Re: New to the group! Help!

[Guest guest]

Hi and welcome to the group:

I can't answer your question about B12, I am sure there are others

that can respond in regards to B12. Here is some information that

might also help you.

The specialist that you have seen do you have a Developmental

Pediatrician that is helping you? How open minded is your

pediatrician? has posted a list of labs that many have

gotten done through their pediatricians and covered through

insurance. has also posted an abstract that you can print to

take to your pediatrician to help explain why you are asking for

labs.

--------------

Title: Impact Of Vitamin E And Omega 3 Supplementation In Children

With Verbal Apraxia

R , MD1 and Marilyn C Agin, MD. 1Emergency Medicine,

Children's Hospital & Research Center Oakland, Oakland, CA, United

States.

Oral Presentation (Late-Breaking Abstract Session - General

Pediatrics): May 5, 2007; Pediatric Academy Societies' Meeting,

Toronto, Canada

Background: Verbal apraxia (VA) is a neurologically-based motor

planning disorder of unknown etiology common in autism spectrum

disorders (ASD) that anecdotally responds to omega 3 polyunsaturated

fatty acid (PUFA) supplementation. Vitamin (vit) E deficiency causes

symptoms that overlap those of VA. PUFAs in the cell membrane are

vulnerable to lipid peroxidation and early destruction if vit E is

not readily available, potentially leading to neurological sequelae.

Inflammation of the gastrointestinal tract and gluten sensitivity may

contribute to malabsorption of nutrients such as vit E and carnitine,

contributing to fatty acid metabolism dysfunction and neurological

abnormalities.

Objective: Determine efficacy of vit E and PUFA supplementation in

children with VA.

Design/Methods: 50 children diagnosed with VA were treated with vit E

+ PUFA. 10 of these children were known to have ASD. A celiac panel,

fat soluable vitamins, carnitine level was obtained in patients

having blood analyzed.

Results: Age ranged from 2-13 years, (majority < 5 yrs), 38/50 were

boys. A history of gastrointestinal symptoms, sensory integration

dysfunction, low muscle tone coordination difficulties (dyspraxia)

was commonly reported. 48 families (96%) anecdotally reported

dramatic improvements in a number of areas including speech,

imitation, coordination, eye contact, behavior, sensory issues the

development of pain sensation. 2 children experienced new tearful or

aggressive behavior within 3 days of initiating vit E (400 IU/d)

without apparent benefits in speech, therapy was withdrawn within a

week. No other adverse effects were reported. Plasma alpha tocopherol

levels varied in children tested (low in 2, high in 4 and normal in

4), however pre-treatment levels did not reflect clinical response.

Low plasma carnitine was identified in 13/14 (93%) children.

Antigliadin IgG antibodies were high in 9/11 (82%) children tested. 2

children reported vit D deficiency early signs of rickets.

Conclusions: We describe a new disease paradigm of abnormal vit E

and fatty acid metabolism causing neurological dysfunction in VA

that responds to a safe nutritional intervention. The association of

carnitine deficiency and gluten sensitivity with VA is a novel

observation, suggesting that these children deserve a more

comprehensive metabolic work-up than what is current standard

practice. Larger controlled trials in apraxia and autism are

warranted.

-----------------

recommended labs to be run:

Celiac panel

Vitamin E plasma levels (alpha and gamma)

Other fat soluble vitamins (A, D, K) (Many have fat malabsorption)

PT/PTT and PIVAK-II, a specialized test to determine vitamin K status.

Metabolic studies: Lead level, Zinc, CBC, complete metabolic panel,

plasma quant amino acids

carnitine (total, free, esters), acyl-carnitine panel (plasma),

urine organic acids, lactic acid, comprehensive fatty acid profile

(C8-26) -

a sendout to Mayo clinic - but other labs do it too.(rule out

metabolic disorder as cause of severe neurodevelopmental disorder -

apraxia/dyspraxia).

