Really need help with Pancreatic Disorders

[Guest guest]

Ian, Hi and welcome. I just wanted to say that I too, have Chronic

Pancreatitis that does not show up on CT's (yet), and Sphincter of

Oddi Dysfunction. I say yet, because my doctor (and me) both

believe that it is only a matter of time til something shows on

films. My SOD started with pain in the middle of my belly (where

the ribs split), and radiated to the right, when I was first

searching for a diagnoses. Of course this went undiagnosed for

about 4-5 years. Once I was diagnosed with the SOD, I had the ERCP

with manometry and had a biliary sphincterotomy preformed.(a cut

only on the bile duct side). When my symptoms returned, I went on

yet another 2 year hunt for a doctor until I found a specialist who

preformed more tests and another ERCP with manometry (also on the

pancreatic duct). I finally found out that the pressure in my

pancreatic duct was VERY high, and so I have pancreatic SOD, which

in turn leads to my constant left sided pain (re: chronic

pancreatitis). So, yes you can have left sided pain with SOD

depending on which duct is affected. I believe that since my

pancreatic SOD went undiagnosed so long, that it now has caused the

chronic pancreatitis. I have everyday pain, which I take pain meds

for, and then I get those SOD attacks that come " out of no where " .

The only advise I feel that I can pass along confidently, is to seek

out a " specialist " / Either a pancreatologist or a GI specialist who

is an EXPERT endoscopist. I don't know where you are from, but I'm

sure you will get lots of referrals from the people on this board,

to help you along with your search. This board is where I found my

recommendation for my current doc, Dr. Lehman. He is one of the top

endoscopist in the country. He is the first doctor whom I

completely trust with my care, (and that is saying alot!). I hope

you stick around and please ask any questions you need to.

Take care

Kris in TN

[Guest guest]

Hi to my friends Kurt, wanderingkara and everyone...

Well, Im not sure what this means. But the agonizing anxiety attacks

have reduced and now I am experiencing classic Pancreas symptoms Ive

been reading about. Now I am feeling a constant feeling of something

being under my left ribcage, and the pain is extending to my back. It

is a dull pain which I feel depending on how I move around, and is

worse when I am lying down. I also noticed my stools have increased

alot in the past few days, pretty much since I started taking the

Prilosec the ER doc prescribed me a couple of weeks ago. Once again I

am worrying about the possibility of the worst, but hoping that this

could be something I can at least live with. The pain is not bad, but

the fear of what it is IS bad. I guess I would fall under the category

of Chronic now because I assume Acute would have ended already.

Anyhow, Im going to see a Gastro as soon as my insurance from my new

job kicks in in a couple of weeks if I can make it. My only hope now

is that since my CT scan with contrast in August came up fine, that im

not in as big of trouble as I think. And that what im ultimately

worried about can not develop that fast. (I dont even like to say the

word). I have also noticed my urine is a little darker, but my stools,

while bulky, are still brownish colored.

Kurt, if I had to put together a dream system, it would probably

consist of Logans as you mentioned, or possibly Mark Levinsons

mated up with any of the variety of wonderful THX Ultra receivers out

these days, though admittedly I havent been keeping up. I tell you

what though, everyone pokes fun at B&O just like they poke fun at

Bose, and with good reason BUT the other day I was in the Galleria in

Houston and listened to a pair of what I believe were Beosound 5's and

I was absolutely floored by them. He demoe'd a copy of Pink Floyd's

TIME at very high volume and they didnt show even a hint of

distortion. I believe they had a pair od 1000 watt amps in the base,

plus 250 watt amps in the middle section for the mid range and then

tweeters above. They were somethin else!

Ian.

[Guest guest]

Ian,

AHHHHH, the sound of Pink Floyd...now that's good music.

Kris in TN