nystatin and even diflucan. I am trying to gradually increase custom probiotics and see how that goes. I am tired of using diflucan and strongly believe that it has given my son some form of neuropathy in his feet and hands. Now he is off diflucan for four days and today his writing was much better. I want to try naturals once again for yeast but he is very sensitive to phenols. I tried candidase but he couldn't tolerate it. We have used candex in the past without any negatives so I am thinking of giving it a try again. So should I continue with custom probiotic and candex and see if the combo helps? Can anyone help me figure this out that whether my son has pandas/pans or it is indeed the yeast beast? His workup indicates yeast and the onset of symptoms was after starting the antifungals. The reason I want to figure this out is because I want to stop using azithromycin as I don't see much benefit and get a very bad yeast flare.

> >

> > I know a lot of you use GSE for yeast but my son has serious phenol sensitivity. What other naturals are an option here? I am so tired of seeing my son miserable and really getting exhausted explaining to the relatives and friends what is going on with my kid. I would really appreciate any input.

> >

> > Thanks

> > is

> >

>

[Guest guest]

Thanks Ruth. We are awaiting results for mycoplasma, HHV6, lyme, ebv. I am gonna

check for CMV also. Aso and dnase titers are negative twice already and we never

got a positive culture. Vancomycin helped a little but we see the benefits after

we complete the two week round and take the 1 week off. We have to start the

round this weekend again and I will have to add the diflucan which either has

caused a lot of problems from flaring clostridia or caused neuropathy itself.

Whenever my kid is on diflucan, his sensory issues get worse. Few weeks ago he

could not even open his hand and kept it like a fist all day. Once I started

vanco, his symptoms improved. I will see how the next round of diflucan +

vancomycin go. I always wonder if diflucan causes more issues because of the

non-medicinal ingredients. I looked it up and commercial diflucan contains

sucrose, sodium citrate dihydrate, citric acid anhydrous, sodium benzoate,

titanium dioxide, colloidal silicon dioxide, xanthan gum, and natural orange

flavor. May be the natural orange flavor is an issue for my phenol sensitive

kid. Does everyone get their diflucan compounded?

I am really hoping the custom probiotic will help my kid. The first day we

started it, he seemed calmer. Second day he seemed to have crazy die off and

third day was awesome. Today was the fourth day and was so so and he seems very

silly but more verbal though. Will go up on the dose soon. I will read Dr

Cunningham's work Ruth. He aslo had other immune workup done which was pretty

much normal. But he is getting a whole bunch of other tests done also.

Thanks for help everyone.

is

> > > >

> > > > Hi everyone,

> > > >

> > > > I am still in the process of trying to figure out what my son's real

issues are. I have been maintaining a log and very closely monitor everything

but there is so much overlap in symptoms, it is hard to tell what the exact

issue is. My son started prescription antifungals in october 2011 and since then

he has been miserable. We attributed it to gcmaf, then clostridia, then

pandas/pans and so on. Now recently whenever I took him off diflucan, he had a

few good days. As soon as I would start him back on diflucan, he will have a

couple of good days and then would have increased ocd, tantrums, acidity,

worsening sensory issues. We have been using zithromax for his possible pandas

diagnosis which has not been confirmed by any labs so far. That has caused yeast

flares. OAT supports the yeast diagnosis as well. Since my kid was on zithromax,

fluconazole and oral vanco, we started transdermal NAC to help the liver. It

definitely calmed him down and made him happy but yeast loved it. So we are

constantly trying to promote his yeast with zithromax and vanco and he doesn't

do well on antifungals. I am not even sure if he has pans or not. Whatever is

happening this year has never happened before. He is off vanco and fluconazole

this week and I decided to replace culturelle with custom probiotic. He received

his first dose yesterday and was calm right away. Even had a two hour nap in the

afternoon which never happens. Today was a rough day for him as he had stomach

ache after lunch and dinner. I am only using the child scoop and he weighs 72

lbs. He got very chapped lips today, was thirsty and obviously had heartburn. Is

this die off? Is there an overlap between pandas/pans symptoms and yeast die

off? I didn't like nystatin and even diflucan. I am trying to gradually increase

custom probiotics and see how that goes. I am tired of using diflucan and

strongly believe that it has given my son some form of neuropathy in his feet

and hands. Now he is off diflucan for four days and today his writing was much

better. I want to try naturals once again for yeast but he is very sensitive to

phenols. I tried candidase but he couldn't tolerate it. We have used candex in

the past without any negatives so I am thinking of giving it a try again. So

should I continue with custom probiotic and candex and see if the combo helps?

Can anyone help me figure this out that whether my son has pandas/pans or it is

indeed the yeast beast? His workup indicates yeast and the onset of symptoms was

after starting the antifungals. The reason I want to figure this out is because

I want to stop using azithromycin as I don't see much benefit and get a very bad

yeast flare.

> > > >

> > > > I know a lot of you use GSE for yeast but my son has serious phenol

sensitivity. What other naturals are an option here? I am so tired of seeing my

son miserable and really getting exhausted explaining to the relatives and

friends what is going on with my kid. I would really appreciate any input.

> > > >

> > > > Thanks

> > > > is

> > > >

> > >

> >

> >

>

[Guest guest]

Thanks Ruth. We are awaiting results for mycoplasma, HHV6, lyme, ebv. I am gonna

check for CMV also. Aso and dnase titers are negative twice already and we never

got a positive culture. Vancomycin helped a little but we see the benefits after

we complete the two week round and take the 1 week off. We have to start the

round this weekend again and I will have to add the diflucan which either has

caused a lot of problems from flaring clostridia or caused neuropathy itself.