Celiac pane includes:

serum for

1) human tissue transglutaminase antibodies (TTG),

2) antiendomysial antibodies (EMA),

3) anti-gliadin IgA antibody,

4) anti-gliadin IgG antibody, and

5) total immunoglobulin A.

--------------------

Some children on this board also have GI issues--

/message/59213

Archived message: Malabsorption studies

Kids with GI issues/food allergies could be malabsorbing nutrients

that lead to neurological symptoms seen in apraxia. Malabsorption

work-up can be done to check if this is an issue for apraxic kids.

There is tons of information on fish oil and Vitamin E being used to

help Dyspraxic children. Here is the link to the link section:

/links

Look at folders Essential Fatty Acid - fish oil and Vitamin E.

Most in this group use Nordic Naturals ProEFA/Omega 3-6-9 and

ProEPA/EPA. The higher doses of fish oil have helped my son

greatly. He was pretty much non-verbal at 2, and at 3 I upped his fish oil from

3 capsules to 6 capsules, 6 mos. later he tested age appropriate for expressive

speech. We are still working on articulation and Vitamin E has helped a lot with

articulation. For him it has helped clear up his words and brought on longer

sentences that people outside the house are able to understand. Vitamin E has

also helped many global apraxic children. You will find many archived messages

from in the Vitamin E folder. They are a must read!!

Here is some additional information:

