Guest guest Posted July 2, 2012 Report Share Posted July 2, 2012 is,Here's a couple of pretty decent b's.http://www.autismcoach.com/product_p/hp-007.htm This one looks good but Idk if it's more folinic than you should have because you supplement with the Thorne.They also carry their own 5mthf-cheaper than Thorne's.http://www.autismcoach.com/Methylated_B_Vitamins_Capsules_p/ac-026.htm Here's another with the 5 mthf, but it doesn't supple ALL the B's.They also carry a corn-free Liquid Vitamin C-Tammy To: mb12valtrex Sent: Monday, July 2, 2012 8:48 PM Subject: Re: Son trying to hide in closets, laundry room and hiding face under pillows Thanks . My uncle suggested photophobia also. Some other signs also suggest photobia in my son as he starts squinting also. When he tries to go in the closets, he has a very happy silly look on his face. Initially I thought that this was related to yeasty, silly behavior. But then I saw him lying upside down on sofa and he keeps pressing on his eyes whenever in stress. These symptoms are episodic. Mostly come when he is on antifungals or some other treatment. I have been looking into vision therapy. But of course it is expensive and still considered controversial. And I keep thinking that if it indeed is related to some pathogen, it will not just get better with therapy. We have to start antivirals in the next few weeks and I am hoping that it will help. I looked at your suggestions for the supplements and I like the list. I loved the curcumin last year when I first started it but then my son's phenol sensitivity got worse and I couldn't use it any more. He generally doesn't do well on the enzymes and I had to stop the no phenol and phenol assist and only use trienza sparingly now. Probiotics are helping. I am still looking for a good CoQ10/ubiquinol. I used Dr Mercola's ubiquinol and I don't like the product as it has citrus extract and my son was clearly miserable because of it and the capsules are not very good quality. If you know a good brand, let me know. I love the thorne 5mthf and clearly saw improvement with it. Still looking for a good multivitamin or b-complex. Thanks again for your help. is > > > > Hi everyone, > > > > I started custom probiotics this week and my son is going thru some changes. His moods are overall better. He is working much better during therapy and sessions and is making more spontaneous requests. Still starts crying when he has to wait for his meals. I am observing some other behaviors as well. He keeps going into my walk-in closet and closes the door for a second then comes out smiling. He is spending some time in the dark laundry room also. He did this before also when he was on gcmaf and nystatin and it was the same time I was seeing improvement also. I am wondering if this is a sign of yeast die off or custom probiotics is somehow helping with the viruses also. He is engaging in visual stimms also. A couple hours ago, he started squinting again which he has done several times in the past mostly when he is on antiyeast treatments, both naturals and prescriptions. He overall is relaxed and is always trying to make funny sounds, laughs a lot and > asks me to be a horse all day so he can ride on me. When I sit down with him for therapy, he doesn't like the idea if I say we are gonna do some work now. But then if I make it interesting, he cooperates. He did exceptional with the puzzles today. Can anyone help me understand what he is going thru. Are probiotics helping with viruses also or it is just the yeast die off? > > Any input will be appreciated. > > > > is > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2012 Report Share Posted July 2, 2012 is,Here's a couple of pretty decent b's.http://www.autismcoach.com/product_p/hp-007.htm This one looks good but Idk if it's more folinic than you should have because you supplement with the Thorne.They also carry their own 5mthf-cheaper than Thorne's.http://www.autismcoach.com/Methylated_B_Vitamins_Capsules_p/ac-026.htm Here's another with the 5 mthf, but it doesn't supple ALL the B's.They also carry a corn-free Liquid Vitamin C-Tammy To: mb12valtrex Sent: Monday, July 2, 2012 8:48 PM Subject: Re: Son trying to hide in closets, laundry room and hiding face under pillows Thanks . My uncle suggested photophobia also. Some other signs also suggest photobia in my son as he starts squinting also. When he tries to go in the closets, he has a very happy silly look on his face. Initially I thought that this was related to yeasty, silly behavior. But then I saw him lying upside down on sofa and he keeps pressing on his eyes whenever in stress. These symptoms are episodic. Mostly come when he is on antifungals or some other treatment. I have been looking into vision therapy. But of course it is expensive and still considered controversial. And I keep thinking that if it indeed is related to some pathogen, it will not just get better with therapy. We have to start antivirals in the next few weeks and I am hoping that it will help. I looked at your suggestions for the supplements and I like the list. I loved the curcumin last year when I first started it but then my son's phenol sensitivity got worse and I couldn't use it any more. He generally doesn't do well on the enzymes and I had to stop the no phenol and phenol assist and only use trienza sparingly now. Probiotics are helping. I am still looking for a good CoQ10/ubiquinol. I used Dr Mercola's ubiquinol and I don't like the product as it has citrus extract and my son was clearly miserable because of it and the capsules are not very good quality. If you know a good brand, let me know. I love the thorne 5mthf and clearly saw improvement with it. Still looking for a good multivitamin or b-complex. Thanks again for your help. is > > > > Hi everyone, > > > > I started custom probiotics this week and my son is going thru some changes. His moods are overall better. He is working much better during therapy and sessions and is making more spontaneous requests. Still starts crying when he has to wait for his meals. I am observing some other behaviors as well. He keeps going into my walk-in closet and closes the door for a second then comes out smiling. He is spending some time in the dark laundry room also. He did this before also when he was on gcmaf and nystatin and it was the same time I was seeing improvement also. I am wondering if this is a sign of yeast die off or custom probiotics is somehow helping with the viruses also. He is engaging in visual stimms also. A couple hours ago, he started squinting again which he has done several times in the past mostly when he is on antiyeast treatments, both naturals and prescriptions. He overall is relaxed and is always trying to make funny sounds, laughs a lot and > asks me to be a horse all day so he can ride on me. When I sit down with him for therapy, he doesn't like the idea if I say we are gonna do some work now. But then if I make it interesting, he cooperates. He did exceptional with the puzzles today. Can anyone help me understand what he is going thru. Are probiotics helping with viruses also or it is just the yeast die off? > > Any input will be appreciated. > > > > is > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2012 Report Share Posted July 3, 2012 Have you looked into irlen lenses. If this is a completely new behaviour I would be thinking it is some pathogen. That is the cause. Have you considered parasites? It is full moon today and great time to start treatment,if this only started in past few days I would suspect parasitesLet your email find you with BlackBerry® from VodafoneSender: mb12valtrex Date: Tue, 03 Jul 2012 00:48:06 -0000To: <mb12valtrex >ReplyTo: mb12valtrex Subject: Re: Son trying to hide in closets, laundry room and hiding face under pillows Thanks . My uncle suggested photophobia also. Some other signs also suggest photobia in my son as he starts squinting also. When he tries to go in the closets, he has a very happy silly look on his face. Initially I thought that this was related to yeasty, silly behavior. But then I saw him lying upside down on sofa and he keeps pressing on his eyes whenever in stress. These symptoms are episodic. Mostly come when he is on antifungals or some other treatment. I have been looking into vision therapy. But of course it is expensive and still considered controversial. And I keep thinking that if it indeed is related to some pathogen, it will not just get better with therapy. We have to start antivirals in the next few weeks and I am hoping that it will help. I looked at your suggestions for the supplements and I like the list. I loved the curcumin last year when I first started it but then my son's phenol sensitivity got worse and I couldn't use it any more. He generally doesn't do well on the enzymes and I had to stop the no phenol and phenol assist and only use trienza sparingly now. Probiotics are helping. I am still looking for a good CoQ10/ubiquinol. I used Dr Mercola's ubiquinol and I don't like the product as it has citrus extract and my son was clearly miserable because of it and the capsules are not very good quality. If you know a good brand, let me know. I love the thorne 5mthf and clearly saw improvement with it. Still looking for a good multivitamin or b-complex. Thanks again for your help.is> >> > Hi everyone,> > > > I started custom probiotics this week and my son is going thru some changes. His moods are overall better. He is working much better during therapy and sessions and is making more spontaneous requests. Still starts crying when he has to wait for his meals. I am observing some other behaviors as well. He keeps going into my walk-in closet and closes the door for a second then comes out smiling. He is spending some time in the dark laundry room also. He did this before also when he was on gcmaf and nystatin and it was the same time I was seeing improvement also. I am wondering if this is a sign of yeast die off or custom probiotics is somehow helping with the viruses also. He is engaging in visual stimms also. A couple hours ago, he started squinting again which he has done several times in the past mostly when he is on antiyeast treatments, both naturals and prescriptions. He overall is relaxed and is always trying to make funny sounds, laughs a lot and> asks me to be a horse all day so he can ride on me. When I sit down with him for therapy, he doesn't like the idea if I say we are gonna do some work now. But then if I make it interesting, he cooperates. He did exceptional with the puzzles today. Can anyone help me understand what he is going thru. Are probiotics helping with viruses also or it is just the yeast die off?> > Any input will be appreciated.> > > > is> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2012 Report Share Posted July 3, 2012 Have you looked into irlen lenses. If this is a completely new behaviour I would be thinking it is some pathogen. That is the cause. Have you considered parasites? It is full moon today and great time to start treatment,if this only started in past few days I would suspect parasitesLet your email find you with BlackBerry® from VodafoneSender: mb12valtrex Date: Tue, 03 Jul 2012 00:48:06 -0000To: <mb12valtrex >ReplyTo: mb12valtrex Subject: Re: Son trying to hide in closets, laundry room and hiding face under pillows Thanks . My uncle suggested photophobia also. Some other signs also suggest photobia in my son as he starts squinting also. When he tries to go in the closets, he has a very happy silly look on his face. Initially I thought that this was related to yeasty, silly behavior. But then I saw him lying upside down on sofa and he keeps pressing on his eyes whenever in stress. These symptoms are episodic. Mostly come when he is on antifungals or some other treatment. I have been looking into vision therapy. But of course it is expensive and still considered controversial. And I keep thinking that if it indeed is related to some pathogen, it will not just get better with therapy. We have to start antivirals in the next few weeks and I am hoping that it will help. I looked at your suggestions for the supplements and I like the list. I loved the curcumin last year when I first started it but then my son's phenol sensitivity got worse and I couldn't use it any more. He generally doesn't do well on the enzymes and I had to stop the no phenol and phenol assist and only use trienza sparingly now. Probiotics are helping. I am still looking for a good CoQ10/ubiquinol. I used Dr Mercola's ubiquinol and I don't like the product as it has citrus extract and my son was clearly miserable because of it and the capsules are not very good quality. If you know a good brand, let me know. I love the thorne 5mthf and clearly saw improvement with it. Still looking for a good multivitamin or b-complex. Thanks again for your help.is> >> > Hi everyone,> > > > I started custom probiotics this week and my son is going thru some changes. His moods are overall better. He is working much better during therapy and sessions and is making more spontaneous requests. Still starts crying when he has to wait for his meals. I am observing some other behaviors as well. He keeps going into my walk-in closet and closes the door for a second then comes out smiling. He is spending some time in the dark laundry room also. He did this before also when he was on gcmaf and nystatin and it was the same time I was seeing improvement also. I am wondering if this is a sign of yeast die off or custom probiotics is somehow helping with the viruses also. He is engaging in visual stimms also. A couple hours ago, he started squinting again which he has done several times in the past mostly when he is on antiyeast treatments, both naturals and prescriptions. He overall is relaxed and is always trying to make funny sounds, laughs a lot and> asks me to be a horse all day so he can ride on me. When I sit down with him for therapy, he doesn't like the idea if I say we are gonna do some work now. But then if I make it interesting, he cooperates. He did exceptional with the puzzles today. Can anyone help me understand what he is going thru. Are probiotics helping with viruses also or it is just the yeast die off?