Re: pandas/pans or yeast die off?? Badly need help with yeast

June 25, 2012

My son has Pandas and when we treat yeast we have to go very slow. If I'm aggressive we have a Pandas flare with tantrums, aggression and OCD'S. My son used to have phenol issues but GSE he does ok with. It helps with both the Pandas and yeast. He is also on Cefdinir long term which is working for now. We hope to fade it out but I'm scarred!Sent from my iPhone

Hi everyone,

I am still in the process of trying to figure out what my son's real issues are. I have been maintaining a log and very closely monitor everything but there is so much overlap in symptoms, it is hard to tell what the exact issue is. My son started prescription antifungals in october 2011 and since then he has been miserable. We attributed it to gcmaf, then clostridia, then pandas/pans and so on. Now recently whenever I took him off diflucan, he had a few good days. As soon as I would start him back on diflucan, he will have a couple of good days and then would have increased ocd, tantrums, acidity, worsening sensory issues. We have been using zithromax for his possible pandas diagnosis which has not been confirmed by any labs so far. That has caused yeast flares. OAT supports the yeast diagnosis as well. Since my kid was on zithromax, fluconazole and oral vanco, we started transdermal NAC to help the liver. It definitely calmed him down and made him happy but yeast loved it. So we are constantly trying to promote his yeast with zithromax and vanco and he doesn't do well on antifungals. I am not even sure if he has pans or not. Whatever is happening this year has never happened before. He is off vanco and fluconazole this week and I decided to replace culturelle with custom probiotic. He received his first dose yesterday and was calm right away. Even had a two hour nap in the afternoon which never happens. Today was a rough day for him as he had stomach ache after lunch and dinner. I am only using the child scoop and he weighs 72 lbs. He got very chapped lips today, was thirsty and obviously had heartburn. Is this die off? Is there an overlap between pandas/pans symptoms and yeast die off? I didn't like nystatin and even diflucan. I am trying to gradually increase custom probiotics and see how that goes. I am tired of using diflucan and strongly believe that it has given my son some form of neuropathy in his feet and hands. Now he is off diflucan

for four days and today his writing was much better. I want to try naturals once again for yeast but he is very sensitive to phenols. I tried candidase but he couldn't tolerate it. We have used candex in the past without any negatives so I am thinking of giving it a try again. So should I continue with custom probiotic and candex and see if the combo helps? Can anyone help me figure this out that whether my son has pandas/pans or it is indeed the yeast beast? His workup indicates yeast and the onset of symptoms was after starting the antifungals. The reason I want to figure this out is because I want to stop using azithromycin as I don't see much benefit and get a very bad yeast flare.

I know a lot of you use GSE for yeast but my son has serious phenol sensitivity. What other naturals are an option here? I am so tired of seeing my son miserable and really getting exhausted explaining to the relatives and friends what is going on with my kid. I would really appreciate any input.

Thanks

is

June 26, 2012

Have you guys tried the candida diet?-Tammy To: "mb12valtrex " <mb12valtrex > Sent: Tuesday, June 26, 2012 12:15 AM Subject: Re: pandas/pans or yeast die off?? Badly need help with yeast

My son has Pandas and when we treat yeast we have to go very slow. If I'm aggressive we have a Pandas flare with tantrums, aggression and OCD'S. My son used to have phenol issues but GSE he does ok with. It helps with both the Pandas and yeast. He is also on Cefdinir long term which is working for now. We hope to fade it out but I'm scarred!Sent from my iPhone

Hi everyone,

I am still in the process of trying to figure out what my son's real issues are. I have been maintaining a log and very closely monitor everything but there is so much overlap in symptoms, it is hard to tell what the exact issue is. My son started prescription antifungals in october 2011 and since then he has been miserable. We attributed it to gcmaf, then clostridia, then pandas/pans and so on. Now recently whenever I took him off diflucan, he had a few good days. As soon as I would start him back on diflucan, he will have a couple of good days and then would have increased ocd, tantrums, acidity, worsening sensory issues. We have been using zithromax for his possible pandas diagnosis which has not been confirmed by any labs so far. That has caused yeast flares. OAT supports the yeast diagnosis as well. Since my kid was on zithromax, fluconazole and oral vanco, we started transdermal NAC to help the liver. It definitely calmed him down and made him