/message/73248

~~~~~~~~~~~~~ some information from Dr. as posted to

our

CHERAB online group

R. , MD

Attending Physician

Director of Fellowship Research

Department of Emergency Medicine

Children's Hospital & Research Center at Oakland

747 52nd Street

Oakland, CA 94609

pager: 510 539-2514

I really can't " advice " anyone. Alot of this new info is just that -

very new, and totally anecdotal. Your child is very young to make the

diagnosis of apraxia - so it is important for you to get a good

neurodevelopmental ped eval to help you set off in the right

direction, since intervention does differ depending on the diagnosis.

But just because the info isn't published...it doen't make it

invalid. But all this needs to be confirmed in a clinical trial

before there will be broader applications and true recommendations

made.

What I can tell you that we have learned:

1. Gluten-sensitivity is common in apraxia as well as in kids with

autism spectrum disorder. Whether this is true celiac or some non-

celiac gluten-sensitivity with neurological complications remains

unknown.

2. Carnitine deficiency is common among our kids with apraxia. This

is also reported in the autism literature as common in ASD. If a

child has low tone, part of the work-up should include plasma

carnitine (total and free), and acetyl-carnitine, and a complete

metabolic panel, CBC (basic labs).

3. Vit E deficiency symptoms overlap those of global apraxia. However

when apraxic kids were tested, levels were all over the place, from

truly low (and important to identify) to very high even before

supplementation. If testing for Vit E, a good idea to screen for all

the fat soluble vits: ADEK. 2 children with apraxia and rickets were

also identified. Pre-treatment levels of vit E did not reflect

response to vit E supplementation.

4. If there are lots of GI symptoms, perhaps a malabsorption work-up

is indicated? Stinky poop that float, chronic diarrhea, abdominal

pain (all reasons to screen for celiac)...suggest possible

malabsorption. Screening stool studies include stool for pH,

reducing substances, and fecal fat. So far, ph is the only

apraxic kid I know that has had this done, and it is preliminarily

positive. He needs a bigger malabsorption work-up.

Malabsorption does not explain everything. I suspect this is going to

be a multifactorial problem. There is underlying inflammation in at

least all the " allergic " kids. This is likely also contributing to

increased consumption of antioxidants. But there may be even more to

the story, like abnormal transport of vit E or carnitine into cells

etc. We have alot to learn.

Gluten-sensitivity is very common in apraxic children. Of the

children who reported bloodwork, 13/14 had pos antigliadin

antibodies. The 1/14 who was negative was actually my son ph -

gluten free since age 3 weeks, an negative celiac panel, definitely

gluten/wheat allergic clinically, and carries the genetic HLA for

gluten-sensitivity/celiac disease. So basically everyone who tested

and reported, had gluten-sensitivity. Clearly you can have a negative

screen and still be gluten-senstive...like my boy, especially if

gluten free. But with a negative celiac panel...going gluten-free

would not be the first thing on my list to try. Other allergens (like

milk for example)...can also cause gut inflammation if you are

allergic to it. There are no really good allergy tests. One can try

RAST and skin testing...but its an imperfect science. Best to be

coordinated with a good pediatric allergist.

Sorry this got so long--hope it helps you,

Tina

>

> Hi All,

> My mind is spinning after reading over so many of the postings.

> Great info and lots to think about!

>

> Here's a brief summary of our " story " with a couple ?'s at the end:

> *Older son (6) mildly dyspraxic, low tone, went to speech for

> articulation issues but was fluent early on. Is in O.T. now that

> we've identified he's dyspraxic.

> *Younger son (2 y.o.+8 mo.) is also low tone, is in speech, P.T.

and

> O.T., as well as ABA therapy. He has seen several specialists and

> everyone (including therapists) agree he doesn't appear to be

> autistic. So perhaps more globally dyspraxic? His language has

been

> extremely slow in coming. At this point he's putting limited 2

words

> together, but isnt' having a language explosion. He does attempt

> more but I'm discouraged. Therapy rules our life and I'm sick of

> it. I truly believe he's apraxic and the Regional Center of O.C.

> (here in California) won't respond to me crying out for help for my

> dyspraxic child (they just wanted to give him ABA I think because

the

> funding's there.)

>

> Last Spring I took him to a local DAN doctor and she wanted to

treat

> him with the DAN protocol (as though he was autistic, even though

he

> doesn't have many of the signs. Although I know there's some

