new to all this

[Guest guest]

Kara,

We can all sympathize with where you are right now. It is so frustrating!

You didn't mention where you live. If you can give some details as to where you

live I know that alot of folks on here can help you find docs. What kind of

meds are you on?

I work in an elementary school and have to miss quite a bit of work and it

is so frustrating. Trying to get your degree is hard enough without this

frustration.

Don't feel alone anymore you have found the right place. I have only been in

this group for a short while and I have found some wonderful people with

great info!

Take care!

Angie in SC

" The happiest of people don't necessarily have the

best of everything; they just make the best of everything that comes along

their way. "

[Guest guest]

Hi- I'm new to all this. I was diagnosed with chronic pancreatitis in

Dec. Since then my life has been a rollar coaster. I just feel so

alone and so scared. I'm a student trying to work toward my degree,

this is also my income that pays my bills. I keep missing school due

to the illness. I'm just so scared by all of this. My doctor is no

help aside from prescribing drugs. I would love to communicate with

some others who have this. Maybe give me some pointers. Anything. I

feel like I'm dying. Does anyone have any words of wisdom?

[Guest guest]

Thank you for your prompt response. I needed it. I

feel very alone right now and I'm scared.

I'm 32, almost 33 and I have an 11 yr old son. He is

at his dads, he went there today for a week. I miss

him terribly.

I was diagnosed at the beg of Dec. I spend all of Dec

and a couple weeks into Jan in the hospital minus a

couple of times they discharged me for overnight.

While in they did a cat scan, an mri and an ercp.

Also one other one I don't know what it was and a

couple of ultrasounds. They never found anything they

could repair surgically so they basically dumped me

out and said welcome to the life of chronic pain. I

have found a little on the internet, but not much that

answers my questions. My doctor acts sort of fed up

with me and her basic message is go home, shut up and

take your pills.

I feel very alone. I was in a long term relationship

for almost 6 yrs that I was sure was going to last,

but she left me alittle over a year ago. this seems

like it would be a bit easier to bear if I had a

significant other to help out. Just simple stuff like

housework an d paying bills as wellas getting lots of

hugs.

Um, I live in Northern California between SF and

Sacto.

I would love to hear more about your story and others.

Any pointers would be welcomed. I have no idea what

types of things I should be eating and such.

Hope to hear from you soon.

namaste

Kara

--- wrote:

>

=====

The whole world we travel with our thoughts,

Finding nowhere anyone as precious as one's own self.

Since each and every person is so precious to themselves

Let the self-respecting harm no other being.

-from the Samyutta Nikaya

[Guest guest]

Hi Kara,

Firstly welcome...secondly...you need to find a Gastroenterologist

who can help you. If you didn't know this, then this is the doctor

who can try to help you with it.

As for pain management, most people find that going to a Pain

Management Specialist is a high priority. They deal with people with

chronic pain and aren't scared to give strong pain meds to those who

need them.

We have a Chapter Representative, Kimber who might be able to help

you as she is in California also. We have some other members who are

around San Francisco also (remembering if that is where you said you

were from..sorry, my mind is addled these days).

If there is anything I can help you with, don't hesitate to ask.

Also, if you click on the Database link to the left of the messages,

you will find another link for Doctor Database. This lists doctors

nationwide whom have been recommended by other members of this

group. There is also a hospital database.

Take care,

Ward

PAI Administration Support Staff

dceward@...

[Guest guest]

Kara,

hey, you live somewhere close to me. I live in Vallejo and I also had

problems with dealing with pancreatitis and getting my degree, though I

finally managed to graduate after 6 years.

Things you should be eating: high carbo, low to non fat, absolutely NO

alcohol. I've found that I can tolerate fish the best as a protein

source and eggbeaters instead of regular eggs.

A good website for you to look at is the Hopkin's GI website:

http://www.hopkins-gi.org/

Do a search on the word Pancreatitis and then read everything that comes

up. It's a very good information source on pancreatitis.

Kimber

--

Kimber

Vallejo, CA

hominid2@...

Note: All advice given is personal opinion, not equal to that of a licensed

physician or health care professional.