happy but yeast loved it. So we are constantly trying to promote his yeast with zithromax and vanco and he doesn't do well on antifungals. I am not even sure if he has pans or not. Whatever is happening this year has never happened before. He is off vanco and fluconazole this week and I decided to replace culturelle with custom probiotic. He received his first dose yesterday and was calm right away. Even had a two hour nap in the afternoon which never happens. Today was a rough day for him as he had stomach ache after lunch and dinner. I am only using the child scoop and he weighs 72 lbs. He got very chapped lips today, was thirsty and obviously had heartburn. Is this die off? Is there an overlap between pandas/pans symptoms and yeast die off? I didn't like nystatin and even diflucan. I am trying to gradually increase custom probiotics and see how that goes. I am tired of using diflucan and strongly believe that it has given my son some form of neuropathy in his feet and hands.

Now he is off diflucan

for four days and today his writing was much better. I want to try naturals once again for yeast but he is very sensitive to phenols. I tried candidase but he couldn't tolerate it. We have used candex in the past without any negatives so I am thinking of giving it a try again. So should I continue with custom probiotic and candex and see if the combo helps? Can anyone help me figure this out that whether my son has pandas/pans or it is indeed the yeast beast? His workup indicates yeast and the onset of symptoms was after starting the antifungals. The reason I want to figure this out is because I want to stop using azithromycin as I don't see much benefit and get a very bad yeast flare.

I know a lot of you use GSE for yeast but my son has serious phenol sensitivity. What other naturals are an option here? I am so tired of seeing my son miserable and really getting exhausted explaining to the relatives and friends what is going on with my kid. I would really appreciate any input.

Thanks

is

June 26, 2012

Have you guys tried the candida diet?-Tammy To: "mb12valtrex " <mb12valtrex > Sent: Tuesday, June 26, 2012 12:15 AM Subject: Re: pandas/pans or yeast die off?? Badly need help with yeast

My son has Pandas and when we treat yeast we have to go very slow. If I'm aggressive we have a Pandas flare with tantrums, aggression and OCD'S. My son used to have phenol issues but GSE he does ok with. It helps with both the Pandas and yeast. He is also on Cefdinir long term which is working for now. We hope to fade it out but I'm scarred!Sent from my iPhone

Hi everyone,

I am still in the process of trying to figure out what my son's real issues are. I have been maintaining a log and very closely monitor everything but there is so much overlap in symptoms, it is hard to tell what the exact issue is. My son started prescription antifungals in october 2011 and since then he has been miserable. We attributed it to gcmaf, then clostridia, then pandas/pans and so on. Now recently whenever I took him off diflucan, he had a few good days. As soon as I would start him back on diflucan, he will have a couple of good days and then would have increased ocd, tantrums, acidity, worsening sensory issues. We have been using zithromax for his possible pandas diagnosis which has not been confirmed by any labs so far. That has caused yeast flares. OAT supports the yeast diagnosis as well. Since my kid was on zithromax, fluconazole and oral vanco, we started transdermal NAC to help the liver. It definitely calmed him down and made him

happy but yeast loved it. So we are constantly trying to promote his yeast with zithromax and vanco and he doesn't do well on antifungals. I am not even sure if he has pans or not. Whatever is happening this year has never happened before. He is off vanco and fluconazole this week and I decided to replace culturelle with custom probiotic. He received his first dose yesterday and was calm right away. Even had a two hour nap in the afternoon which never happens. Today was a rough day for him as he had stomach ache after lunch and dinner. I am only using the child scoop and he weighs 72 lbs. He got very chapped lips today, was thirsty and obviously had heartburn. Is this die off? Is there an overlap between pandas/pans symptoms and yeast die off? I didn't like nystatin and even diflucan. I am trying to gradually increase custom probiotics and see how that goes. I am tired of using diflucan and strongly believe that it has given my son some form of neuropathy in his feet and hands.