> > Any input will be appreciated.> > > > is> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2012 Report Share Posted July 3, 2012 Yes to what said, my four year old used to squint his eyes too, hide in wardrobes and our small storage cupboard under the stairs and like uo son he would ve a little giggle afterward.Started parasite protocol last mth and all the above stopped(still ve the spinning of any and every object he can put his hands on)He also had this ehhhh verbal stim which also has gone he now still verbally stims but he is sounding words out Sent from my iPhone Have you looked into irlen lenses. If this is a completely new behaviour I would be thinking it is some pathogen. That is the cause. Have you considered parasites? It is full moon today and great time to start treatment,if this only started in past few days I would suspect parasitesLet your email find you with BlackBerry® from Vodafone Sender: mb12valtrex Date: Tue, 03 Jul 2012 00:48:06 -0000To: <mb12valtrex >ReplyTo: mb12valtrex Subject: Re: Son trying to hide in closets, laundry room and hiding face under pillows Thanks . My uncle suggested photophobia also. Some other signs also suggest photobia in my son as he starts squinting also. When he tries to go in the closets, he has a very happy silly look on his face. Initially I thought that this was related to yeasty, silly behavior. But then I saw him lying upside down on sofa and he keeps pressing on his eyes whenever in stress. These symptoms are episodic. Mostly come when he is on antifungals or some other treatment. I have been looking into vision therapy. But of course it is expensive and still considered controversial. And I keep thinking that if it indeed is related to some pathogen, it will not just get better with therapy. We have to start antivirals in the next few weeks and I am hoping that it will help. I looked at your suggestions for the supplements and I like the list. I loved the curcumin last year when I first started it but then my son's phenol sensitivity got worse and I couldn't use it any more. He generally doesn't do well on the enzymes and I had to stop the no phenol and phenol assist and only use trienza sparingly now. Probiotics are helping. I am still looking for a good CoQ10/ubiquinol. I used Dr Mercola's ubiquinol and I don't like the product as it has citrus extract and my son was clearly miserable because of it and the capsules are not very good quality. If you know a good brand, let me know. I love the thorne 5mthf and clearly saw improvement with it. Still looking for a good multivitamin or b-complex. Thanks again for your help. is > > > > Hi everyone, > > > > I started custom probiotics this week and my son is going thru some changes. His moods are overall better. He is working much better during therapy and sessions and is making more spontaneous requests. Still starts crying when he has to wait for his meals. I am observing some other behaviors as well. He keeps going into my walk-in closet and closes the door for a second then comes out smiling. He is spending some time in the dark laundry room also. He did this before also when he was on gcmaf and nystatin and it was the same time I was seeing improvement also. I am wondering if this is a sign of yeast die off or custom probiotics is somehow helping with the viruses also. He is engaging in visual stimms also. A couple hours ago, he started squinting again which he has done several times in the past mostly when he is on antiyeast treatments, both naturals and prescriptions. He overall is relaxed and is always trying to make funny sounds, laughs a lot and > asks me to be a horse all day so he can ride on me. When I sit down with him for therapy, he doesn't like the idea if I say we are gonna do some work now. But then if I make it interesting, he cooperates. He did exceptional with the puzzles today. Can anyone help me understand what he is going thru. Are probiotics helping with viruses also or it is just the yeast die off? > > Any input will be appreciated. > > > > is > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2012 Report Share Posted July 3, 2012 Yes to what said, my four year old used to squint his eyes too, hide in wardrobes and our small storage cupboard under the stairs and like uo son he would ve a little giggle afterward.Started parasite protocol last mth and all the above stopped(still ve the spinning of any and every object he can put his hands on)He also had this ehhhh verbal stim which also has gone he now still verbally stims but he is sounding words out Sent from my iPhone Have you looked into irlen lenses. If this is a completely new behaviour I would be thinking it is some pathogen. That is the cause. Have you considered parasites? It is full moon today and great time to start treatment,if this only started in past few days I would suspect parasitesLet your email find you with BlackBerry® from Vodafone Sender: mb12valtrex Date: Tue, 03 Jul 2012 00:48:06 -0000To: <mb12valtrex >ReplyTo: mb12valtrex Subject: Re: Son trying to hide in closets, laundry room and hiding face under pillows Thanks . My uncle suggested photophobia also. Some other signs also suggest photobia in my son as he starts squinting also. When he tries to go in the closets, he has a very happy silly look on his face. Initially I thought that this was related to yeasty, silly behavior. But then I saw him lying upside down on sofa and he keeps pressing on his eyes whenever in stress. These symptoms are episodic. Mostly come when he is on antifungals or some other treatment. I have been looking into vision therapy. But of course it is expensive and still considered controversial. And I keep thinking that if it indeed is related to some pathogen, it will not just get better with therapy. We have to start antivirals in the next few weeks and I am hoping that it will help. I looked at your suggestions for the supplements and I like the list. I loved the curcumin last year when I first started it but then my son's phenol sensitivity got worse and I couldn't use it any more. He generally doesn't do well on the enzymes and I had to stop the no phenol and phenol assist and only use trienza sparingly now. Probiotics are helping. I am still looking for a good CoQ10/ubiquinol. I used Dr Mercola's ubiquinol and I don't like the product as it has citrus extract and my son was clearly miserable because of it and the capsules are not very good quality. If you know a good brand, let me know. I love the thorne 5mthf and clearly saw improvement with it. Still looking for a good multivitamin or b-complex. Thanks again for your help. is > > > > Hi everyone, > > > > I started custom probiotics this week and my son is going thru some changes. His moods are overall better. He is working much better during therapy and sessions and is making more spontaneous requests. Still starts crying when he has to wait for his meals. I am observing some other behaviors as well. He keeps going into my walk-in closet and closes the door for a second then comes out smiling. He is spending some time in the dark laundry room also. He did this before also when he was on gcmaf and nystatin and it was the same time I was seeing improvement also. I am wondering if this is a sign of yeast die off or custom probiotics is somehow helping with the viruses also. He is engaging in visual stimms also. A couple hours ago, he started squinting again which he has done several times in the past mostly when he is on antiyeast treatments, both naturals and prescriptions. He overall is relaxed and is always trying to make funny sounds, laughs a lot and > asks me to be a horse all day so he can ride on me. When I sit down with him for therapy, he doesn't like the idea if I say we are gonna do some work now. But then if I make it interesting, he cooperates. He did exceptional with the puzzles today. Can anyone help me understand what he is going thru. Are probiotics helping with viruses also or it is just the yeast die off? > > Any input will be appreciated. > > > > is > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2012 Report Share Posted July 3, 2012 is, I always keep oxalates in the back of my mind but I dont see any indications of Tom having problem with it so we dont do the diet and I dont hold back C. We dont need the high doses of C any longer but it's always in the house for coughs/colds. Anyway, as far as mixing supps, I use a liquid multi. (Trace Minerals. Not the greatest. Some of the inactive ingredients make me squirmy) BUT, it's one that my littlest guy will actually take, its one we can afford, There's not a sh**load of b -12 in it, it's got the trace minerals,and the taste makes it easy mix in seperate supps. So with that said, we use that and add in our own liquid A, E, D, and iodine. (C if we need to). We've been doing really good on just the multi and melatonin for sleep. He takes small dips here and there so occasionally he needs the extra support. As far as your little guy hiding in the closet, do you think it's possible that he just discovered something new and fun to do? He's not doing it when he's upset or scared so maybe he's just having a good time. Tom went through a phase of hiding /sneaking up on people and sneaking BY people just to see if he could do it. It might just be typical little boy behavior & be has found a fun place to sit and imagine and be alone. Just a thought. How have his pandas/pans issues been? And how was your trip? Tammy Sent from my Kindle Fire Sent: Mon Jul 02 22:26:25 EDT 2012 To: mb12valtrex Subject: Re: Son trying to hide in closets, laundry room and hiding face under pillows Thanks Tammy. Vitamin C looks really good. If you use B-complex separately, how do u supplement vitamin A,E,K and minerals? I was thinking to try the brainchild nutritionals capsules(was warned against liquid as a few batches had mold) but they are so expensive. Have u used the corn fee liquid vitamin C? I know that you love vitamin C but so far I have only used it on and off. My son is not completely on Low oxalate diet and I am not using magnesium citrate with meals but overall the oxalate content in his diet is low(only gets oxalates thru brown rice pasta and pears which I rotate). Did u ever look into low oxalate diet and did you ever hold vitamin C because of it? I am so sorry I always have tons of questions. Thanks is > > > > > > Hi everyone, > > > > > > I started custom probiotics this week and my son is going thru some changes. His moods are overall better. He is working much better during therapy and sessions and is making more spontaneous requests. Still starts crying when he has to wait for his meals. I am observing some other behaviors as well. He keeps going into my walk-in closet and closes the door for a second then comes out smiling. He is spending some time in the dark laundry room also. He did this before also when he was on gcmaf