> overlap.) I started him on NN CLO, and put him on a GF/CF/Soy-free

> diet....he's had consistent eczema and asthmatic episodes. The new

> diet did clear up the eczema and caused better, more consistent

bowel

> movements. But I haven't done anything else the DAN doctor wanted

to

> do (all the blood work - out of pocket expense we haven't been able

> to afford). She also recommended the vitamin B12 shots in the butt.

>

> Okay, so here are my questions....I searched here and couldn't find

> the postings (although it looked like there was a thread)....are

the

> vitamin B12 shots a viable thing for apraxic children? Or more for

> autistic, language-delayed kids (without motor issues)? My son has

> definite motor challenges. In fact, I would describe him

> as " consistently inconsistent. " All the therapists say he goes up

> and down (makes progress, then regresses, etc.) It breaks my

heart.

>

> Do you ever feel you are swimming alone in a great big ocean with

no

> island in sight? That's me. The majority of my friends and our

> families don't " get it " and have either said lame things or just

> slowly pulled away.

>

> Okay, enough rambling. Thanks for being a safe haven - I can tell

> I'll enjoy being a part of your community!

>

>

>

[Guest guest]

,

If you can get the testing Tina has listed from the archives it can

be a lifesaver. I have done what you did and am seeing great results.

I have the test kits from the DAN and will do them but the truth is I

think gluten, milk, and yeast were our enemies. We do not seem to

have a carnitine issue.

These tests outlined are very important and more tailored to

apraxia. A one size fits all dan doc, mainstreamer, or therapist is a

bad move.

Regarding CLO: we have had better success for reasons unknown other

than perhaps the soy distribution, with Pharmax brand.

Also, just generally make sure he is getting vitamins and minerals so

that your testing does not show a problem that is merely dietary.

Lastly, reverse osmosis water can be a Godsend. That alone was

responsible for a number of awakenings in my son.

We are still on the path and articulation is our main concern these

days.

Best wishes!

> >

> > Hi All,

> > My mind is spinning after reading over so many of the postings.

> > Great info and lots to think about!

> >

> > Here's a brief summary of our " story " with a couple ?'s at the

end:

> > *Older son (6) mildly dyspraxic, low tone, went to speech for

> > articulation issues but was fluent early on. Is in O.T. now that

> > we've identified he's dyspraxic.

> > *Younger son (2 y.o.+8 mo.) is also low tone, is in speech, P.T.

> and

> > O.T., as well as ABA therapy. He has seen several specialists and

> > everyone (including therapists) agree he doesn't appear to be

> > autistic. So perhaps more globally dyspraxic? His language has

> been

> > extremely slow in coming. At this point he's putting limited 2

> words

> > together, but isnt' having a language explosion. He does attempt

> > more but I'm discouraged. Therapy rules our life and I'm sick of

> > it. I truly believe he's apraxic and the Regional Center of O.C.

> > (here in California) won't respond to me crying out for help for

my

> > dyspraxic child (they just wanted to give him ABA I think because

> the

> > funding's there.)

> >

> > Last Spring I took him to a local DAN doctor and she wanted to

> treat

> > him with the DAN protocol (as though he was autistic, even though

> he

> > doesn't have many of the signs. Although I know there's some

> > overlap.) I started him on NN CLO, and put him on a GF/CF/Soy-

free

> > diet....he's had consistent eczema and asthmatic episodes. The

new

> > diet did clear up the eczema and caused better, more consistent

> bowel

> > movements. But I haven't done anything else the DAN doctor wanted

> to

> > do (all the blood work - out of pocket expense we haven't been

able

> > to afford). She also recommended the vitamin B12 shots in the

butt.

> >

> > Okay, so here are my questions....I searched here and couldn't

find

> > the postings (although it looked like there was a thread)....are

> the

> > vitamin B12 shots a viable thing for apraxic children? Or more

for

> > autistic, language-delayed kids (without motor issues)? My son

has

> > definite motor challenges. In fact, I would describe him

> > as " consistently inconsistent. " All the therapists say he goes up

> > and down (makes progress, then regresses, etc.) It breaks my

> heart.

> >

> > Do you ever feel you are swimming alone in a great big ocean with

> no

> > island in sight? That's me. The majority of my friends and our

> > families don't " get it " and have either said lame things or just

> > slowly pulled away.

> >

> > Okay, enough rambling. Thanks for being a safe haven - I can tell

> > I'll enjoy being a part of your community!

> >

> >

> >

>

[Guest guest]