Whenever my kid is on diflucan, his sensory issues get worse. Few weeks ago he

could not even open his hand and kept it like a fist all day. Once I started

vanco, his symptoms improved. I will see how the next round of diflucan +

vancomycin go. I always wonder if diflucan causes more issues because of the

non-medicinal ingredients. I looked it up and commercial diflucan contains

sucrose, sodium citrate dihydrate, citric acid anhydrous, sodium benzoate,

titanium dioxide, colloidal silicon dioxide, xanthan gum, and natural orange

flavor. May be the natural orange flavor is an issue for my phenol sensitive

kid. Does everyone get their diflucan compounded?

I am really hoping the custom probiotic will help my kid. The first day we

started it, he seemed calmer. Second day he seemed to have crazy die off and

third day was awesome. Today was the fourth day and was so so and he seems very

silly but more verbal though. Will go up on the dose soon. I will read Dr

Cunningham's work Ruth. He aslo had other immune workup done which was pretty

much normal. But he is getting a whole bunch of other tests done also.

Thanks for help everyone.

is

> > > >

> > > > Hi everyone,

> > > >

> > > > I am still in the process of trying to figure out what my son's real

issues are. I have been maintaining a log and very closely monitor everything

but there is so much overlap in symptoms, it is hard to tell what the exact

issue is. My son started prescription antifungals in october 2011 and since then

he has been miserable. We attributed it to gcmaf, then clostridia, then

pandas/pans and so on. Now recently whenever I took him off diflucan, he had a

few good days. As soon as I would start him back on diflucan, he will have a

couple of good days and then would have increased ocd, tantrums, acidity,

worsening sensory issues. We have been using zithromax for his possible pandas

diagnosis which has not been confirmed by any labs so far. That has caused yeast

flares. OAT supports the yeast diagnosis as well. Since my kid was on zithromax,

fluconazole and oral vanco, we started transdermal NAC to help the liver. It

definitely calmed him down and made him happy but yeast loved it. So we are

constantly trying to promote his yeast with zithromax and vanco and he doesn't

do well on antifungals. I am not even sure if he has pans or not. Whatever is

happening this year has never happened before. He is off vanco and fluconazole

this week and I decided to replace culturelle with custom probiotic. He received

his first dose yesterday and was calm right away. Even had a two hour nap in the

afternoon which never happens. Today was a rough day for him as he had stomach

ache after lunch and dinner. I am only using the child scoop and he weighs 72

lbs. He got very chapped lips today, was thirsty and obviously had heartburn. Is

this die off? Is there an overlap between pandas/pans symptoms and yeast die

off? I didn't like nystatin and even diflucan. I am trying to gradually increase

custom probiotics and see how that goes. I am tired of using diflucan and

strongly believe that it has given my son some form of neuropathy in his feet

and hands. Now he is off diflucan for four days and today his writing was much

better. I want to try naturals once again for yeast but he is very sensitive to

phenols. I tried candidase but he couldn't tolerate it. We have used candex in

the past without any negatives so I am thinking of giving it a try again. So

should I continue with custom probiotic and candex and see if the combo helps?

Can anyone help me figure this out that whether my son has pandas/pans or it is

indeed the yeast beast? His workup indicates yeast and the onset of symptoms was

after starting the antifungals. The reason I want to figure this out is because

I want to stop using azithromycin as I don't see much benefit and get a very bad

yeast flare.

> > > >

> > > > I know a lot of you use GSE for yeast but my son has serious phenol

sensitivity. What other naturals are an option here? I am so tired of seeing my

son miserable and really getting exhausted explaining to the relatives and

friends what is going on with my kid. I would really appreciate any input.

> > > >

> > > > Thanks

> > > > is

> > > >

> > >

> >

> >

>

[Guest guest]

Best of luck is. I'm sure you will figure it out. Your son is lucky to have you. RuthSent from my iPhone

Thanks Ruth. We are awaiting results for mycoplasma, HHV6, lyme, ebv. I am gonna check for CMV also. Aso and dnase titers are negative twice already and we never got a positive culture. Vancomycin helped a little but we see the benefits after we complete the two week round and take the 1 week off. We have to start the round this weekend again and I will have to add the diflucan which either has caused a lot of problems from flaring clostridia or caused neuropathy itself. Whenever my kid is on diflucan, his sensory issues get worse. Few weeks ago he could not even open his hand and kept it like a fist all day. Once I started vanco, his symptoms improved. I will see how the next round of diflucan + vancomycin go. I always wonder if diflucan causes more issues because of the non-medicinal ingredients. I looked it up and commercial diflucan contains sucrose, sodium citrate dihydrate, citric acid anhydrous, sodium benzoate, titanium dioxide, colloidal silicon dioxide, xanthan gum, and natural orange flavor. May be the natural orange flavor is an issue for my phenol sensitive kid. Does everyone get their diflucan compounded?

I am really hoping the custom probiotic will help my kid. The first day we started it, he seemed calmer. Second day he seemed to have crazy die off and third day was awesome. Today was the fourth day and was so so and he seems very silly but more verbal though. Will go up on the dose soon. I will read Dr Cunningham's work Ruth. He aslo had other immune workup done which was pretty much normal. But he is getting a whole bunch of other tests done also.