and nystatin and it was the same time I was seeing improvement also. I am wondering if this is a sign of yeast die off or custom probiotics is somehow helping with the viruses also. He is engaging in visual stimms also. A couple hours ago, he started squinting again which he has done several times in the past mostly when he is on antiyeast treatments, both naturals and prescriptions. He overall is relaxed and is always trying to make funny sounds, laughs a lot > and > > asks me to be a horse all day so he can ride on me. When I sit down with him for therapy, he doesn't like the idea if I say we are gonna do some work now. But then if I make it interesting, he cooperates. He did exceptional with the puzzles today. Can anyone help me understand what he is going thru. Are probiotics helping with viruses also or it is just the yeast die off? > > > Any input will be appreciated. > > > > > > is > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2012 Report Share Posted July 3, 2012 is, I always keep oxalates in the back of my mind but I dont see any indications of Tom having problem with it so we dont do the diet and I dont hold back C. We dont need the high doses of C any longer but it's always in the house for coughs/colds. Anyway, as far as mixing supps, I use a liquid multi. (Trace Minerals. Not the greatest. Some of the inactive ingredients make me squirmy) BUT, it's one that my littlest guy will actually take, its one we can afford, There's not a sh**load of b -12 in it, it's got the trace minerals,and the taste makes it easy mix in seperate supps. So with that said, we use that and add in our own liquid A, E, D, and iodine. (C if we need to). We've been doing really good on just the multi and melatonin for sleep. He takes small dips here and there so occasionally he needs the extra support. As far as your little guy hiding in the closet, do you think it's possible that he just discovered something new and fun to do? He's not doing it when he's upset or scared so maybe he's just having a good time. Tom went through a phase of hiding /sneaking up on people and sneaking BY people just to see if he could do it. It might just be typical little boy behavior & be has found a fun place to sit and imagine and be alone. Just a thought. How have his pandas/pans issues been? And how was your trip? Tammy Sent from my Kindle Fire Sent: Mon Jul 02 22:26:25 EDT 2012 To: mb12valtrex Subject: Re: Son trying to hide in closets, laundry room and hiding face under pillows Thanks Tammy. Vitamin C looks really good. If you use B-complex separately, how do u supplement vitamin A,E,K and minerals? I was thinking to try the brainchild nutritionals capsules(was warned against liquid as a few batches had mold) but they are so expensive. Have u used the corn fee liquid vitamin C? I know that you love vitamin C but so far I have only used it on and off. My son is not completely on Low oxalate diet and I am not using magnesium citrate with meals but overall the oxalate content in his diet is low(only gets oxalates thru brown rice pasta and pears which I rotate). Did u ever look into low oxalate diet and did you ever hold vitamin C because of it? I am so sorry I always have tons of questions. Thanks is > > > > > > Hi everyone, > > > > > > I started custom probiotics this week and my son is going thru some changes. His moods are overall better. He is working much better during therapy and sessions and is making more spontaneous requests. Still starts crying when he has to wait for his meals. I am observing some other behaviors as well. He keeps going into my walk-in closet and closes the door for a second then comes out smiling. He is spending some time in the dark laundry room also. He did this before also when he was on gcmaf and nystatin and it was the same time I was seeing improvement also. I am wondering if this is a sign of yeast die off or custom probiotics is somehow helping with the viruses also. He is engaging in visual stimms also. A couple hours ago, he started squinting again which he has done several times in the past mostly when he is on antiyeast treatments, both naturals and prescriptions. He overall is relaxed and is always trying to make funny sounds, laughs a lot > and > > asks me to be a horse all day so he can ride on me. When I sit down with him for therapy, he doesn't like the idea if I say we are gonna do some work now. But then if I make it interesting, he cooperates. He did exceptional with the puzzles today. Can anyone help me understand what he is going thru. Are probiotics helping with viruses also or it is just the yeast die off? > > > Any input will be appreciated. > > > > > > is > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2012 Report Share Posted July 3, 2012 Your welcome. I just ordered some 5-MTHF for my son. Looking forward to see if it helps. I did see an improvement with folic acid but this may be even better. My son did the exact same thing when he was younger- he'd go upside down of couch and always pressing his forehead. He still presses around his ears. Could be brain inflammation. Lutimax (Luteolin) helps with brain inflammation. Could be due to a pathogen. I think the anti inflammatory provided some relief. Does your son seek deep pressure? Here is a fun activity for kid that helps with sensory input- My son loves deep pressure so sometimes I'll have him lie him down on the bed and pile pilllows and cushions on top of him and I make a " sandwich" with the pillows being the meat, lettuce, tomato, bread etc.. - he LOVES this. Also, I'll roll him in a blanket and make a hotdog out of him. Again great sensory activity if they are seeking deep pressure. Subject: Re: Son trying to hide in closets, laundry room and hiding face under pillowsTo: mb12valtrex Date: Monday, July 2, 2012, 8:48 PM Thanks . My uncle suggested photophobia also. Some other signs also suggest photobia in my son as he starts squinting also. When he tries to go in the closets, he has a very happy silly look on his face. Initially I thought that this was related to yeasty, silly behavior. But then I saw him lying upside down on sofa and he keeps pressing on his eyes whenever in stress. These symptoms are episodic. Mostly come when he is on antifungals or some other treatment. I have been looking into vision therapy. But of course it is expensive and still considered controversial. And I keep thinking that if it indeed is related to some pathogen, it will not just get better with therapy. We have to start antivirals in the next few weeks and I am hoping that it will help. I looked at your suggestions for the supplements and I like the list. I loved the curcumin last year when I first started it but then my son's phenol sensitivity got worse and I couldn't use it any more. He generally doesn't do well on the enzymes and I had to stop the no phenol and phenol assist and only use trienza sparingly now. Probiotics are helping. I am still looking for a good CoQ10/ubiquinol. I used Dr Mercola's ubiquinol and I don't like the product as it has citrus extract and my son was clearly miserable because of it and the capsules are not very good quality. If you know a good brand, let me know. I love the thorne 5mthf and clearly saw improvement with it. Still looking for a good multivitamin or b-complex. Thanks again for your help.is> >> > Hi everyone,> > > > I started custom probiotics this week and my son is going thru some changes. His moods are overall better. He is working much better during therapy and sessions and is making more spontaneous requests. Still starts crying when he has to wait for his meals. I am observing some other behaviors as well. He keeps going into my walk-in closet and closes the door for a second then comes out smiling. He is spending some time in the dark laundry room also. He did this before also when he was on gcmaf and nystatin and it was the same time I was seeing improvement also. I am wondering if this is a sign of yeast die off or custom probiotics is somehow helping with the viruses also. He is engaging in visual stimms also. A couple hours ago, he started squinting again which he has done several times in the past mostly when he is on antiyeast treatments, both naturals and prescriptions. He overall is relaxed and is always trying to make funny sounds, laughs a lot and> asks me to be a horse all day so he can ride on me. When I sit down with him for therapy, he doesn't like the idea if I say we are gonna do some work now. But then if I make it interesting, he cooperates. He did exceptional with the puzzles today. Can anyone help me understand what he is going thru. Are probiotics helping with viruses also or it is just the yeast die off?> > Any input will be appreciated.> > > > is> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2012 Report Share Posted July 3, 2012 Your welcome. I just ordered some 5-MTHF for my son. Looking forward to see if it helps. I did see an improvement with folic acid but this may be even better. My son did the exact same thing when he was younger- he'd go upside down of couch and always pressing his forehead. He still presses around his ears. Could be brain inflammation. Lutimax (Luteolin) helps with brain inflammation. Could be due to a pathogen. I think the anti inflammatory provided some relief. Does your son seek deep pressure? Here is a fun activity for kid that helps with sensory input- My son loves deep pressure so sometimes I'll have him lie him down on the bed and pile pilllows and cushions on top of him and I make a " sandwich" with the pillows being the meat, lettuce, tomato, bread etc.. - he LOVES this. Also, I'll roll him in a blanket and make a hotdog out of him. Again great sensory activity if they are seeking deep pressure. Subject: Re: Son trying to hide in closets, laundry room and hiding face under pillowsTo: mb12valtrex Date: Monday, July 2, 2012, 8:48 PM Thanks . My uncle suggested photophobia also. Some other signs also suggest photobia in my son as he starts squinting also. When he tries to go in the closets, he has a very happy silly look on his face. Initially I thought that this was related to yeasty, silly behavior. But then I saw him lying upside down on sofa and he keeps pressing on his eyes whenever in stress. These symptoms are episodic. Mostly come when he is on antifungals or some other treatment. I have been looking into vision therapy. But of course it is expensive and still considered controversial. And I keep thinking that if it indeed is related to some pathogen, it will not just get better with therapy. We have to start antivirals in the next few weeks and I am hoping that it will help. I looked at your suggestions for the supplements and I like the list. I loved the curcumin last year when I first started it but then my son's phenol sensitivity got worse and I couldn't use it any more. He generally doesn't do well on the enzymes and I had to stop the no phenol and phenol assist and only use trienza sparingly now. Probiotics are helping. I am still looking for a good CoQ10/ubiquinol. I used Dr Mercola's ubiquinol and I don't like the product as it has citrus extract and my son was clearly miserable because of it and the capsules are not very good quality. If you know a good brand, let me know. I love the thorne 5mthf and clearly saw improvement with it. Still looking for a good multivitamin or b-complex. Thanks again for your help.is> >> > Hi everyone,> > > > I started custom probiotics this week and my son is going thru some changes. His moods are overall better. He is working much better during therapy and sessions and is making more spontaneous requests. Still starts crying when he has to wait for his meals. I am observing some other behaviors as well. He keeps going into my walk-in closet and closes the door for a second then comes out smiling. He is spending some time in the dark laundry room also. He did this before also when he was on gcmaf and nystatin and it was the same time I was seeing improvement also. I am wondering if this is a sign of yeast die off or custom probiotics is somehow helping with the viruses also. He is engaging in visual stimms also. A couple hours ago, he started squinting again which he has done several times in the past mostly when he is on antiyeast treatments, both naturals and prescriptions. He overall is relaxed and is always trying to make funny sounds, laughs a lot and> asks me to be a horse all day so he can ride on me. When I sit down with him for therapy, he doesn't like the idea if I say we are gonna do some work now. But then if I make it interesting, he cooperates. He did exceptional with the puzzles today. Can anyone help me understand what he is going thru. Are probiotics helping with viruses also or it is just the yeast die off?