Re: B12:

The benefits if you have a true absorption problem are that it can

potentially help with peripheral, auditory, and occular???

neuropathy. In essence...getting circulation to all the right places.

I am using millen in diet to get the B's in and rule in or out the

need for B12. I also hve a multi with a lot in it. My concern about

the full dose multi or the shots would be yeast aggravation in the

absence of a real issue that millen could wipe out.

>

> Hi and welcome to the group:

> I can't answer your question about B12, I am sure there are others

> that can respond in regards to B12. Here is some information that

> might also help you.

>

> The specialist that you have seen do you have a Developmental

> Pediatrician that is helping you? How open minded is your

> pediatrician? has posted a list of labs that many have

> gotten done through their pediatricians and covered through

> insurance. has also posted an abstract that you can print

to

> take to your pediatrician to help explain why you are asking for

> labs.

>

> --------------

> Title: Impact Of Vitamin E And Omega 3 Supplementation In Children

> With Verbal Apraxia

> R , MD1 and Marilyn C Agin, MD. 1Emergency Medicine,

> Children's Hospital & Research Center Oakland, Oakland, CA, United

> States.

>

> Oral Presentation (Late-Breaking Abstract Session - General

> Pediatrics): May 5, 2007; Pediatric Academy Societies' Meeting,

> Toronto, Canada

>

> Background: Verbal apraxia (VA) is a neurologically-based motor

> planning disorder of unknown etiology common in autism spectrum

> disorders (ASD) that anecdotally responds to omega 3 polyunsaturated

> fatty acid (PUFA) supplementation. Vitamin (vit) E deficiency causes

> symptoms that overlap those of VA. PUFAs in the cell membrane are

> vulnerable to lipid peroxidation and early destruction if vit E is

> not readily available, potentially leading to neurological sequelae.

> Inflammation of the gastrointestinal tract and gluten sensitivity

may

> contribute to malabsorption of nutrients such as vit E and

carnitine,

> contributing to fatty acid metabolism dysfunction and neurological

> abnormalities.

> Objective: Determine efficacy of vit E and PUFA supplementation in

> children with VA.

> Design/Methods: 50 children diagnosed with VA were treated with vit

E

> + PUFA. 10 of these children were known to have ASD. A celiac panel,

> fat soluable vitamins, carnitine level was obtained in patients

> having blood analyzed.

> Results: Age ranged from 2-13 years, (majority < 5 yrs), 38/50 were

> boys. A history of gastrointestinal symptoms, sensory integration

> dysfunction, low muscle tone coordination difficulties (dyspraxia)

> was commonly reported. 48 families (96%) anecdotally reported

> dramatic improvements in a number of areas including speech,

> imitation, coordination, eye contact, behavior, sensory issues the

> development of pain sensation. 2 children experienced new tearful or

> aggressive behavior within 3 days of initiating vit E (400 IU/d)

> without apparent benefits in speech, therapy was withdrawn within a

> week. No other adverse effects were reported. Plasma alpha

tocopherol

> levels varied in children tested (low in 2, high in 4 and normal in

> 4), however pre-treatment levels did not reflect clinical response.

> Low plasma carnitine was identified in 13/14 (93%) children.

> Antigliadin IgG antibodies were high in 9/11 (82%) children tested.

2

> children reported vit D deficiency early signs of rickets.

> Conclusions: We describe a new disease paradigm of abnormal vit E

> and fatty acid metabolism causing neurological dysfunction in VA

> that responds to a safe nutritional intervention. The association of

> carnitine deficiency and gluten sensitivity with VA is a novel

> observation, suggesting that these children deserve a more

> comprehensive metabolic work-up than what is current standard

> practice. Larger controlled trials in apraxia and autism are

> warranted.

> -----------------

> recommended labs to be run:

> Celiac panel

> Vitamin E plasma levels (alpha and gamma)

> Other fat soluble vitamins (A, D, K) (Many have fat malabsorption)

> PT/PTT and PIVAK-II, a specialized test to determine vitamin K

status.

> Metabolic studies: Lead level, Zinc, CBC, complete metabolic panel,

> plasma quant amino acids

> carnitine (total, free, esters), acyl-carnitine panel (plasma),

> urine organic acids, lactic acid, comprehensive fatty acid profile

> (C8-26) -

> a sendout to Mayo clinic - but other labs do it too.(rule out

> metabolic disorder as cause of severe neurodevelopmental disorder -

> apraxia/dyspraxia).

>

> Celiac pane includes:

>

> serum for

>

> 1) human tissue transglutaminase antibodies (TTG),

>

> 2) antiendomysial antibodies (EMA),

>

> 3) anti-gliadin IgA antibody,

>

> 4) anti-gliadin IgG antibody, and

>