Thanks for help everyone.

is

> > > >

> > > > Hi everyone,

> > > >

> > > > I am still in the process of trying to figure out what my son's real issues are. I have been maintaining a log and very closely monitor everything but there is so much overlap in symptoms, it is hard to tell what the exact issue is. My son started prescription antifungals in october 2011 and since then he has been miserable. We attributed it to gcmaf, then clostridia, then pandas/pans and so on. Now recently whenever I took him off diflucan, he had a few good days. As soon as I would start him back on diflucan, he will have a couple of good days and then would have increased ocd, tantrums, acidity, worsening sensory issues. We have been using zithromax for his possible pandas diagnosis which has not been confirmed by any labs so far. That has caused yeast flares. OAT supports the yeast diagnosis as well. Since my kid was on zithromax, fluconazole and oral vanco, we started transdermal NAC to help the liver. It definitely calmed him down and made him happy but yeast loved it. So we are constantly trying to promote his yeast with zithromax and vanco and he doesn't do well on antifungals. I am not even sure if he has pans or not. Whatever is happening this year has never happened before. He is off vanco and fluconazole this week and I decided to replace culturelle with custom probiotic. He received his first dose yesterday and was calm right away. Even had a two hour nap in the afternoon which never happens. Today was a rough day for him as he had stomach ache after lunch and dinner. I am only using the child scoop and he weighs 72 lbs. He got very chapped lips today, was thirsty and obviously had heartburn. Is this die off? Is there an overlap between pandas/pans symptoms and yeast die off? I didn't like nystatin and even diflucan. I am trying to gradually increase custom probiotics and see how that goes. I am tired of using diflucan and strongly believe that it has given my son some form of neuropathy in his feet and hands. Now he is off diflucan for four days and today his writing was much better. I want to try naturals once again for yeast but he is very sensitive to phenols. I tried candidase but he couldn't tolerate it. We have used candex in the past without any negatives so I am thinking of giving it a try again. So should I continue with custom probiotic and candex and see if the combo helps? Can anyone help me figure this out that whether my son has pandas/pans or it is indeed the yeast beast? His workup indicates yeast and the onset of symptoms was after starting the antifungals. The reason I want to figure this out is because I want to stop using azithromycin as I don't see much benefit and get a very bad yeast flare.

> > > >

> > > > I know a lot of you use GSE for yeast but my son has serious phenol sensitivity. What other naturals are an option here? I am so tired of seeing my son miserable and really getting exhausted explaining to the relatives and friends what is going on with my kid. I would really appreciate any input.

> > > >

> > > > Thanks

> > > > is

> > > >

> > >

> >

> >

>

[Guest guest]

Best of luck is. I'm sure you will figure it out. Your son is lucky to have you. RuthSent from my iPhone

Thanks Ruth. We are awaiting results for mycoplasma, HHV6, lyme, ebv. I am gonna check for CMV also. Aso and dnase titers are negative twice already and we never got a positive culture. Vancomycin helped a little but we see the benefits after we complete the two week round and take the 1 week off. We have to start the round this weekend again and I will have to add the diflucan which either has caused a lot of problems from flaring clostridia or caused neuropathy itself. Whenever my kid is on diflucan, his sensory issues get worse. Few weeks ago he could not even open his hand and kept it like a fist all day. Once I started vanco, his symptoms improved. I will see how the next round of diflucan + vancomycin go. I always wonder if diflucan causes more issues because of the non-medicinal ingredients. I looked it up and commercial diflucan contains sucrose, sodium citrate dihydrate, citric acid anhydrous, sodium benzoate, titanium dioxide, colloidal silicon dioxide, xanthan gum, and natural orange flavor. May be the natural orange flavor is an issue for my phenol sensitive kid. Does everyone get their diflucan compounded?

I am really hoping the custom probiotic will help my kid. The first day we started it, he seemed calmer. Second day he seemed to have crazy die off and third day was awesome. Today was the fourth day and was so so and he seems very silly but more verbal though. Will go up on the dose soon. I will read Dr Cunningham's work Ruth. He aslo had other immune workup done which was pretty much normal. But he is getting a whole bunch of other tests done also.

Thanks for help everyone.

is

> > > >

> > > > Hi everyone,

> > > >

> > > > I am still in the process of trying to figure out what my son's real issues are. I have been maintaining a log and very closely monitor everything but there is so much overlap in symptoms, it is hard to tell what the exact issue is. My son started prescription antifungals in october 2011 and since then he has been miserable. We attributed it to gcmaf, then clostridia, then pandas/pans and so on. Now recently whenever I took him off diflucan, he had a few good days. As soon as I would start him back on diflucan, he will have a couple of good days and then would have increased ocd, tantrums, acidity, worsening sensory issues. We have been using zithromax for his possible pandas diagnosis which has not been confirmed by any labs so far. That has caused yeast flares. OAT supports the yeast diagnosis as well. Since my kid was on zithromax, fluconazole and oral vanco, we started transdermal NAC to help the liver. It definitely calmed him down and made him happy but yeast loved it. So we are constantly trying to promote his yeast with zithromax and vanco and he doesn't do well on antifungals. I am not even sure if he has pans or not. Whatever is happening this year has never happened before. He is off vanco and fluconazole this week and I decided to replace culturelle with custom probiotic. He received his first dose yesterday and was calm right away. Even had a two hour nap in the afternoon which never happens. Today was a rough day for him as he had stomach ache after lunch and dinner. I am only using the child scoop and he weighs 72 lbs. He got very chapped lips today, was thirsty and obviously had heartburn. Is this die off? Is there an overlap between pandas/pans symptoms and yeast die off? I didn't like nystatin and even diflucan. I am trying to gradually increase custom probiotics and see how that goes. I am tired of using diflucan and strongly believe that it has given my son some form of neuropathy in his feet and hands. Now he is off diflucan for four days and today his writing was much better. I want to try naturals once again for yeast but he is very sensitive to phenols. I tried candidase but he couldn't tolerate it. We have used candex in the past without any negatives so I am thinking of giving it a try again. So should I continue with custom probiotic and candex and see if the combo helps? Can anyone help me figure this out that whether my son has pandas/pans or it is indeed the yeast beast? His workup indicates yeast and the onset of symptoms was after starting the antifungals. The reason I want to figure this out is because I want to stop using azithromycin as I don't see much benefit and get a very bad yeast flare.