Now he is off diflucan

for four days and today his writing was much better. I want to try naturals once again for yeast but he is very sensitive to phenols. I tried candidase but he couldn't tolerate it. We have used candex in the past without any negatives so I am thinking of giving it a try again. So should I continue with custom probiotic and candex and see if the combo helps? Can anyone help me figure this out that whether my son has pandas/pans or it is indeed the yeast beast? His workup indicates yeast and the onset of symptoms was after starting the antifungals. The reason I want to figure this out is because I want to stop using azithromycin as I don't see much benefit and get a very bad yeast flare.

I know a lot of you use GSE for yeast but my son has serious phenol sensitivity. What other naturals are an option here? I am so tired of seeing my son miserable and really getting exhausted explaining to the relatives and friends what is going on with my kid. I would really appreciate any input.

Thanks

is

June 26, 2012

We started to go up after one week. We did one scoop in the am and one in the

pm. that was good for some time but when we got bad bacteria, c diff, yeast,

and diahrrea we went up again to normalize stool. When we are on abx, we go way

up. These are the best probiotics for my son. Go slow, wait at least 4 or 5

days between increasing and see what works best for your son.

LDN was for autoimmune issues and major GI issues and inflammation. We are

hypothyroid, always high inflammation in GI and low seratonin. We are only on

3/4 pill at 1.5 mg and stools have normalized and he is happier and more social

. We've only been on it for less than 2 weeks. I am hopeful about this one!

> > >

> > > Hi everyone,

> > >

> > > I am still in the process of trying to figure out what my son's real

issues are. I have been maintaining a log and very closely monitor everything

but there is so much overlap in symptoms, it is hard to tell what the exact

issue is. My son started prescription antifungals in october 2011 and since then

he has been miserable. We attributed it to gcmaf, then clostridia, then

pandas/pans and so on. Now recently whenever I took him off diflucan, he had a

few good days. As soon as I would start him back on diflucan, he will have a

couple of good days and then would have increased ocd, tantrums, acidity,

worsening sensory issues. We have been using zithromax for his possible pandas

diagnosis which has not been confirmed by any labs so far. That has caused yeast

flares. OAT supports the yeast diagnosis as well. Since my kid was on zithromax,

fluconazole and oral vanco, we started transdermal NAC to help the liver. It

definitely calmed him down and made him happy but yeast loved it. So we are

constantly trying to promote his yeast with zithromax and vanco and he doesn't

do well on antifungals. I am not even sure if he has pans or not. Whatever is

happening this year has never happened before. He is off vanco and fluconazole

this week and I decided to replace culturelle with custom probiotic. He received

his first dose yesterday and was calm right away. Even had a two hour nap in the

afternoon which never happens. Today was a rough day for him as he had stomach

ache after lunch and dinner. I am only using the child scoop and he weighs 72

lbs. He got very chapped lips today, was thirsty and obviously had heartburn. Is

this die off? Is there an overlap between pandas/pans symptoms and yeast die

off? I didn't like nystatin and even diflucan. I am trying to gradually increase

custom probiotics and see how that goes. I am tired of using diflucan and

strongly believe that it has given my son some form of neuropathy in his feet

and hands. Now he is off diflucan for four days and today his writing was much

better. I want to try naturals once again for yeast but he is very sensitive to

phenols. I tried candidase but he couldn't tolerate it. We have used candex in

the past without any negatives so I am thinking of giving it a try again. So

should I continue with custom probiotic and candex and see if the combo helps?

Can anyone help me figure this out that whether my son has pandas/pans or it is

indeed the yeast beast? His workup indicates yeast and the onset of symptoms was

after starting the antifungals. The reason I want to figure this out is because

I want to stop using azithromycin as I don't see much benefit and get a very bad

yeast flare.

> > >

> > > I know a lot of you use GSE for yeast but my son has serious phenol

sensitivity. What other naturals are an option here? I am so tired of seeing my

son miserable and really getting exhausted explaining to the relatives and

friends what is going on with my kid. I would really appreciate any input.

> > >

> > > Thanks

> > > is

> > >

> >

>

June 27, 2012

Thanks Ruth. I am lucky to have all of you for support.

is

> > > > > >

> > > > > > Hi everyone,

> > > > > >

> > > > > > I am still in the process of trying to figure out what my son's real