> 5) total immunoglobulin A.

> --------------------

>

> Some children on this board also have GI issues--

>

/message/59213

> Archived message: Malabsorption studies

> Kids with GI issues/food allergies could be malabsorbing nutrients

> that lead to neurological symptoms seen in apraxia. Malabsorption

> work-up can be done to check if this is an issue for apraxic kids.

>

> There is tons of information on fish oil and Vitamin E being used to

> help Dyspraxic children. Here is the link to the link section:

> /links

> Look at folders Essential Fatty Acid - fish oil and Vitamin E.

> Most in this group use Nordic Naturals ProEFA/Omega 3-6-9 and

> ProEPA/EPA. The higher doses of fish oil have helped my son

> greatly. He was pretty much non-verbal at 2, and at 3 I upped his

fish oil from 3 capsules to 6 capsules, 6 mos. later he tested age

appropriate for expressive speech. We are still working on

articulation and Vitamin E has helped a lot with articulation. For

him it has helped clear up his words and brought on longer sentences

that people outside the house are able to understand. Vitamin E has

also helped many global apraxic children. You will find many

archived messages from in the Vitamin E folder. They are a

must read!!

>

> Here is some additional information:

>

/message/73248

> ~~~~~~~~~~~~~ some information from Dr. as posted to

> our

> CHERAB online group

> R. , MD

> Attending Physician

> Director of Fellowship Research

> Department of Emergency Medicine

> Children's Hospital & Research Center at Oakland

> 747 52nd Street

> Oakland, CA 94609

> pager: 510 539-2514

>

>

> I really can't " advice " anyone. Alot of this new info is just that -

> very new, and totally anecdotal. Your child is very young to make

the

> diagnosis of apraxia - so it is important for you to get a good

> neurodevelopmental ped eval to help you set off in the right

> direction, since intervention does differ depending on the

diagnosis.

> But just because the info isn't published...it doen't make it

> invalid. But all this needs to be confirmed in a clinical trial

> before there will be broader applications and true recommendations

> made.

>

>

> What I can tell you that we have learned:

>

> 1. Gluten-sensitivity is common in apraxia as well as in kids with

> autism spectrum disorder. Whether this is true celiac or some non-

> celiac gluten-sensitivity with neurological complications remains

> unknown.

>

> 2. Carnitine deficiency is common among our kids with apraxia. This

> is also reported in the autism literature as common in ASD. If a

> child has low tone, part of the work-up should include plasma

> carnitine (total and free), and acetyl-carnitine, and a complete

> metabolic panel, CBC (basic labs).

>

> 3. Vit E deficiency symptoms overlap those of global apraxia.

However

> when apraxic kids were tested, levels were all over the place, from

> truly low (and important to identify) to very high even before

> supplementation. If testing for Vit E, a good idea to screen for all

> the fat soluble vits: ADEK. 2 children with apraxia and rickets were

> also identified. Pre-treatment levels of vit E did not reflect

> response to vit E supplementation.

>

> 4. If there are lots of GI symptoms, perhaps a malabsorption work-up

> is indicated? Stinky poop that float, chronic diarrhea, abdominal

> pain (all reasons to screen for celiac)...suggest possible

> malabsorption. Screening stool studies include stool for pH,

> reducing substances, and fecal fat. So far, ph is the only

> apraxic kid I know that has had this done, and it is preliminarily

> positive. He needs a bigger malabsorption work-up.

>

> Malabsorption does not explain everything. I suspect this is going

to

> be a multifactorial problem. There is underlying inflammation in at

> least all the " allergic " kids. This is likely also contributing to

> increased consumption of antioxidants. But there may be even more to

> the story, like abnormal transport of vit E or carnitine into cells

> etc. We have alot to learn.

> Gluten-sensitivity is very common in apraxic children. Of the

> children who reported bloodwork, 13/14 had pos antigliadin

> antibodies. The 1/14 who was negative was actually my son ph -

> gluten free since age 3 weeks, an negative celiac panel, definitely

> gluten/wheat allergic clinically, and carries the genetic HLA for

> gluten-sensitivity/celiac disease. So basically everyone who tested

> and reported, had gluten-sensitivity. Clearly you can have a

negative

> screen and still be gluten-senstive...like my boy, especially if

> gluten free. But with a negative celiac panel...going gluten-free

> would not be the first thing on my list to try. Other allergens

(like

> milk for example)...can also cause gut inflammation if you are

> allergic to it. There are no really good allergy tests. One can try