> > > >

> > > > I know a lot of you use GSE for yeast but my son has serious phenol sensitivity. What other naturals are an option here? I am so tired of seeing my son miserable and really getting exhausted explaining to the relatives and friends what is going on with my kid. I would really appreciate any input.

> > > >

> > > > Thanks

> > > > is

> > > >

> > >

> >

> >

>

[Guest guest]

hi alexis,we have all our antifungals compounded through lee silsby. after you get your probiotic up, you may want to consider changing antifungals if you plan to continue. I know my kids didn't tolerate one of them (amp even though it was made "clean" and diflucan wasn't very effective for either of them....i was recently going through their files and found their 3day stool test and interestingly it showed for oliver he was resistant to both diflucan and sporanox (and this was done before he had started any antifungals). I am hoping the new one we just started which showed he was suseptible to will work (ketocanazole). anyway, hope your probiotics help! This has been the most effective for us -- alot of it and two times /

day.good luck! To: "mb12valtrex " <mb12valtrex > Sent: Wednesday, June 27, 2012 11:07 PM Subject: Re: Re: pandas/pans or yeast die off?? Badly need help with yeast

Best of luck is. I'm sure you will figure it out. Your son is lucky to have you. RuthSent from my iPhone

Thanks Ruth. We are awaiting results for mycoplasma, HHV6, lyme, ebv. I am gonna check for CMV also. Aso and dnase titers are negative twice already and we never got a positive culture. Vancomycin helped a little but we see the benefits after we complete the two week round and take the 1 week off. We have to start the round this weekend again and I will have to add the diflucan which either has caused a lot of problems from flaring clostridia or caused neuropathy itself. Whenever my kid is on diflucan, his sensory issues get worse. Few weeks ago he could not even open his hand and kept it like a fist all day. Once I started vanco, his symptoms improved. I will see how the next round of diflucan + vancomycin go. I always wonder if diflucan causes more issues because of the non-medicinal ingredients. I looked it up and commercial diflucan contains sucrose, sodium citrate dihydrate, citric acid anhydrous, sodium benzoate, titanium dioxide,

colloidal silicon dioxide, xanthan gum, and natural orange flavor. May be the natural orange flavor is an issue for my phenol sensitive kid. Does everyone get their diflucan compounded?

I am really hoping the custom probiotic will help my kid. The first day we started it, he seemed calmer. Second day he seemed to have crazy die off and third day was awesome. Today was the fourth day and was so so and he seems very silly but more verbal though. Will go up on the dose soon. I will read Dr Cunningham's work Ruth. He aslo had other immune workup done which was pretty much normal. But he is getting a whole bunch of other tests done also.

Thanks for help everyone.

is

> > > >

> > > > Hi everyone,

> > > >

> > > > I am still in the process of trying to figure out what my son's real issues are. I have been maintaining a log and very closely monitor everything but there is so much overlap in symptoms, it is hard to tell what the exact issue is. My son started prescription antifungals in october 2011 and since then he has been miserable. We attributed it to gcmaf, then clostridia, then pandas/pans and so on. Now recently whenever I took him off diflucan, he had a few good days. As soon as I would start him back on diflucan, he will have a couple of good days and then would have increased ocd, tantrums, acidity, worsening sensory issues. We have been using zithromax for his possible pandas diagnosis which has not been confirmed by any labs so far. That has caused yeast flares. OAT supports the yeast diagnosis as well. Since my kid was on zithromax, fluconazole and oral vanco, we started transdermal NAC to help the liver. It definitely calmed him

down and made him happy but yeast loved it. So we are constantly trying to promote his yeast with zithromax and vanco and he doesn't do well on antifungals. I am not even sure if he has pans or not. Whatever is happening this year has never happened before. He is off vanco and fluconazole this week and I decided to replace culturelle with custom probiotic. He received his first dose yesterday and was calm right away. Even had a two hour nap in the afternoon which never happens. Today was a rough day for him as he had stomach ache after lunch and dinner. I am only using the child scoop and he weighs 72 lbs. He got very chapped lips today, was thirsty and obviously had heartburn. Is this die off? Is there an overlap between pandas/pans symptoms and yeast die off? I didn't like nystatin and even diflucan. I am trying to gradually increase custom probiotics and see how that goes. I am tired of using diflucan and strongly believe that it has given my son

some form of neuropathy in his feet and hands. Now he is off diflucan for four days and today his writing was much better. I want to try naturals once again for yeast but he is very sensitive to phenols. I tried candidase but he couldn't tolerate it. We have used candex in the past without any negatives so I am thinking of giving it a try again. So should I continue with custom probiotic and candex and see if the combo helps? Can anyone help me figure this out that whether my son has pandas/pans or it is indeed the yeast beast? His workup indicates yeast and the onset of symptoms was after starting the antifungals. The reason I want to figure this out is because I want to stop using azithromycin as I don't see much benefit and get a very bad yeast flare.

> > > >

> > > > I know a lot of you use GSE for yeast but my son has serious phenol sensitivity. What other naturals are an option here? I am so tired of seeing my son miserable and really getting exhausted explaining to the relatives and friends what is going on with my kid. I would really appreciate any input.