> > Any input will be appreciated.> > > > is> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2012 Report Share Posted July 3, 2012 We are doing MMS and parasite protocol,I am shocked by the amount and size of the worms we are seeing. We had done vermox every full moon for past 2.5 years and never seen anything,maybe check the website out and go with your mammy gut feeling on it. www.mmsautism.comLet your email find you with BlackBerry® from VodafoneSender: mb12valtrex Date: Tue, 03 Jul 2012 16:03:03 -0000To: <mb12valtrex >ReplyTo: mb12valtrex Subject: Re: Son trying to hide in closets, laundry room and hiding face under pillows Tammy, I do feel like that he is exploring things that he never noticed before. He asks me to tickle him all the time also and is also taking interest in run and chase. He definitely has become fun loving again, something that he had lost after homeotoxicology protocols. and suggested parasites and I will explore some options for it(not ready for MMS though). Are you talking about trace minerals liquid vita-mineral? Looks nice but this also contains citrus bioflavanoids which I was trying to avoid as vitaspectrum also contains that and I am trying to minimize the phenol load. But it is available at vitamin shoppe so can easily give it a try. Since the school is closed, I noticed that he is much calmer although still gets anxious when he has to wait for food. Placing demands on him also triggers anger. Custom probiotics and vancomycin is definitely helping. He is back on diflucan and sensory issues are bad again. I hate these antifungals. I may have to try sporonox or nizoral next. I havn't been able to do a carb free diet for him but there was a time a couple months ago when he seemed to have pans flare and he was barely eating and was also on diflucan and still continued to have yeast. In his case I think the yeast is a result of antibiotic use. I hope we don't have to use azithromycin again. I hope that his pans episode will be over now. We had him on azithromycin when we went to the conference and that probably helped. Once the school opens, situation will be clearer as now I believe that there is something or someone at school which causes pans like episodes in him (pathogen or allergen).Thanksis>> is,> > I always keep oxalates in the back of my mind but I dont see any indications of Tom having problem with it so we dont do the diet and I dont hold back C. We dont need the high doses of C any longer but it's always in the house for coughs/colds.> > Anyway, as far as mixing supps, I use a liquid multi. (Trace Minerals. Not the greatest. Some of the inactive ingredients make me squirmy) BUT, it's one that my littlest guy will actually take, its one we can afford, > There's not a sh**load of b -12 in it, it's got the trace minerals,and the taste makes it easy mix in seperate supps.> > So with that said, we use that and add in our own liquid A, E, D, and iodine. (C if we need to). > We've been doing really good on just the multi and melatonin for sleep. He takes small dips here and there so occasionally he needs the extra support.> > As far as your little guy hiding in the closet, do you think it's possible that he just discovered something new and fun to do? He's not doing it when he's upset or scared so maybe he's just having a good time. Tom went through a phase of hiding /sneaking up on people and sneaking BY people just to see if he could do it. It might just be typical little boy behavior & be has found a fun place to sit and imagine and be alone. Just a thought.> > How have his pandas/pans issues been?> And how was your trip?> > Tammy> > Sent from my Kindle Fire> > > > _____________________________________________> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2012 Report Share Posted July 3, 2012 , How long have you been doing MMS? What parasite protocol are you doing and how long has it been? While on MSS and parasite protocol, have you seen positives/progress? If yes, is it gradual? Excuse the questions, but I curious to MMS. Regards,Rolando To: mb12valtrex Sent: Tuesday, July 3, 2012 12:24 PM Subject: Re: Re: Son trying to hide in closets, laundry room and hiding face under pillows We are doing MMS and parasite protocol,I am shocked by the amount and size of the worms we are seeing. We had done vermox every full moon for past 2.5 years and never seen anything,maybe check the website out and go with your mammy gut feeling on it. www.mmsautism.comLet your email find you with BlackBerry® from Vodafone Sender: mb12valtrex Date: Tue, 03 Jul 2012 16:03:03 -0000To: <mb12valtrex >ReplyTo: mb12valtrex Subject: Re: Son trying to hide in closets, laundry room and hiding face under pillows Tammy, I do feel like that he is exploring things that he never noticed before. He asks me to tickle him all the time also and is also taking interest in run and chase. He definitely has become fun loving again, something that he had lost after homeotoxicology protocols. and suggested parasites and I will explore some options for it(not ready for MMS though). Are you talking about trace minerals liquid vita-mineral? Looks nice but this also contains citrus bioflavanoids which I was trying to avoid as vitaspectrum also contains that and I am trying to minimize the phenol load. But it is available at vitamin shoppe so can easily give it a try. Since the school is closed, I noticed that he is much calmer although still gets anxious when he has to wait for food. Placing demands on him also triggers anger. Custom probiotics and vancomycin is definitely helping. He is back on diflucan and sensory issues are bad again. I hate these antifungals. I may have to try sporonox or nizoral next. I havn't been able to do a carb free diet for him but there was a time a couple months ago when he seemed to have pans flare and he was barely eating and was also on diflucan and still continued to have yeast. In his case I think the yeast is a result of antibiotic use. I hope we don't have to use azithromycin again. I hope that his pans episode will be over now. We had him on azithromycin when we went to the conference and that probably helped. Once the school opens, situation will be clearer as now I believe that there is something or someone at school which causes pans like episodes in him (pathogen or allergen). Thanks is > > is, > > I always keep oxalates in the back of my mind but I dont see any indications of Tom having problem with it so we dont do the diet and I dont hold back C. We dont need the high doses of C any longer but it's always in the house for coughs/colds. > > Anyway, as far as mixing supps, I use a liquid multi. (Trace Minerals. Not the greatest. Some of the inactive ingredients make me squirmy) BUT, it's one that my littlest guy will actually take, its one we can afford, > There's not a sh**load of b -12 in it, it's got the trace minerals,and the taste makes it easy mix in seperate supps. > > So with that said, we use that and add in our own liquid A, E, D, and iodine. (C if we need to). > We've been doing really good on just the multi and melatonin for sleep. He takes small dips here and there so occasionally he needs the extra support. > > As far as your little guy hiding in the closet, do you think it's possible that he just discovered something new and fun to do? He's not doing it when he's upset or scared so maybe he's just having a good time. Tom went through a phase of hiding /sneaking up on people and sneaking BY people just to see if he could do it. It might just be typical little boy behavior & be has found a fun place to sit and imagine and be alone. Just a thought. > > How have his pandas/pans issues been? > And how was your trip? > > Tammy > > Sent from my Kindle Fire > > > > _____________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2012 Report Share Posted July 3, 2012 , How long have you been doing MMS? What parasite protocol are you doing and how long has it been? While on MSS and parasite protocol, have you seen positives/progress? If yes, is it gradual? Excuse the questions, but I curious to MMS. Regards,Rolando To: mb12valtrex Sent: Tuesday, July 3, 2012 12:24 PM Subject: Re: Re: Son trying to hide in closets, laundry room and hiding face under pillows We are doing MMS and parasite protocol,I am shocked by the amount and size of the worms we are seeing. We had done vermox every full moon for past 2.5 years and never seen anything,maybe check the website out and go with your mammy gut feeling on it. www.mmsautism.comLet your email find you with BlackBerry® from Vodafone Sender: mb12valtrex Date: Tue, 03 Jul 2012 16:03:03 -0000To: <mb12valtrex >ReplyTo: mb12valtrex Subject: Re: Son trying to hide in closets, laundry room and hiding face under pillows Tammy, I do feel like that he is exploring things that he never noticed before. He asks me to tickle him all the time also and is also taking interest in run and chase. He definitely has become fun loving again, something that he had lost after homeotoxicology protocols. and suggested parasites and I will explore some options for it(not ready for MMS though). Are you talking about trace minerals liquid vita-mineral? Looks nice but this also contains citrus bioflavanoids which I was trying to avoid as vitaspectrum also contains that and I am trying to minimize the phenol load. But it is available at vitamin shoppe so can easily give it a try. Since the school is closed, I noticed that he is much calmer although still gets anxious when he has to wait for food. Placing demands on him also triggers anger. Custom probiotics and vancomycin is definitely helping. He is back on diflucan and sensory issues are bad again. I hate these antifungals. I may have to try sporonox or nizoral next. I havn't been able to do a carb free diet for him but there was a time a couple months ago when he seemed to have pans flare and he was barely eating and was also on diflucan and still continued to have yeast. In his case I think the yeast is a result of antibiotic use. I hope we don't have to use azithromycin again. I hope that his pans episode will be over now. We had him on azithromycin when we went to the conference and that probably helped. Once the school opens, situation will be clearer as now I believe that there is something or someone at school which causes pans like episodes in him (pathogen or allergen). Thanks is > > is, > > I always keep oxalates in the back of my mind but I dont see any indications of Tom having problem with it so we dont do the diet and I dont hold back C. We dont need the high doses of C any longer but it's always in the house for coughs/colds. > > Anyway, as far as mixing supps, I use a liquid multi. (Trace Minerals. Not the greatest. Some of the inactive ingredients make me squirmy) BUT, it's one that my littlest guy will actually take, its one we can afford, > There's not a sh**load of b -12 in it, it's got the trace minerals,and the taste makes it easy mix in seperate supps. > > So with that said, we use that and add in our own liquid A, E, D, and iodine. (C if we need to). > We've been doing really good on just the multi and melatonin for sleep. He takes small dips here and there so occasionally he needs the extra support. > > As far as your little guy hiding in the closet, do you think it's possible that he just discovered something new and fun to do? He's not doing it when he's upset or scared so maybe he's just having a good time. Tom went through a phase of hiding /sneaking up on people and sneaking BY people just to see if he could do it. It might just be typical little boy behavior & be has found a fun place to sit and imagine and be alone. Just a thought. > > How have his pandas/pans issues been? > And how was your trip? > > Tammy > > Sent from my Kindle Fire > > > > _____________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2012 Report Share Posted July 3, 2012 We are on our third month of mms,second parasite protocol,not all plain sailing,lots of die off,hugh improvement in receptive language,following instruction and interaction improving.we have been doing biomed for 6 years and have tried so many different things,there is something different about this ,I am hopeful,the least that can happen is the pathogen and parasite load will be decreasedLet your email find you with BlackBerry® from VodafoneSender: mb12valtrex Date: Tue, 