pancreas hospitals

[Guest guest]

I am hearing about the University of Cincinnati. What other

hospitals are the best to treat pancreatitis. What determines if you

are a candidate for a transplant. How long do you have to suffer

with CP before it is advisable. Can someone expect to have a normal

life after wards? What about rejections> Are steroids used to

prevent rejection? Thanks for any and all information. Love and

prayers,

[Guest guest]

Hi ,

I don't know where you are, but for anyone in the UK, the Royal Liverpool

University Hospital is a good centre for the teratment of pancreatic conditions.

They do pancreatic surgery, including total pancreatectomy - but not islet

cell transplant. As to how long you need to have had CP before you can be

considered for surgery - i think that is based on individual assessment. I'm

not

sure about rejection. I'm sure there are many others on this board who can

tell you about that. I can't see why you would have problems with rejection, or

need steroids when it is your own islets that are transplanted.

I have had a total pancreatectomy - without Islet cell transplant in 2000.

Apart from the occasional problem, my quality of life is much improved.

Obviously i am a diabetic and require insulin. I work 30 hours a week, shifts,

inculding nights.

If you want any more info please contact me.

Sue (UK)

[Guest guest]

,

Hospitals in the Southeast and Central states that are well known for

their pancreatitis treatments are:

Hopkins Medical Center, Baltimore, land

The Cleveland Clinic, Cleveland, Ohio

The University of Cincinnati, Cincinnati, Ohio

Indiana University Medical Center, Indianapolia, Indiana

Medical University of South Carolina (MUSC), ton, SC

Duke University Medical Center, Durham, North Carolina

The Mayo Clinic, ville, Florida

Only a few of these mentioned perform the Total Pancreatectomy with

Auto Islet Transplant. To the best of my knowledge, only Hopkins

and The University of Cincinnati are now certified to perform this

procedure.

The TP-ICT is also performed at Fairview Medical Center on the campus

of the University of Minnesota, in Minneapolis, Minnesota. Dr.

Sutherland, the physician who " invented " the procedure back in the

early 70's, still performs it at this hospital, and is the most highly

skilled physician capable of doing this surgery.

I have heard of it being done at a hospital in Chicago, also, but I

don't know the name of the facility, and the patient that I read about

that had it done there ended up having very serious and untreatable

complications.

It's also done somewhere in California, but I don't know which

hospital it is.

I hope this information helps.

With love, hope and prayers,

Heidi

Heidi H. Griffeth

South Carolina Rep.

South Eastern Regional Rep., PAI

Note: All comments or advice are based on personal experience or

opinion, and should not be substituted for professional medical

consultation.

[Guest guest]

>

> Thank you Heidi. You have so much information available as soon as

someone asks. You are a good person. I hope we get some answers

soon. His pain is increasing, his kidneys not functioning properly,

he can't urinate most every other day and self caths, his platelets

continue to fall and it seems the GI doctors, the urologist and the

PCP cannot decide who is going to figure this out, so they just blame

the other. I am about to explode. is afraid I will get

people mad at him and I try to explain that he has to take control of

his care or they'll just leave him in bed to rot away. I will go see

his doctor tomorrow if they don't call him with some answers. Thanks

again for everything. Love and prayers, LInda