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]Re: Re: Vitamin E - lack of pain sensation

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,

I had a problem with vitamin E.... it gave Mark nosebleeds and this made me

uncomfortable. We do okay with 400 per day but no more than that. I have

learned to be careful with the vitamin E.

Many of the younger kids do wonderfully with it and I would hate to disuade a

mom with a youngster from giving it a shot. I just hesitate to think of it as a

cure for low-tone. Some of the tone issues really require therapeutic OT

measures and stimulation for once acquired, it is there. Supplementation may

help particularly in the preventative realm but you really need to stimulate the

sensory motor cortex physically and do some physical therapy with the child. I

would certainly look at both but I have been supplementing for some time now...

the only thing that has really helped low tone has been exercise.... plain and

simple.

I do think that Vitamin E is a beneficial supplement and should be looked at.

It has helped many a child on this board obtain words! Please don't let my

'banter' turn you off if you are a newbie for I recognize that sooooo many kids

have truly been helped with the Vitamin E.

Janice

[sPAM]Re:[ ] Re: Vitamin E - lack of pain sensation

Hi Janice:

here are some symptoms of Vitamin E deficiency

http://lpi.oregonstate.edu/infocenter/vitamins/vitaminE/

Vitamin E deficiency has been observed in individuals with severe

malnutrition, genetic defects affecting the alpha-tocopherol transfer

protein, and fat malabsorption syndromes. For example, children with

cystic fibrosis or cholestatic liver disease, who have an impaired

capacity to absorb dietary fat and therefore fat-soluble vitamins,

may develop symptomatic vitamin E deficiency. Severe vitamin E

deficiency results mainly in neurological symptoms, including

impaired balance and coordination (ataxia), injury to the sensory

nerves (peripheral neuropathy), muscle weakness (myopathy), and

damage to the retina of the eye (pigmented retinopathy). For this

reason, people who develop peripheral neuropathy, ataxia or retinitis

pigmentosa should be screened for vitamin E deficiency (2). The

developing nervous system appears to be especially vulnerable to

vitamin E deficiency because children with severe vitamin E

deficiency from birth, who are not treated with vitamin E, develop

neurological symptoms rapidly. In contrast, individuals who develop

malabsorption of vitamin E in adulthood may not develop neurological

symptoms for 10-20 years. It should be noted that symptomatic

vitamin E deficiency in healthy individuals who consume diets low in

vitamin E has never been reported (10).

http://www.merck.com/mmpe/sec01/ch004/ch004l.html

Symptoms and Signs

In children, chronic cholestatic hepatobiliary disease or cystic

fibrosis causes neurologic deficits, including spinocerebellar ataxia

with loss of deep tendon reflexes, truncal and limb ataxia, loss of

vibration and position senses, ophthalmoplegia, muscle weakness,

ptosis, and dysarthria.

I don't know enough about plasma Vitamin E levels to respond.

Perhaps can respond to blood tests coming up normal.

Tina

> >

> > /links

> > folder: Vitamin E

> >

> > Vitamin E could help with lack of pain sensation. has

> talked

> > about ph being able to feel pain after starting Vitamin E.

>

> > Geng is another person that has mentioned it helping Tanner.

> Please

> > take a look in the Vitamin E folder for information to read

through.

> >

> >

>

/message/72356

> > (Neuro symptoms of vit E deficiency: Speech

> > difficulty, coordination problems, low tone, loss of reflexes,

loss

> > of pain sensation (high pain tolerance), poor proprioception and

> > positional sense - ie poor concept of body's position in space -

so

> > walks into walls etc). It is not a coincidence.

> >

> > Hope this is helpful

> > Tina

> >

>

>

>

>

>

>

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