3 Jul 2012 09:39:22 -0700 (PDT)To: mb12valtrex <mb12valtrex >ReplyTo: mb12valtrex Subject: Re: Re: Son trying to hide in closets, laundry room and hiding face under pillows , How long have you been doing MMS? What parasite protocol are you doing and how long has it been? While on MSS and parasite protocol, have you seen positives/progress? If yes, is it gradual? Excuse the questions, but I curious to MMS. Regards,Rolando To: mb12valtrex Sent: Tuesday, July 3, 2012 12:24 PM Subject: Re: Re: Son trying to hide in closets, laundry room and hiding face under pillows We are doing MMS and parasite protocol,I am shocked by the amount and size of the worms we are seeing. We had done vermox every full moon for past 2.5 years and never seen anything,maybe check the website out and go with your mammy gut feeling on it. www.mmsautism.comLet your email find you with BlackBerry® from VodafoneSender: mb12valtrex Date: Tue, 03 Jul 2012 16:03:03 -0000To: <mb12valtrex >ReplyTo: mb12valtrex Subject: Re: Son trying to hide in closets, laundry room and hiding face under pillows Tammy, I do feel like that he is exploring things that he never noticed before. He asks me to tickle him all the time also and is also taking interest in run and chase. He definitely has become fun loving again, something that he had lost after homeotoxicology protocols. and suggested parasites and I will explore some options for it(not ready for MMS though). Are you talking about trace minerals liquid vita-mineral? Looks nice but this also contains citrus bioflavanoids which I was trying to avoid as vitaspectrum also contains that and I am trying to minimize the phenol load. But it is available at vitamin shoppe so can easily give it a try. Since the school is closed, I noticed that he is much calmer although still gets anxious when he has to wait for food. Placing demands on him also triggers anger. Custom probiotics and vancomycin is definitely helping. He is back on diflucan and sensory issues are bad again. I hate these antifungals. I may have to try sporonox or nizoral next. I havn't been able to do a carb free diet for him but there was a time a couple months ago when he seemed to have pans flare and he was barely eating and was also on diflucan and still continued to have yeast. In his case I think the yeast is a result of antibiotic use. I hope we don't have to use azithromycin again. I hope that his pans episode will be over now. We had him on azithromycin when we went to the conference and that probably helped. Once the school opens, situation will be clearer as now I believe that there is something or someone at school which causes pans like episodes in him (pathogen orallergen).Thanksis>> is,> > I always keep oxalates in the back of my mind but I dont see any indications of Tom having problem with it so we dont do the diet and I dont hold back C. We dont need the high doses of C any longer but it's always in the house for coughs/colds.> > Anyway, as far as mixing supps, I use a liquid multi. (Trace Minerals. Not the greatest. Some of the inactive ingredients make me squirmy) BUT, it's one that my littlest guy will actually take, its one we can afford, > There's not a sh**load of b -12 in it, it's got the trace minerals,and the taste makes it easy mix in seperate supps.> > So with that said, we use that and add in our own liquid A, E, D, and iodine. (C if we need to). > We've been doing really good on just the multi and melatonin for sleep. He takes small dips here and there so occasionally he needs the extra support.> > As far as your little guy hiding in the closet, do you think it's possible that he just discovered something new and fun to do? He's not doing it when he's upset or scared so maybe he's just having a good time. Tom went through a phase of hiding /sneaking up on people and sneaking BY people just to see if he could do it. It might just be typical little boy behavior & be has found a fun place to sit and imagine and be alone. Just a thought.> > How have his pandas/pans issues been?> And how was your trip?> > Tammy> > Sent from my Kindle Fire> > > > _____________________________________________> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2012 Report Share Posted July 3, 2012 We are on our third month of mms,second parasite protocol,not all plain sailing,lots of die off,hugh improvement in receptive language,following instruction and interaction improving.we have been doing biomed for 6 years and have tried so many different things,there is something different about this ,I am hopeful,the least that can happen is the pathogen and parasite load will be decreasedLet your email find you with BlackBerry® from VodafoneSender: mb12valtrex Date: Tue, 3 Jul 2012 09:39:22 -0700 (PDT)To: mb12valtrex <mb12valtrex >ReplyTo: mb12valtrex Subject: Re: Re: Son trying to hide in closets, laundry room and hiding face under pillows , How long have you been doing MMS? What parasite protocol are you doing and how long has it been? While on MSS and parasite protocol, have you seen positives/progress? If yes, is it gradual? Excuse the questions, but I curious to MMS. Regards,Rolando To: mb12valtrex Sent: Tuesday, July 3, 2012 12:24 PM Subject: Re: Re: Son trying to hide in closets, laundry room and hiding face under pillows We are doing MMS and parasite protocol,I am shocked by the amount and size of the worms we are seeing. We had done vermox every full moon for past 2.5 years and never seen anything,maybe check the website out and go with your mammy gut feeling on it. www.mmsautism.comLet your email find you with BlackBerry® from VodafoneSender: mb12valtrex Date: Tue, 03 Jul 2012 16:03:03 -0000To: <mb12valtrex >ReplyTo: mb12valtrex Subject: Re: Son trying to hide in closets, laundry room and hiding face under pillows Tammy, I do feel like that he is exploring things that he never noticed before. He asks me to tickle him all the time also and is also taking interest in run and chase. He definitely has become fun loving again, something that he had lost after homeotoxicology protocols. and suggested parasites and I will explore some options for it(not ready for MMS though). Are you talking about trace minerals liquid vita-mineral? Looks nice but this also contains citrus bioflavanoids which I was trying to avoid as vitaspectrum also contains that and I am trying to minimize the phenol load. But it is available at vitamin shoppe so can easily give it a try. Since the school is closed, I noticed that he is much calmer although still gets anxious when he has to wait for food. Placing demands on him also triggers anger. Custom probiotics and vancomycin is definitely helping. He is back on diflucan and sensory issues are bad again. I hate these antifungals. I may have to try sporonox or nizoral next. I havn't been able to do a carb free diet for him but there was a time a couple months ago when he seemed to have pans flare and he was barely eating and was also on diflucan and still continued to have yeast. In his case I think the yeast is a result of antibiotic use. I hope we don't have to use azithromycin again. I hope that his pans episode will be over now. We had him on azithromycin when we went to the conference and that probably helped. Once the school opens, situation will be clearer as now I believe that there is something or someone at school which causes pans like episodes in him (pathogen orallergen).Thanksis>> is,> > I always keep oxalates in the back of my mind but I dont see any indications of Tom having problem with it so we dont do the diet and I dont hold back C. We dont need the high doses of C any longer but it's always in the house for coughs/colds.> > Anyway, as far as mixing supps, I use a liquid multi. (Trace Minerals. Not the greatest. Some of the inactive ingredients make me squirmy) BUT, it's one that my littlest guy will actually take, its one we can afford, > There's not a sh**load of b -12 in it, it's got the trace minerals,and the taste makes it easy mix in seperate supps.> > So with that said, we use that and add in our own liquid A, E, D, and iodine. (C if we need to). > We've been doing really good on just the multi and melatonin for sleep. He takes small dips here and there so occasionally he needs the extra support.> > As far as your little guy hiding in the closet, do you think it's possible that he just discovered something new and fun to do? He's not doing it when he's upset or scared so maybe he's just having a good time. Tom went through a phase of hiding /sneaking up on people and sneaking BY people just to see if he could do it. It might just be typical little boy behavior & be has found a fun place to sit and imagine and be alone. Just a thought.> > How have his pandas/pans issues been?> And how was your trip?> > Tammy> > Sent from my Kindle Fire> > > > _____________________________________________> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2012 Report Share Posted July 3, 2012 , Thank you. I am very happy to hear the many pluses. I do pray and hope your child keeps on improving. Are you doing the parasite protocol suggestion from the MMS protocol? Thanks,Rolando From: "cotter.mary1@..." To: mb12valtrex Sent: Tuesday, July 3, 2012 12:46 PM Subject: Re: Re: Son trying to hide in closets, laundry room and hiding face under pillows We are on our third month of mms,second parasite protocol,not all plain sailing,lots of die off,hugh improvement in receptive language,following instruction and interaction improving.we have been doing biomed for 6 years and have tried so many different things,there is something different about this ,I am hopeful,the least that can happen is the pathogen and parasite load will be decreasedLet your email find you with BlackBerry® from Vodafone Sender: mb12valtrex Date: Tue, 3 Jul 2012 09:39:22 -0700 (PDT)To: mb12valtrex <mb12valtrex >ReplyTo: mb12valtrex Subject: Re: Re: Son trying to hide in closets, laundry room and hiding face under pillows , How long have you been doing MMS? What parasite protocol are you doing and how long has it been? While on MSS and parasite protocol, have you seen positives/progress? If yes, is it gradual? Excuse the questions, but I curious to MMS. Regards,Rolando To: mb12valtrex Sent: Tuesday, July 3, 2012 12:24 PM Subject: Re: Re: Son trying to hide in closets, laundry room and hiding face under pillows We are doing MMS and parasite protocol,I am shocked by the amount and size of the worms we are seeing. We had done vermox every full moon for past 2.5 years and never seen anything,maybe check the website out and go with your mammy gut feeling on it. http://www.mmsautism.com/Let your email find you with BlackBerry® from Vodafone Sender: mb12valtrex Date: Tue, 03 Jul 2012 16:03:03 -0000To: <mb12valtrex >ReplyTo: mb12valtrex Subject: Re: Son trying to hide in closets, laundry room and hiding face under pillows Tammy, I do feel like that he is exploring things that he never noticed before. He asks me to tickle him all the time also and is also taking interest in run and chase. He definitely has become fun loving again, something that he had lost after homeotoxicology protocols. and suggested parasites and I will explore some options for it(not ready for MMS though). Are you talking about trace minerals liquid vita-mineral? Looks nice but this also contains citrus bioflavanoids which I was trying to avoid as vitaspectrum also contains that and I am trying to minimize the phenol load. But it is available at vitamin shoppe so can easily give it a try. Since the school is closed, I noticed that he is much calmer although still gets anxious when he has to wait for food. Placing demands on him also triggers anger. Custom probiotics and vancomycin is definitely helping. He is back on diflucan and sensory issues are bad again. I hate these antifungals. I may have to try sporonox or nizoral next. I havn't been able to do a carb free diet for him but there was a time a couple months ago when he seemed to have pans flare and he was barely eating and was also on diflucan and still continued to have yeast. In his case I think the yeast is a result of antibiotic use. I hope we don't have to use azithromycin again. I hope that his pans episode will be over now. We had him on azithromycin when we went to the conference and that probably helped. Once the school opens, situation will be clearer as now I believe that there is something or someone at school which causes pans like episodes in him (pathogen or allergen). Thanks is > > is, > > I always keep oxalates in the back of my mind but I dont see any indications