> > > >

> > > > Thanks

> > > > is

> > > >

> > >

> >

> >

>

[Guest guest]

hi alexis,we have all our antifungals compounded through lee silsby. after you get your probiotic up, you may want to consider changing antifungals if you plan to continue. I know my kids didn't tolerate one of them (amp even though it was made "clean" and diflucan wasn't very effective for either of them....i was recently going through their files and found their 3day stool test and interestingly it showed for oliver he was resistant to both diflucan and sporanox (and this was done before he had started any antifungals). I am hoping the new one we just started which showed he was suseptible to will work (ketocanazole). anyway, hope your probiotics help! This has been the most effective for us -- alot of it and two times /

day.good luck! To: "mb12valtrex " <mb12valtrex > Sent: Wednesday, June 27, 2012 11:07 PM Subject: Re: Re: pandas/pans or yeast die off?? Badly need help with yeast

Best of luck is. I'm sure you will figure it out. Your son is lucky to have you. RuthSent from my iPhone

Thanks Ruth. We are awaiting results for mycoplasma, HHV6, lyme, ebv. I am gonna check for CMV also. Aso and dnase titers are negative twice already and we never got a positive culture. Vancomycin helped a little but we see the benefits after we complete the two week round and take the 1 week off. We have to start the round this weekend again and I will have to add the diflucan which either has caused a lot of problems from flaring clostridia or caused neuropathy itself. Whenever my kid is on diflucan, his sensory issues get worse. Few weeks ago he could not even open his hand and kept it like a fist all day. Once I started vanco, his symptoms improved. I will see how the next round of diflucan + vancomycin go. I always wonder if diflucan causes more issues because of the non-medicinal ingredients. I looked it up and commercial diflucan contains sucrose, sodium citrate dihydrate, citric acid anhydrous, sodium benzoate, titanium dioxide,

colloidal silicon dioxide, xanthan gum, and natural orange flavor. May be the natural orange flavor is an issue for my phenol sensitive kid. Does everyone get their diflucan compounded?

I am really hoping the custom probiotic will help my kid. The first day we started it, he seemed calmer. Second day he seemed to have crazy die off and third day was awesome. Today was the fourth day and was so so and he seems very silly but more verbal though. Will go up on the dose soon. I will read Dr Cunningham's work Ruth. He aslo had other immune workup done which was pretty much normal. But he is getting a whole bunch of other tests done also.

Thanks for help everyone.

is

> > > >

> > > > Hi everyone,

> > > >

> > > > I am still in the process of trying to figure out what my son's real issues are. I have been maintaining a log and very closely monitor everything but there is so much overlap in symptoms, it is hard to tell what the exact issue is. My son started prescription antifungals in october 2011 and since then he has been miserable. We attributed it to gcmaf, then clostridia, then pandas/pans and so on. Now recently whenever I took him off diflucan, he had a few good days. As soon as I would start him back on diflucan, he will have a couple of good days and then would have increased ocd, tantrums, acidity, worsening sensory issues. We have been using zithromax for his possible pandas diagnosis which has not been confirmed by any labs so far. That has caused yeast flares. OAT supports the yeast diagnosis as well. Since my kid was on zithromax, fluconazole and oral vanco, we started transdermal NAC to help the liver. It definitely calmed him

down and made him happy but yeast loved it. So we are constantly trying to promote his yeast with zithromax and vanco and he doesn't do well on antifungals. I am not even sure if he has pans or not. Whatever is happening this year has never happened before. He is off vanco and fluconazole this week and I decided to replace culturelle with custom probiotic. He received his first dose yesterday and was calm right away. Even had a two hour nap in the afternoon which never happens. Today was a rough day for him as he had stomach ache after lunch and dinner. I am only using the child scoop and he weighs 72 lbs. He got very chapped lips today, was thirsty and obviously had heartburn. Is this die off? Is there an overlap between pandas/pans symptoms and yeast die off? I didn't like nystatin and even diflucan. I am trying to gradually increase custom probiotics and see how that goes. I am tired of using diflucan and strongly believe that it has given my son

some form of neuropathy in his feet and hands. Now he is off diflucan for four days and today his writing was much better. I want to try naturals once again for yeast but he is very sensitive to phenols. I tried candidase but he couldn't tolerate it. We have used candex in the past without any negatives so I am thinking of giving it a try again. So should I continue with custom probiotic and candex and see if the combo helps? Can anyone help me figure this out that whether my son has pandas/pans or it is indeed the yeast beast? His workup indicates yeast and the onset of symptoms was after starting the antifungals. The reason I want to figure this out is because I want to stop using azithromycin as I don't see much benefit and get a very bad yeast flare.

> > > >

> > > > I know a lot of you use GSE for yeast but my son has serious phenol sensitivity. What other naturals are an option here? I am so tired of seeing my son miserable and really getting exhausted explaining to the relatives and friends what is going on with my kid. I would really appreciate any input.

> > > >

> > > > Thanks

> > > > is

> > > >

> > >

> >

> >

>

[Guest guest]

Hi alexis,yes, we are still doing the 3lac/vsl#3 combo. it seems the most effective for us. i even tried to bring it down a little for both of them and their behavior/stool worsened so we are keeping it as is for now....haven't retrialed cp11 with them either...maybe down the road will try that one again or another one... To: mb12valtrex Sent: Thursday, June 28, 2012 12:37 AM Subject: Re: pandas/pans or yeast die off?? Badly need help with yeast

Thanks . I will either try compounded fluconazole or switch to some other agent. There is a lot of resistance to fluconazole as it is the most widely used antifungal. I used it myself for a month for an infection several years ago and it made me miserable and didn't even take care of the issue. Our dan has suggested amp B as it is non-systemic and is effective usually. But just like your kids, my kid is very sensitive to meds as well as naturals. I have heard good things about ketoconazole from other parents. I hope it will work for your kids. Are you still using VSL 3/threelac or you switched to custom probiotics? I am really hoping that these probiotics will help my kid's gut. It is definitely causing a lot of die off but his moods are somewhat better than when he uses fluconazole. Hope we will all find answers for our kids.