> RAST and skin testing...but its an imperfect science. Best to be

> coordinated with a good pediatric allergist.

>

> Sorry this got so long--hope it helps you,

> Tina

[Guest guest]

Hi !

I unfortunately know about testing for global delays in children as

both my children were -Dakota especially as you can read in The Late

Talker book. Both of my boys went through extensive testing -genetic

for one -but I don't recall vision tests to be honest with you at all

for Tanner...but perhaps for Dakota it was done while he was in the

hospital after he was born?

I use the words freak out to describe a new member who has a late

talker -communication impaired child who is now worrying about things

that the majority of us never worried about -cardiology and

ophthalmology. Especially when one reads your first message last

month. There are methods you are doing that are not recommended to

work for the majority.

Is your older child in therapy still for his dyspraxia? The fish

oils and vitamin E therapy help that as well. Have you read any of

the messages from Dr. about her son -I've also posted

it too but not sure if I did since you joined.

You don't say but what type of speech therapy is your youngest son

in? How often and is it individual? Did the neurologist and OT find

sensory issues as well? He should not be in ABA therapy unless he is

autistic. It's therapy that is appropriate for autistic children -

and if he is both autistic and speech impaired (such as apraxic) then

he needs modified ABA by a professional that understands apraxia.

There are members who are posting now that have a child that was not

autistic given ABA and at best it's a waste of time and money -and at

worst you end up with psychological damage on top of the impairment

http://www.cherab.org/news/.html

Fish oils can clear up the eczema -actually it's one of the signs of

a deficiency -here's a study

http://www.eczemaletters.com/2008/02/06/docosahexaenoic-acid-dha-supplementation\

-in-atopic-eczema-a-randomized-double-blind-controlled-trial/

Cod liver oil is healthy as long as you don't do high dosages -

vitamin A is found naturally in the liver of the fish...but it's not

the formula of fish oils that works for most. Have you read The Late

Talker? Here's a link to show you how we found out the long hard way

that if it's the wrong formula -it probably won't work -or work

well. CLO is for just about for all the wrong formula

http://www.cherab.org/information/historyEFA.html Also in addition

to see surges on the right formula of an omega 3 and omega 6 formula

like Efalex, EyeQ or ProEFA -you need to stop the cod liver oil or

you change the formula and raise the omega 3 -mainly DHA too. If you

want to raise the omega 3 you want to raise the other omega 3 -the

EPA. If you want a good pure omega 3 for some reason -Coromega is

one of the best as it's high EPA.

I was raised on a GFCF diet due to being diagnosed celiac as a child

and hated that diet even though I needed to be on it. I spent years

in and out of hospitals at that time until they figured out the diet -

so understand at times it's needed. However I can assure you that

when you go to in person group meetings and get to know everyone that

most do not put their child on special diets -and there is no

difference if you stop the diet -huge difference if you stop the fish

oils and vitamin E. If your child's tested to be on that diet for

life -then of course. I no longer am on any special diet and was

tested to not be celiac recently so much of what I hated I may not

have to have done -so I know what it's like -and I also know what

it's like if you had to be on one but perhaps didn't have to be. Do

things one at a time so you know what's worth doing and what is not.

For most -speech and oil therapy is all that is needed.

One of my friends who is an MD gives herself B12 vaccines for her

diabetes. Anyone can use them -but as I posted you would want to

make sure your child's doctor gave the injections the first few times

due to rare but serious complications. But no -most here through the

years did not do B12 shots for their apraxic child -we never did

either.

Apraxia is a motor planning disorder and can affect any part of the

body. Once on the right formula of EFAs and now vitamin E most of us

find our children are consistent. I know this post was written last

month -so if you have not seen any surges since -please just try what

worked for most of us. It's simple -relatively inexpensive and the

parents who all went down this route including me have children that

are mainstreamed with tons of friends. There is much hope -and it

doesn't always cost tons of money to find that light.

Dakota

http://www.cherab.org/information/familiesrelate/workandfamily.html

Tanner

http://www.cherab.org/information/familiesrelate/letter.html

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