of Tom having problem with it so we dont do the diet and I dont hold back C. We dont need the high doses of C any longer but it's always in the house for coughs/colds. > > Anyway, as far as mixing supps, I use a liquid multi. (Trace Minerals. Not the greatest. Some of the inactive ingredients make me squirmy) BUT, it's one that my littlest guy will actually take, its one we can afford, > There's not a sh**load of b -12 in it, it's got the trace minerals,and the taste makes it easy mix in seperate supps. > > So with that said, we use that and add in our own liquid A, E, D, and iodine. (C if we need to). > We've been doing really good on just the multi and melatonin for sleep. He takes small dips here and there so occasionally he needs the extra support. > > As far as your little guy hiding in the closet, do you think it's possible that he just discovered something new and fun to do? He's not doing it when he's upset or scared so maybe he's just having a good time. Tom went through a phase of hiding /sneaking up on people and sneaking BY people just to see if he could do it. It might just be typical little boy behavior & be has found a fun place to sit and imagine and be alone. Just a thought. > > How have his pandas/pans issues been? > And how was your trip? > > Tammy > > Sent from my Kindle Fire > > > > _____________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2012 Report Share Posted July 3, 2012 , Thank you. I am very happy to hear the many pluses. I do pray and hope your child keeps on improving. Are you doing the parasite protocol suggestion from the MMS protocol? Thanks,Rolando From: "cotter.mary1@..." To: mb12valtrex Sent: Tuesday, July 3, 2012 12:46 PM Subject: Re: Re: Son trying to hide in closets, laundry room and hiding face under pillows We are on our third month of mms,second parasite protocol,not all plain sailing,lots of die off,hugh improvement in receptive language,following instruction and interaction improving.we have been doing biomed for 6 years and have tried so many different things,there is something different about this ,I am hopeful,the least that can happen is the pathogen and parasite load will be decreasedLet your email find you with BlackBerry® from Vodafone Sender: mb12valtrex Date: Tue, 3 Jul 2012 09:39:22 -0700 (PDT)To: mb12valtrex <mb12valtrex >ReplyTo: mb12valtrex Subject: Re: Re: Son trying to hide in closets, laundry room and hiding face under pillows , How long have you been doing MMS? What parasite protocol are you doing and how long has it been? While on MSS and parasite protocol, have you seen positives/progress? If yes, is it gradual? Excuse the questions, but I curious to MMS. Regards,Rolando To: mb12valtrex Sent: Tuesday, July 3, 2012 12:24 PM Subject: Re: Re: Son trying to hide in closets, laundry room and hiding face under pillows We are doing MMS and parasite protocol,I am shocked by the amount and size of the worms we are seeing. We had done vermox every full moon for past 2.5 years and never seen anything,maybe check the website out and go with your mammy gut feeling on it. http://www.mmsautism.com/Let your email find you with BlackBerry® from Vodafone Sender: mb12valtrex Date: Tue, 03 Jul 2012 16:03:03 -0000To: <mb12valtrex >ReplyTo: mb12valtrex Subject: Re: Son trying to hide in closets, laundry room and hiding face under pillows Tammy, I do feel like that he is exploring things that he never noticed before. He asks me to tickle him all the time also and is also taking interest in run and chase. He definitely has become fun loving again, something that he had lost after homeotoxicology protocols. and suggested parasites and I will explore some options for it(not ready for MMS though). Are you talking about trace minerals liquid vita-mineral? Looks nice but this also contains citrus bioflavanoids which I was trying to avoid as vitaspectrum also contains that and I am trying to minimize the phenol load. But it is available at vitamin shoppe so can easily give it a try. Since the school is closed, I noticed that he is much calmer although still gets anxious when he has to wait for food. Placing demands on him also triggers anger. Custom probiotics and vancomycin is definitely helping. He is back on diflucan and sensory issues are bad again. I hate these antifungals. I may have to try sporonox or nizoral next. I havn't been able to do a carb free diet for him but there was a time a couple months ago when he seemed to have pans flare and he was barely eating and was also on diflucan and still continued to have yeast. In his case I think the yeast is a result of antibiotic use. I hope we don't have to use azithromycin again. I hope that his pans episode will be over now. We had him on azithromycin when we went to the conference and that probably helped. Once the school opens, situation will be clearer as now I believe that there is something or someone at school which causes pans like episodes in him (pathogen or allergen). Thanks is > > is, > > I always keep oxalates in the back of my mind but I dont see any indications of Tom having problem with it so we dont do the diet and I dont hold back C. We dont need the high doses of C any longer but it's always in the house for coughs/colds. > > Anyway, as far as mixing supps, I use a liquid multi. (Trace Minerals. Not the greatest. Some of the inactive ingredients make me squirmy) BUT, it's one that my littlest guy will actually take, its one we can afford, > There's not a sh**load of b -12 in it, it's got the trace minerals,and the taste makes it easy mix in seperate supps. > > So with that said, we use that and add in our own liquid A, E, D, and iodine. (C if we need to). > We've been doing really good on just the multi and melatonin for sleep. He takes small dips here and there so occasionally he needs the extra support. > > As far as your little guy hiding in the closet, do you think it's possible that he just discovered something new and fun to do? He's not doing it when he's upset or scared so maybe he's just having a good time. Tom went through a phase of hiding /sneaking up on people and sneaking BY people just to see if he could do it. It might just be typical little boy behavior & be has found a fun place to sit and imagine and be alone. Just a thought. > > How have his pandas/pans issues been? > And how was your trip? > > Tammy > > Sent from my Kindle Fire > > > > _____________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2012 Report Share Posted July 3, 2012 Yes I am following that protocol and we are getting rid of parasites,which may well be the hosts for yeast clostridia etc we are dealing with for years,some people are seeing hugh gains and big drops in atec scores, I am hopeful that this will happen for us tooLet your email find you with BlackBerry® from VodafoneSender: mb12valtrex Date: Tue, 3 Jul 2012 09:53:08 -0700 (PDT)To: mb12valtrex <mb12valtrex >ReplyTo: mb12valtrex Subject: Re: Re: Son trying to hide in closets, laundry room and hiding face under pillows , Thank you. I am very happy to hear the many pluses. I do pray and hope your child keeps on improving. Are you doing the parasite protocol suggestion from the MMS protocol? Thanks,Rolando To: mb12valtrex Sent: Tuesday, July 3, 2012 12:46 PM Subject: Re: Re: Son trying to hide in closets, laundry room and hiding face under pillows We are on our third month of mms,second parasite protocol,not all plain sailing,lots of die off,hugh improvement in receptive language,following instruction and interaction improving.we have been doing biomed for 6 years and have tried so many different things,there is something different about this ,I am hopeful,the least that can happen is the pathogen and parasite load will be decreasedLet your email find you with BlackBerry® from VodafoneSender: mb12valtrex Date: Tue, 3 Jul 2012 09:39:22 -0700 (PDT)To: mb12valtrex <mb12valtrex >ReplyTo: mb12valtrex Subject: Re: Re: Son trying to hide in closets, laundry room and hiding face under pillows , How long have you been doing MMS? What parasite protocol are you doing and how long has it been? While on MSS and parasite protocol, have you seen positives/progress? If yes, is it gradual? Excuse the questions, but I curious to MMS. Regards,Rolando To: mb12valtrex Sent: Tuesday, July 3, 2012 12:24 PM Subject: Re: Re: Son trying to hide in closets, laundry room and hiding face under pillows We are doing MMS and parasite protocol,I am shocked by the amount and size of the worms we are seeing. We had done vermox every full moon for past 2.5 years and never seen anything,maybe check the website out and go with your mammy gut feeling on it. http://www.mmsautism.com/Let your email find you with BlackBerry® from VodafoneSender: mb12valtrex Date: Tue, 03 Jul 2012 16:03:03 -0000To: <mb12valtrex >ReplyTo: mb12valtrex Subject: Re: Son trying to hide in closets, laundry room and hiding face under pillows Tammy, I do feel like that he is exploring things that he never noticed before. He asks me to tickle him all the time also and is also taking interest in run and chase. He definitely has become fun loving again, something that he had lost after homeotoxicology protocols. and suggested parasites and I will explore some options for it(not ready for MMS though). Are you talking about trace minerals liquid vita-mineral? Looks nice but this also contains citrus bioflavanoids which I was trying to avoid as vitaspectrum also contains that and I am trying to minimize the phenol load. But it is available at vitamin shoppe so can easily give it a try. Since the school is closed, I noticed that he is much calmer although still gets anxious when he has to wait for food. Placing demands on him also triggers anger. Custom probiotics and vancomycin is definitely helping. He is back on diflucan and sensory issues are bad again. I hate these antifungals. I may have to try sporonox or nizoral next. I havn't been able to do a carb free diet for him but there was a time a couple months ago when he seemed to have pans flare and he was barely eating and was also on diflucan and still continued to have yeast. In his case I think the yeast is a result of antibiotic use. I hope we don't have to use azithromycin again. I hope that his pans episode will be over now. We had him on azithromycin when we went to the conference and that probably helped. Once the school opens, situation will be clearer as now I believe that there is something or someone at school which causes pans like episodes in him (pathogen orallergen).Thanksis>> is,> > I always keep oxalates in the back of my mind but I dont see any indications of Tom having problem with it so we dont do the diet and I dont hold back C. We dont need the high doses of C any longer but it's always in the house for coughs/colds.> > Anyway, as far as mixing supps, I use a liquid multi. (Trace Minerals. Not the greatest. Some of the inactive ingredients make me squirmy) BUT, it's one that my littlest guy will actually take, its one we can afford, > There's not a sh**load of b -12 in it, it's got the trace minerals,and the taste makes it easy mix in seperate supps.> > So with that said, we use that and add in our own liquid A, E, D, and iodine. (C if we need to). > We've been doing really good on just the multi and melatonin for sleep. He takes small dips here and there so occasionally he needs the extra support.> > As far as your little guy hiding in the closet, do you think it's possible that he just discovered something new and fun to do? He's not doing it when he's upset or scared so maybe he's just having a good time. Tom went through a phase of hiding /sneaking up on people and sneaking BY people just to see if he could do it. It might just be typical little boy behavior & be has found a fun place to sit and imagine and be alone. Just a thought.> > How have his pandas/pans issues been?> And how was your trip?