is

> >> > > >

> >> > > > Hi everyone,

> >> > > >

> >> > > > I am still in the process of trying to figure out what my son's real issues are. I have been maintaining a log and very closely monitor everything but there is so much overlap in symptoms, it is hard to tell what the exact issue is. My son started prescription antifungals in october 2011 and since then he has been miserable. We attributed it to gcmaf, then clostridia, then pandas/pans and so on. Now recently whenever I took him off diflucan, he had a few good days. As soon as I would start him back on diflucan, he will have a couple of good days and then would have increased ocd, tantrums, acidity, worsening sensory issues. We have been using zithromax for his possible pandas diagnosis which has not been confirmed by any labs so far. That has caused yeast flares. OAT supports the yeast diagnosis as well. Since my kid was on zithromax, fluconazole and oral vanco, we started transdermal NAC to help the liver. It definitely

calmed him down and made

> him happy but yeast loved it. So we are constantly trying to promote his yeast with zithromax and vanco and he doesn't do well on antifungals. I am not even sure if he has pans or not. Whatever is happening this year has never happened before. He is off vanco and fluconazole this week and I decided to replace culturelle with custom probiotic. He received his first dose yesterday and was calm right away. Even had a two hour nap in the afternoon which never happens. Today was a rough day for him as he had stomach ache after lunch and dinner. I am only using the child scoop and he weighs 72 lbs. He got very chapped lips today, was thirsty and obviously had heartburn. Is this die off? Is there an overlap between pandas/pans symptoms and yeast die off? I didn't like nystatin and even diflucan. I am trying to gradually increase custom probiotics and see how that goes. I am tired of using diflucan and strongly believe that it has given my son some form

of

> neuropathy in his feet and hands. Now he is off diflucan for four days and today his writing was much better. I want to try naturals once again for yeast but he is very sensitive to phenols. I tried candidase but he couldn't tolerate it. We have used candex in the past without any negatives so I am thinking of giving it a try again. So should I continue with custom probiotic and candex and see if the combo helps? Can anyone help me figure this out that whether my son has pandas/pans or it is indeed the yeast beast? His workup indicates yeast and the onset of symptoms was after starting the antifungals. The reason I want to figure this out is because I want to stop using azithromycin as I don't see much benefit and get a very bad yeast flare.

> >> > > >

> >> > > > I know a lot of you use GSE for yeast but my son has serious phenol sensitivity. What other naturals are an option here? I am so tired of seeing my son miserable and really getting exhausted explaining to the relatives and friends what is going on with my kid. I would really appreciate any input.

> >> > > >

> >> > > > Thanks

> >> > > > is

> >> > > >

> >> > >

> >> >

> >> >

> >>

> >

> >

>

[Guest guest]

Hi alexis,yes, we are still doing the 3lac/vsl#3 combo. it seems the most effective for us. i even tried to bring it down a little for both of them and their behavior/stool worsened so we are keeping it as is for now....haven't retrialed cp11 with them either...maybe down the road will try that one again or another one... To: mb12valtrex Sent: Thursday, June 28, 2012 12:37 AM Subject: Re: pandas/pans or yeast die off?? Badly need help with yeast

Thanks . I will either try compounded fluconazole or switch to some other agent. There is a lot of resistance to fluconazole as it is the most widely used antifungal. I used it myself for a month for an infection several years ago and it made me miserable and didn't even take care of the issue. Our dan has suggested amp B as it is non-systemic and is effective usually. But just like your kids, my kid is very sensitive to meds as well as naturals. I have heard good things about ketoconazole from other parents. I hope it will work for your kids. Are you still using VSL 3/threelac or you switched to custom probiotics? I am really hoping that these probiotics will help my kid's gut. It is definitely causing a lot of die off but his moods are somewhat better than when he uses fluconazole. Hope we will all find answers for our kids.

is

> >> > > >

> >> > > > Hi everyone,

> >> > > >

> >> > > > I am still in the process of trying to figure out what my son's real issues are. I have been maintaining a log and very closely monitor everything but there is so much overlap in symptoms, it is hard to tell what the exact issue is. My son started prescription antifungals in october 2011 and since then he has been miserable. We attributed it to gcmaf, then clostridia, then pandas/pans and so on. Now recently whenever I took him off diflucan, he had a few good days. As soon as I would start him back on diflucan, he will have a couple of good days and then would have increased ocd, tantrums, acidity, worsening sensory issues. We have been using zithromax for his possible pandas diagnosis which has not been confirmed by any labs so far. That has caused yeast flares. OAT supports the yeast diagnosis as well. Since my kid was on zithromax, fluconazole and oral vanco, we started transdermal NAC to help the liver. It definitely

calmed him down and made

> him happy but yeast loved it. So we are constantly trying to promote his yeast with zithromax and vanco and he doesn't do well on antifungals. I am not even sure if he has pans or not. Whatever is happening this year has never happened before. He is off vanco and fluconazole this week and I decided to replace culturelle with custom probiotic. He received his first dose yesterday and was calm right away. Even had a two hour nap in the afternoon which never happens. Today was a rough day for him as he had stomach ache after lunch and dinner. I am only using the child scoop and he weighs 72 lbs. He got very chapped lips today, was thirsty and obviously had heartburn. Is this die off? Is there an overlap between pandas/pans symptoms and yeast die off? I didn't like nystatin and even diflucan. I am trying to gradually increase custom probiotics and see how that goes. I am tired of using diflucan and strongly believe that it has given my son some form

of

> neuropathy in his feet and hands. Now he is off diflucan for four days and today his writing was much better. I want to try naturals once again for yeast but he is very sensitive to phenols. I tried candidase but he couldn't tolerate it. We have used candex in the past without any negatives so I am thinking of giving it a try again. So should I continue with custom probiotic and candex and see if the combo helps? Can anyone help me figure this out that whether my son has pandas/pans or it is indeed the yeast beast? His workup indicates yeast and the onset of symptoms was after starting the antifungals. The reason I want to figure this out is because I want to stop using azithromycin as I don't see much benefit and get a very bad yeast flare.

