Guest guest Posted February 15, 2005 Report Share Posted February 15, 2005 Ya'll know that I have been on this tangent to get word out about our wonderful support group that we have here. I have asked all ya'll to share the web site with your docs so they can inturn share it with their other panc patients. As we all know, not all docs are so receptive to " online " activites. I had asked the surgeon at MUSC who had done all my sugeries and referred me to Cincy to do just that and got no response. I was beginning to think I would be sharing 's unfortunate experience. I had even planned on making my own fliers and taking them to the ERCP unit when/if I went to MUSC to check on Kim. Tonight I received an email from the surgeon at MUSC with the name of the gentleman, whom I am guessing is the webmaster for the DDC at MUSC, asking if I could send him the link. I sent it immediately. Hopefully, I sent it correctly and it will be added to the support group section of the pancreatitis part of the DDC web page soon. Boy thats a mouthful. That is an excellent site that provides tons of valuable info and now maybe more people who have cp will find the support, comfort, knowledge and love just like I and the rest of us have been so fortunate to find. Sure do hope I sent it right. Warmly, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2005 Report Share Posted February 16, 2005 , I think that it is great that the DDC at MUSC site is willing to put the link to this board on their homepage. I agree that having this board is about the best thing there is about CP and all the stuff that is associated with it. I also think that the more people that join in on our discussions the more we can learn and maybe start to understand why certain things happen in certain circumstances. It always is helpful to get many opinions with various viewpoints. The bigger we grow, the stronger we get as an organization. We should get magnates made and we can place them in strategic locations when we visit gastroenterologists. We can join the array that is up there that the drug reps give to clinics! Laurie Quote Link to comment Share on other sites More sharing options...
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