> > Tammy> > Sent from my Kindle Fire> > > > _____________________________________________> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2012 Report Share Posted July 3, 2012 Yes I am following that protocol and we are getting rid of parasites,which may well be the hosts for yeast clostridia etc we are dealing with for years,some people are seeing hugh gains and big drops in atec scores, I am hopeful that this will happen for us tooLet your email find you with BlackBerry® from VodafoneSender: mb12valtrex Date: Tue, 3 Jul 2012 09:53:08 -0700 (PDT)To: mb12valtrex <mb12valtrex >ReplyTo: mb12valtrex Subject: Re: Re: Son trying to hide in closets, laundry room and hiding face under pillows , Thank you. I am very happy to hear the many pluses. I do pray and hope your child keeps on improving. Are you doing the parasite protocol suggestion from the MMS protocol? Thanks,Rolando To: mb12valtrex Sent: Tuesday, July 3, 2012 12:46 PM Subject: Re: Re: Son trying to hide in closets, laundry room and hiding face under pillows We are on our third month of mms,second parasite protocol,not all plain sailing,lots of die off,hugh improvement in receptive language,following instruction and interaction improving.we have been doing biomed for 6 years and have tried so many different things,there is something different about this ,I am hopeful,the least that can happen is the pathogen and parasite load will be decreasedLet your email find you with BlackBerry® from VodafoneSender: mb12valtrex Date: Tue, 3 Jul 2012 09:39:22 -0700 (PDT)To: mb12valtrex <mb12valtrex >ReplyTo: mb12valtrex Subject: Re: Re: Son trying to hide in closets, laundry room and hiding face under pillows , How long have you been doing MMS? What parasite protocol are you doing and how long has it been? While on MSS and parasite protocol, have you seen positives/progress? If yes, is it gradual? Excuse the questions, but I curious to MMS. Regards,Rolando To: mb12valtrex Sent: Tuesday, July 3, 2012 12:24 PM Subject: Re: Re: Son trying to hide in closets, laundry room and hiding face under pillows We are doing MMS and parasite protocol,I am shocked by the amount and size of the worms we are seeing. We had done vermox every full moon for past 2.5 years and never seen anything,maybe check the website out and go with your mammy gut feeling on it. http://www.mmsautism.com/Let your email find you with BlackBerry® from VodafoneSender: mb12valtrex Date: Tue, 03 Jul 2012 16:03:03 -0000To: <mb12valtrex >ReplyTo: mb12valtrex Subject: Re: Son trying to hide in closets, laundry room and hiding face under pillows Tammy, I do feel like that he is exploring things that he never noticed before. He asks me to tickle him all the time also and is also taking interest in run and chase. He definitely has become fun loving again, something that he had lost after homeotoxicology protocols. and suggested parasites and I will explore some options for it(not ready for MMS though). Are you talking about trace minerals liquid vita-mineral? Looks nice but this also contains citrus bioflavanoids which I was trying to avoid as vitaspectrum also contains that and I am trying to minimize the phenol load. But it is available at vitamin shoppe so can easily give it a try. Since the school is closed, I noticed that he is much calmer although still gets anxious when he has to wait for food. Placing demands on him also triggers anger. Custom probiotics and vancomycin is definitely helping. He is back on diflucan and sensory issues are bad again. I hate these antifungals. I may have to try sporonox or nizoral next. I havn't been able to do a carb free diet for him but there was a time a couple months ago when he seemed to have pans flare and he was barely eating and was also on diflucan and still continued to have yeast. In his case I think the yeast is a result of antibiotic use. I hope we don't have to use azithromycin again. I hope that his pans episode will be over now. We had him on azithromycin when we went to the conference and that probably helped. Once the school opens, situation will be clearer as now I believe that there is something or someone at school which causes pans like episodes in him (pathogen orallergen).Thanksis>> is,> > I always keep oxalates in the back of my mind but I dont see any indications of Tom having problem with it so we dont do the diet and I dont hold back C. We dont need the high doses of C any longer but it's always in the house for coughs/colds.> > Anyway, as far as mixing supps, I use a liquid multi. (Trace Minerals. Not the greatest. Some of the inactive ingredients make me squirmy) BUT, it's one that my littlest guy will actually take, its one we can afford, > There's not a sh**load of b -12 in it, it's got the trace minerals,and the taste makes it easy mix in seperate supps.> > So with that said, we use that and add in our own liquid A, E, D, and iodine. (C if we need to). > We've been doing really good on just the multi and melatonin for sleep. He takes small dips here and there so occasionally he needs the extra support.> > As far as your little guy hiding in the closet, do you think it's possible that he just discovered something new and fun to do? He's not doing it when he's upset or scared so maybe he's just having a good time. Tom went through a phase of hiding /sneaking up on people and sneaking BY people just to see if he could do it. It might just be typical little boy behavior & be has found a fun place to sit and imagine and be alone. Just a thought.> > How have his pandas/pans issues been?> And how was your trip?> > Tammy> > Sent from my Kindle Fire> > > > _____________________________________________> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2012 Report Share Posted July 3, 2012 I have mms and want to start it. We are doing so many things for Lyme/ co-infections though. Many of the herbs have antioxidant properties. It is hard to think about what will affect the mms. Also my kids have always taken vits in juice. Not sure how to get rid of that. We can dump theirs support and c, d, e, etc. But I get overwhelmed to think of having them stop eating fruit, no juice, etc. Aargh! Any advice/tips?RuthSent from my iPhone We are on our third month of mms,second parasite protocol,not all plain sailing,lots of die off,hugh improvement in receptive language,following instruction and interaction improving.we have been doing biomed for 6 years and have tried so many different things,there is something different about this ,I am hopeful,the least that can happen is the pathogen and parasite load will be decreasedLet your email find you with BlackBerry® from Vodafone Sender: mb12valtrex Date: Tue, 3 Jul 2012 09:39:22 -0700 (PDT)To: mb12valtrex <mb12valtrex >ReplyTo: mb12valtrex Subject: Re: Re: Son trying to hide in closets, laundry room and hiding face under pillows , How long have you been doing MMS? What parasite protocol are you doing and how long has it been? While on MSS and parasite protocol, have you seen positives/progress? If yes, is it gradual? Excuse the questions, but I curious to MMS. Regards,Rolando To: mb12valtrex Sent: Tuesday, July 3, 2012 12:24 PM Subject: Re: Re: Son trying to hide in closets, laundry room and hiding face under pillows We are doing MMS and parasite protocol,I am shocked by the amount and size of the worms we are seeing. We had done vermox every full moon for past 2.5 years and never seen anything,maybe check the website out and go with your mammy gut feeling on it. www.mmsautism.comLet your email find you with BlackBerry® from Vodafone Sender: mb12valtrex Date: Tue, 03 Jul 2012 16:03:03 -0000To: <mb12valtrex >ReplyTo: mb12valtrex Subject: Re: Son trying to hide in closets, laundry room and hiding face under pillows Tammy, I do feel like that he is exploring things that he never noticed before. He asks me to tickle him all the time also and is also taking interest in run and chase. He definitely has become fun loving again, something that he had lost after homeotoxicology protocols. and suggested parasites and I will explore some options for it(not ready for MMS though). Are you talking about trace minerals liquid vita-mineral? Looks nice but this also contains citrus bioflavanoids which I was trying to avoid as vitaspectrum also contains that and I am trying to minimize the phenol load. But it is available at vitamin shoppe so can easily give it a try. Since the school is closed, I noticed that he is much calmer although still gets anxious when he has to wait for food. Placing demands on him also triggers anger. Custom probiotics and vancomycin is definitely helping. He is back on diflucan and sensory issues are bad again. I hate these antifungals. I may have to try sporonox or nizoral next. I havn't been able to do a carb free diet for him but there was a time a couple months ago when he seemed to have pans flare and he was barely eating and was also on diflucan and still continued to have yeast. In his case I think the yeast is a result of antibiotic use. I hope we don't have to use azithromycin again. I hope that his pans episode will be over now. We had him on azithromycin when we went to the conference and that probably helped. Once the school opens, situation will be clearer as now I believe that there is something or someone at school which causes pans like episodes in him (pathogen or allergen). Thanks is > > is, > > I always keep oxalates in the back of my mind but I dont see any indications of Tom having problem with it so we dont do the diet and I dont hold back C. We dont need the high doses of C any longer but it's always in the house for coughs/colds. > > Anyway, as far as mixing supps, I use a liquid multi. (Trace Minerals. Not the greatest. Some of the inactive ingredients make me squirmy) BUT, it's one that my littlest guy will actually take, its one we can afford, > There's not a sh**load of b -12 in it, it's got the trace minerals,and the taste makes it easy mix in seperate supps. > > So with that said, we use that and add in our own liquid A, E, D, and iodine. (C if we need to). > We've been doing really good on just the multi and melatonin for sleep. He takes small dips here and there so occasionally he needs the extra support. > > As far as your little guy hiding in the closet, do you think it's possible that he just discovered something new and fun to do? He's not doing it when he's upset or scared so maybe he's just having a good time. Tom went through a phase of hiding /sneaking up on people and sneaking BY people just to see if he could do it. It might just be typical little boy behavior & be has found a fun place to sit and imagine and be alone. Just a thought. > > How have his pandas/pans issues been? > And how was your trip? > > Tammy > > Sent from my Kindle Fire > > > > _____________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2012 Report Share Posted July 3, 2012 is - for us, I think the photophobia was caused by Lyme. We also have had other visual processing issues. On another note, there is empirical evidence for vision. Maybe that would help? Also - my insurance did cover vision therapy under medical, not vision. Not sure which ins. Co. You have but maybe worth looking into...Have you gotten the results of your recent infection/immune testing back yet?RuthSent from my iPhone Thanks . I tried to get help from his ophthalmologist but he doesn't believe in vision therapy. I will have to go to a private optometrist and that is not covered by insurance. What you are describing makes sense. We had a similar phase when my son was silly and hiding in closets which was then followed by a very bad phase of sudden tantrums which would hit us out of the blue. I also feel like the custom probiotic helped with some viral issue and that is why he is in a happy place right now but we could get hit with the evil yeast again. I have him on diflucan and vancomycin with custom probiotic. Trying to gain strength for the antivirals. is > > > > > > Hi everyone, > > > > > > I started custom probiotics this week and my son is going thru some changes. His moods are overall better. He is working much better during therapy and sessions and is making more spontaneous requests. Still starts crying when he has to wait for his meals. I am observing some other behaviors as well. He keeps going into my walk-in closet and closes the door for a second then comes out smiling. He is spending some time in the dark laundry room also. He did this before also when he was on gcmaf and nystatin and it was the same time I was seeing improvement also. I am wondering if this is a sign of yeast die off or custom probiotics is somehow helping with the viruses also. He is engaging in visual stimms also. A couple hours ago, he started squinting again which he has done several times in the past mostly when he is on antiyeast treatments, both naturals and prescriptions. He overall is relaxed and is always trying to make funny sounds, laughs a lot and > > asks me to be a horse all day so he can ride on me. When I sit down with him for therapy, he doesn't like the idea if I say we are gonna do some work now. But then if I make it interesting, he cooperates. He did exceptional with the puzzles today. Can anyone help me understand what he is going thru. Are