> >> > > >

> >> > > > I know a lot of you use GSE for yeast but my son has serious phenol sensitivity. What other naturals are an option here? I am so tired of seeing my son miserable and really getting exhausted explaining to the relatives and friends what is going on with my kid. I would really appreciate any input.

> >> > > >

> >> > > > Thanks

> >> > > > is

> >> > > >

> >> > >

> >> >

> >> >

> >>

> >

> >

>

[Guest guest]

, I am glad vsl3/threelac is working for you. I used vsl 3 last year which

gave him formed stool and we had a lot of die off. But then I never used it

again because of the strep therm. I know it is a controversial subject. I then

wanted to give threelac but it does have some casein. So just to be on safe

side, I started d-lactate free CP. I wonder if it is as effective as vsl 3 for

the oxalate issue. Hope it will work.

is

> > >> > > >

> > >> > > > Hi everyone,

> > >> > > >

> > >> > > > I am still in the process of trying to figure out what my son's

real issues are. I have been maintaining a log and very closely monitor

everything but there is so much overlap in symptoms, it is hard to tell what the

exact issue is. My son started prescription antifungals in october 2011 and

since then he has been miserable. We attributed it to gcmaf, then clostridia,

then pandas/pans and so on. Now recently whenever I took him off diflucan, he

had a few good days. As soon as I would start him back on diflucan, he will have

a couple of good days and then would have increased ocd, tantrums, acidity,

worsening sensory issues. We have been using zithromax for his possible pandas

diagnosis which has not been confirmed by any labs so far. That has caused yeast

flares. OAT supports the yeast diagnosis as well. Since my kid was on zithromax,

fluconazole and oral vanco, we started transdermal NAC to help the liver. It

definitely calmed him down and

> made

> > him happy but yeast loved it. So we are constantly trying to promote his

yeast with zithromax and vanco and he doesn't do well on antifungals. I am not

even sure if he has pans or not. Whatever is happening this year has never

happened before. He is off vanco and fluconazole this week and I decided to

replace culturelle with custom probiotic. He received his first dose yesterday

and was calm right away. Even had a two hour nap in the afternoon which never

happens. Today was a rough day for him as he had stomach ache after lunch and

dinner. I am only using the child scoop and he weighs 72 lbs. He got very

chapped lips today, was thirsty and obviously had heartburn. Is this die off? Is

there an overlap between pandas/pans symptoms and yeast die off? I didn't like

nystatin and even diflucan. I am trying to gradually increase custom probiotics

and see how that goes. I am tired of using diflucan and strongly believe that it

has given my son some form of

> > neuropathy in his feet and hands. Now he is off diflucan for four days and

today his writing was much better. I want to try naturals once again for yeast

but he is very sensitive to phenols. I tried candidase but he couldn't tolerate

it. We have used candex in the past without any negatives so I am thinking of

giving it a try again. So should I continue with custom probiotic and candex and

see if the combo helps? Can anyone help me figure this out that whether my son

has pandas/pans or it is indeed the yeast beast? His workup indicates yeast and

the onset of symptoms was after starting the antifungals. The reason I want to

figure this out is because I want to stop using azithromycin as I don't see much

benefit and get a very bad yeast flare.

> > >> > > >

> > >> > > > I know a lot of you use GSE for yeast but my son has serious phenol

sensitivity. What other naturals are an option here? I am so tired of seeing my

son miserable and really getting exhausted explaining to the relatives and

friends what is going on with my kid. I would really appreciate any input.

> > >> > > >

> > >> > > > Thanks

> > >> > > > is

> > >> > > >

> > >> > >

> > >> >

> > >> >

> > >>

> > >

> > >

> >

>

[Guest guest]

Hi alexis, I am pretty sure 3lac has the same amout of casein as culturelle...i found this on leesilsby a few months ago but pls reverify. Also concerned still about the vsl and strep issue but I have brought this up to a couple practitioners and they've all recommended continuing esp since they seem to be doing well on it. Anyway hope the cp works well for you!!-- Sent from my Palm Pre

, I am glad vsl3/threelac is working for you. I used vsl 3 last year which gave him formed stool and we had a lot of die off. But then I never used it again because of the strep therm. I know it is a controversial subject. I then wanted to give threelac but it does have some casein. So just to be on safe side, I started d-lactate free CP. I wonder if it is as effective as vsl 3 for the oxalate issue. Hope it will work.

is

> > >> > > >

> > >> > > > Hi everyone,

> > >> > > >

> > >> > > > I am still in the process of trying to figure out what my son's real issues are. I have been maintaining a log and very closely monitor everything but there is so much overlap in symptoms, it is hard to tell what the exact issue is. My son started prescription antifungals in october 2011 and since then he has been miserable. We attributed it to gcmaf, then clostridia, then pandas/pans and so on. Now recently whenever I took him off diflucan, he had a few good days. As soon as I would start him back on diflucan, he will have a couple of good days and then would have increased ocd, tantrums, acidity, worsening sensory issues. We have been using zithromax for his possible pandas diagnosis which has not been confirmed by any labs so far. That has caused yeast flares. OAT supports the yeast diagnosis as well. Since my kid was on zithromax, fluconazole and oral vanco, we started transdermal NAC to help the liver. It definitely calmed him down and

> made

> > him happy but yeast loved it. So we are constantly trying to promote his yeast with zithromax and vanco and he doesn't do well on antifungals. I am not even sure if he has pans or not. Whatever is happening this year has never happened before. He is off vanco and fluconazole this week and I decided to replace culturelle with custom probiotic. He received his first dose yesterday and was calm right away. Even had a two hour nap in the afternoon which never happens. Today was a rough day for him as he had stomach ache after lunch and dinner. I am only using the child scoop and he weighs 72 lbs. He got very chapped lips today, was thirsty and obviously had heartburn. Is this die off? Is there an overlap between pandas/pans symptoms and yeast die off? I didn't like nystatin and even diflucan. I am trying to gradually increase custom probiotics and see how that goes. I am tired of using diflucan and strongly believe that it has given my son some form of

> > neuropathy in his feet and hands. Now he is off diflucan for four days and today his writing was much better. I want to try naturals once again for yeast but he is very sensitive to phenols. I tried candidase but he couldn't tolerate it. We have used candex in the past without any negatives so I am thinking of giving it a try again. So should I continue with custom probiotic and candex and see if the combo helps? Can anyone help me figure this out that whether my son has pandas/pans or it is indeed the yeast beast? His workup indicates yeast and the onset of symptoms was after starting the antifungals. The reason I want to figure this out is because I want to stop using azithromycin as I don't see much benefit and get a very bad yeast flare.

> > >> > > >

> > >> > > > I know a lot of you use GSE for yeast but my son has serious phenol sensitivity. What other naturals are an option here? I am so tired of seeing my son miserable and really getting exhausted explaining to the relatives and friends what is going on with my kid. I would really appreciate any input.

> > >> > > >

> > >> > > > Thanks

> > >> > > > is

> > >> > > >

> > >> > >

> > >> >

> > >> >

> > >>

> > >

> > >

> >

>

[Guest guest]

Hi alexis, I am pretty sure 3lac has the same amout of casein as culturelle...i found this on leesilsby a few months ago but pls reverify. Also concerned still about the vsl and strep issue but I have brought this up to a couple practitioners and they've all recommended continuing esp since they seem to be doing well on it. Anyway hope the cp works well for you!!-- Sent from my Palm Pre

, I am glad vsl3/threelac is working for you. I used vsl 3 last year which gave him formed stool and we had a lot of die off. But then I never used it again because of the strep therm. I know it is a controversial subject. I then wanted to give threelac but it does have some casein. So just to be on safe side, I started d-lactate free CP. I wonder if it is as effective as vsl 3 for the oxalate issue. Hope it will work.

is

> > >> > > >

> > >> > > > Hi everyone,

> > >> > > >

> > >> > > > I am still in the process of trying to figure out what my son's real issues are. I have been maintaining a log and very closely monitor everything but there is so much overlap in symptoms, it is hard to tell what the exact issue is. My son started prescription antifungals in october 2011 and since then he has been miserable. We attributed it to gcmaf, then clostridia, then pandas/pans and so on. Now recently whenever I took him off diflucan, he had a few good days. As soon as I would start him back on diflucan, he will have a couple of good days and then would have increased ocd, tantrums, acidity, worsening sensory issues. We have been using zithromax for his possible pandas diagnosis which has not been confirmed by any labs so far. That has caused yeast flares. OAT supports the yeast diagnosis as well. Since my kid was on zithromax, fluconazole and oral vanco, we started transdermal NAC to help the liver. It definitely calmed him down and

> made

> > him happy but yeast loved it. So we are constantly trying to promote his yeast with zithromax and vanco and he doesn't do well on antifungals. I am not even sure if he has pans or not. Whatever is happening this year has never happened before. He is off vanco and fluconazole this week and I decided to replace culturelle with custom probiotic. He received his first dose yesterday and was calm right away. Even had a two hour nap in the afternoon which never happens. Today was a rough day for him as he had stomach ache after lunch and dinner. I am only using the child scoop and he weighs 72 lbs. He got very chapped lips today, was thirsty and obviously had heartburn. Is this die off? Is there an overlap between pandas/pans symptoms and yeast die off? I didn't like nystatin and even diflucan. I am trying to gradually increase custom probiotics and see how that goes. I am tired of using diflucan and strongly believe that it has given my son some form of

> > neuropathy in his feet and hands. Now he is off diflucan for four days and today his writing was much better. I want to try naturals once again for yeast but he is very sensitive to phenols. I tried candidase but he couldn't tolerate it. We have used candex in the past without any negatives so I am thinking of giving it a try again. So should I continue with custom probiotic and candex and see if the combo helps? Can anyone help me figure this out that whether my son has pandas/pans or it is indeed the yeast beast? His workup indicates yeast and the onset of symptoms was after starting the antifungals. The reason I want to figure this out is because I want to stop using azithromycin as I don't see much benefit and get a very bad yeast flare.

> > >> > > >

> > >> > > > I know a lot of you use GSE for yeast but my son has serious phenol sensitivity. What other naturals are an option here? I am so tired of seeing my son miserable and really getting exhausted explaining to the relatives and friends what is going on with my kid. I would really appreciate any input.

> > >> > > >

> > >> > > > Thanks

> > >> > > > is

> > >> > > >

> > >> > >

> > >> >

> > >> >

> > >>

> > >

> > >

> >

>