probiotics helping with viruses also or it is just the yeast die off? > > > Any input will be appreciated. > > > > > > is > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2012 Report Share Posted July 3, 2012 is - for us, I think the photophobia was caused by Lyme. We also have had other visual processing issues. On another note, there is empirical evidence for vision. Maybe that would help? Also - my insurance did cover vision therapy under medical, not vision. Not sure which ins. Co. You have but maybe worth looking into...Have you gotten the results of your recent infection/immune testing back yet?RuthSent from my iPhone Thanks . I tried to get help from his ophthalmologist but he doesn't believe in vision therapy. I will have to go to a private optometrist and that is not covered by insurance. What you are describing makes sense. We had a similar phase when my son was silly and hiding in closets which was then followed by a very bad phase of sudden tantrums which would hit us out of the blue. I also feel like the custom probiotic helped with some viral issue and that is why he is in a happy place right now but we could get hit with the evil yeast again. I have him on diflucan and vancomycin with custom probiotic. Trying to gain strength for the antivirals. is > > > > > > Hi everyone, > > > > > > I started custom probiotics this week and my son is going thru some changes. His moods are overall better. He is working much better during therapy and sessions and is making more spontaneous requests. Still starts crying when he has to wait for his meals. I am observing some other behaviors as well. He keeps going into my walk-in closet and closes the door for a second then comes out smiling. He is spending some time in the dark laundry room also. He did this before also when he was on gcmaf and nystatin and it was the same time I was seeing improvement also. I am wondering if this is a sign of yeast die off or custom probiotics is somehow helping with the viruses also. He is engaging in visual stimms also. A couple hours ago, he started squinting again which he has done several times in the past mostly when he is on antiyeast treatments, both naturals and prescriptions. He overall is relaxed and is always trying to make funny sounds, laughs a lot and > > asks me to be a horse all day so he can ride on me. When I sit down with him for therapy, he doesn't like the idea if I say we are gonna do some work now. But then if I make it interesting, he cooperates. He did exceptional with the puzzles today. Can anyone help me understand what he is going thru. Are probiotics helping with viruses also or it is just the yeast die off? > > > Any input will be appreciated. > > > > > > is > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2012 Report Share Posted July 3, 2012 We are doing the mms and parasite protocol.Sent from my iPhone Thanks . What parasite protocol did your friend use? I know that when my son was on homeotoxicology treatments, the last one was parasite and he did get a fever of 104 and after we stopped the treatment, he was much calmer especially in the stimming area. Even though his behaviors are not related to full moon, I still suspect parasites and will try something soon again.(failed alinia treatment). is > > > > > > > > Hi everyone, > > > > > > > > I started custom probiotics this week and my son is going thru some changes. His moods are overall better. He is working much better during therapy and sessions and is making more spontaneous requests. Still starts crying when he has to wait for his meals. I am observing some other behaviors as well. He keeps going into my walk-in closet and closes the door for a second then comes out smiling. He is spending some time in the dark laundry room also. He did this before also when he was on gcmaf and nystatin and it was the same time I was seeing improvement also. I am wondering if this is a sign of yeast die off or custom probiotics is somehow helping with the viruses also. He is engaging in visual stimms also. A couple hours ago, he started squinting again which he has done several times in the past mostly when he is on antiyeast treatments, both naturals and prescriptions. He overall is relaxed and is always trying to make funny sounds, laughs a lot and > > > asks me to be a horse all day so he can ride on me. When I sit down with him for therapy, he doesn't like the idea if I say we are gonna do some work now. But then if I make it interesting, he cooperates. He did exceptional with the puzzles today. Can anyone help me understand what he is going thru. Are probiotics helping with viruses also or it is just the yeast die off? > > > > Any input will be appreciated. > > > > > > > > is > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2012 Report Share Posted July 3, 2012 We are doing the mms and parasite protocol.Sent from my iPhone Thanks . What parasite protocol did your friend use? I know that when my son was on homeotoxicology treatments, the last one was parasite and he did get a fever of 104 and after we stopped the treatment, he was much calmer especially in the stimming area. Even though his behaviors are not related to full moon, I still suspect parasites and will try something soon again.(failed alinia treatment). is > > > > > > > > Hi everyone, > > > > > > > > I started custom probiotics this week and my son is going thru some changes. His moods are overall better. He is working much better during therapy and sessions and is making more spontaneous requests. Still starts crying when he has to wait for his meals. I am observing some other behaviors as well. He keeps going into my walk-in closet and closes the door for a second then comes out smiling. He is spending some time in the dark laundry room also. He did this before also when he was on gcmaf and nystatin and it was the same time I was seeing improvement also. I am wondering if this is a sign of yeast die off or custom probiotics is somehow helping with the viruses also. He is engaging in visual stimms also. A couple hours ago, he started squinting again which he has done several times in the past mostly when he is on antiyeast treatments, both naturals and prescriptions. He overall is relaxed and is always trying to make funny sounds, laughs a lot and > > > asks me to be a horse all day so he can ride on me. When I sit down with him for therapy, he doesn't like the idea if I say we are gonna do some work now. But then if I make it interesting, he cooperates. He did exceptional with the puzzles today. Can anyone help me understand what he is going thru. Are probiotics helping with viruses also or it is just the yeast die off? > > > > Any input will be appreciated. > > > > > > > > is > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2012 Report Share Posted July 3, 2012 Its cold turkey!! But my son is better not worse since removing all the supplements,like I said its up to yourself,if you feel its right for you give it a go,you start of with such a small dose one eight of a drop,FYI most of the parents are doing it alongside their children,I intend to start when I finish nursing babyLet your email find you with BlackBerry® from VodafoneSender: mb12valtrex Date: Tue, 3 Jul 2012 14:19:27 -0400To: mb12valtrex <mb12valtrex >ReplyTo: mb12valtrex Subject: Re: Re: Son trying to hide in closets, laundry room and hiding face under pillows I have mms and want to start it. We are doing so many things for Lyme/ co-infections though. Many of the herbs have antioxidant properties. It is hard to think about what will affect the mms. Also my kids have always taken vits in juice. Not sure how to get rid of that. We can dump theirs support and c, d, e, etc. But I get overwhelmed to think of having them stop eating fruit, no juice, etc. Aargh! Any advice/tips?RuthSent from my iPhone We are on our third month of mms,second parasite protocol,not all plain sailing,lots of die off,hugh improvement in receptive language,following instruction and interaction improving.we have been doing biomed for 6 years and have tried so many different things,there is something different about this ,I am hopeful,the least that can happen is the pathogen and parasite load will be decreasedLet your email find you with BlackBerry® from VodafoneSender: mb12valtrex Date: Tue, 3 Jul 2012 09:39:22 -0700 (PDT)To: mb12valtrex <mb12valtrex >ReplyTo: mb12valtrex Subject: Re: Re: Son trying to hide in closets, laundry room and hiding face under pillows , How long have you been doing MMS? What parasite protocol are you doing and how long has it been? While on MSS and parasite protocol, have you seen positives/progress? If yes, is it gradual? Excuse the questions, but I curious to MMS. Regards,Rolando To: mb12valtrex Sent: Tuesday, July 3, 2012 12:24 PM Subject: Re: Re: Son trying to hide in closets, laundry room and hiding face under pillows We are doing MMS and parasite protocol,I am shocked by the amount and size of the worms we are seeing. We had done vermox every full moon for past 2.5 years and never seen anything,maybe check the website out and go with your mammy gut feeling on it. www.mmsautism.comLet your email find you with BlackBerry® from VodafoneSender: mb12valtrex Date: Tue, 03 Jul 2012 16:03:03 -0000To: <mb12valtrex >ReplyTo: mb12valtrex Subject: Re: Son trying to hide in closets, laundry room and hiding face under pillows Tammy, I do feel like that he is exploring things that he never noticed before. He asks me to tickle him all the time also and is also taking interest in run and chase. He definitely has become fun loving again, something that he had lost after homeotoxicology protocols. and suggested parasites and I will explore some options for it(not ready for MMS though). Are you talking about trace minerals liquid vita-mineral? Looks nice but this also contains citrus bioflavanoids which I was trying to avoid as vitaspectrum also contains that and I am trying to minimize the phenol load. But it is available at vitamin shoppe so can easily give it a try. Since the school is closed, I noticed that he is much calmer although still gets anxious when he has to wait for food. Placing demands on him also triggers anger. Custom probiotics and vancomycin is definitely helping. He is back on diflucan and sensory issues are bad again. I hate these antifungals. I may have to try sporonox or nizoral next. I havn't been able to do a carb free diet for him but there was a time a couple months ago when he seemed to have pans flare and he was barely eating and was also on diflucan and still continued to have yeast. In his case I think the yeast is a result of antibiotic use. I hope we don't have to use azithromycin again. I hope that his pans episode will be over now. We had him on azithromycin when we went to the conference and that probably helped. Once the school opens, situation will be clearer as now I believe that there is something or someone at school which causes pans like episodes in him (pathogen orallergen).Thanksis>> is,> > I always keep oxalates in the back of my mind but I dont see any indications of Tom having problem with it so we dont do the diet and I dont hold back C. We dont need the high doses of C any longer but it's always in the house for coughs/colds.> > Anyway, as far as mixing supps, I use a liquid multi. (Trace Minerals. Not the greatest. Some of the inactive ingredients make me squirmy) BUT, it's one that my littlest guy will actually take, its one we can afford, > There's not a sh**load of b -12 in it, it's got the trace minerals,and the taste makes it easy mix in seperate supps.> > So with that said, we use that and add in our own liquid A, E, D, and iodine. (C if we need to). > We've been doing really good on just the multi and melatonin for sleep. He takes small dips here and there so occasionally he needs the extra support.> > As far as your little guy hiding in the closet, do you think it's possible that he just discovered something new and fun to do? He's not doing it when he's upset or scared so maybe he's just having a good time. Tom went through a phase of hiding /sneaking up on people and sneaking BY people just to see if he could do it. It might just be typical little boy behavior & be has found a fun place to sit and imagine and be alone. Just a thought.> > How have his pandas/pans issues been?> And how was your trip?> > Tammy> > Sent from my Kindle Fire> > > > _____________________________________________> Quote Link to comment Share on other sites More sharing options...
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